lets talk aspergers

Lets talk Aspergers.

Why because? Because we should

Aspergers is something that is very close to my heart. Being a mother of two fantastic children is a wonderful thing as I’m guessing many mothers would quote. This blog has been created as a place that allows me to express myself, get heard, raise awareness, rant and rave and most importantly share. I want to share my amazing son with the world. WHY? Because he has aspergers and i want to show the world that having a child with ASD doesn’t mean the end of the world. Yes it can be hard work but that’s motherhood and i love it.

Want this blog to reach out to other parents that like myself have just taken that big step into the Aspergers/ASD world

Litte man
Glitter Graphics

ALL IS GOING GREAT!

So little man and his sister went back to school Monday. Yes I was worried about little man as he hates change but things seem to be going fantastic. I was also really worried about him sleeping and waking up on time but we have also overcome that problem! We live next door to one of Giovanni’s class mates and we have agreed that they can walk to school alone together. The thing is we only live up the road from the school so there are no big roads to deal with  and we can pretty much see from the window. I also still have to walk Alice to school so we leave five min after he does so he fells that bit more grown up. They leave early and play In the playground before the bell goes. I’m so pleased He has become close with someone in his class/school as little man can find it hard forming a friendship with other children as a result of his Aspergers and he has at times become a target for bullies. ( At the moment their is a girl aged around 10 yrs that lives a few doors down). She seems to enjoying winding little man up and it’s now got so bad he don’t want to go and play with his friend that he walks to school with in their garden as the bully lives next door and sometimes goes around. We saw her at shopping today and she was rude and I had to have a word with her mother which I hate doing. Her mum was also heavily pregnant like myself and looked as if she really didn’t need the stress ( Well heres hoping things improve )

Anyway guys just wanted to update you on the whole school thing and thank everyone for their support:)

A well over due update!i

God how slack am I! I really can’t believe that I have not posted anything since the beginning of July ( How poor and Lazy is that )

Well family life is going OK. Little man and his sister are great and looking forward to returning to school On Monday. We had so much planed for the school holidays but sadly not much of it happened. As most of you know I’m 7m pregnant and my iron levels have been up and down making me really tired! Then there was the summer heat which was horrid:( So we are hoping to take the children away for a few days before baby is born. As there was cases off swine flu at little mans school before they broke up they had a extra week off so little man did not get to meet his new teacher. I am a little worried we will have problems! Like most children with ASD he hates change. I have tried to prepare him for this but who knows? His not happy about not working with Mr Ally anymore who he formed a fantastic bond with. Also as most know little man is a very poor sleeper and has been taking Meds for sometime. Since breaking up his routine has gone up the wall and it has been hard trying to get the little bugger to bed lol. Lets hope all turns out OK and the new school year goes well. I’m really hoping his school pull out all the stops and the school Senco goes all out on offering and giving him any extra support my son may need. His never really been a fan of school but I’m hoping this year he gets more happy and settled as I really don’t want to stress things out more with the sudden change of a new school! And with a new baby on the way  I want little man to be as comfortable as possible.

Talking off being comfortable can you believe our house is still not completed after the ceiling fell in back in April! Yes they have done the ceiling but the rest of  the room is still a building site. We had just spent a fortune decorating only to see it turn to dust. We are still waiting on the walls being plastered as the impact of the fall caused the walls to blow:( This is supposed to be done this coming Monday ( finger and toes crossed ) Our new Kitchen and bath room is going to be done by November phew. Just in time for the birth of my son. I really don’t want my baby coming home to a war zone.

Last but not least I really need to rant. When I  logged on tonight I discovered a comment on one of my post that upset me so much I was in tear! Normally I would not let stuff like this upset me as their are some dumb people out there with nothing but crap to say but hay maybe it’s my hormones! This person Wanted to tell me his views on people with Aspergers. Well my son is a retard, a wimp and needs to be locked up. Whoever you are please don’t comment on my blog anymore!!! You are a truly sad individual and i prey u get whats coming to you.

Well thanks for reading and I will  be sure to update soon.

Swine flu at little man’s school

Yes swine flu is everywhere so much so that it’s now in little man and Alice’s school.

A few days ago I was due to have a meeting at the school ( This was to talk about little man going up to year 4 and how he would cope with the change ) In the morning my mother in-law rang to say that she had heard from another parent that their child had been taken ill with the swine flu. So I ring the school and to my horror YES there has been a few reported cases of swine flu at the school. I was angry to have to hear this news from another parent and not the school first hand. I was already felling sick as I had eaten something that did not agree with me. As most off you may know I’m expecting another child and being pregnant puts you in the high risk group. So after speaking with my doctor I was advised NOT to attend the meeting at the school.

Since finding out I have kept little man and Alice home. As I have also been sick I have not wanted to take the children in. Who wants there children catching swine flu??? Not me. Yes I may seem over the top but I wish the school had closed. If Little man and Alice fell ill who would care for them. I just want to protect my children and unborn child. Little man already has to deal with  a lot of problems and he really struggles when his sick . I’m unsure if children with autism/aspergers are in higher risk groups :(

On a higher Much higher note I just wanted to share some great new with you all.

IT’S A BOY.

Yay little man is over the moon he really wanted a little brother. Alice was a little disappointed but she is great with it now. Me and hub are really pleased , baby was healthy and kicking like mad lol. The scan went really well.

Was I worried that because it’s a boy my child may have Aspergers? I’m asked this a lot! Yes it crossed my mind, but what will be will be. I’m just happy to be having another child who I will love as much as my other two.

Just an overdue update

Ok I really am sorry for the lack of  post! It’s all been a little crazy at home.

So here is a update on how things have been with Little man and the rest of the family.

Little man is doing pretty well. School has been good and his due to break up soon for the summer holidays (I have no clue as yet on how I plan on entertaining the children for six whole weeks ) There is a meeting planed with the school Senco before he breaks up. The meeting is aimed at discussing which support is planed for little man for when he returns back to school in September. We all know this maybe hard for him as it will bring around a lot of change ( new teachers and timetables ) It seems so unfair as to me little man has only just began to settle.  But hay that’s how it is and we will have to do our best to make it as easy as possible for him.

We are also all preparing for a lot of change as a family, because as most of you already know I am due my 3rd child on the Ist Dec. I’m now almost 20 weeks and finding pregnancy great but hard at times. Thing is I am still almost always tiered as my HB levels (Iron ) are really low :( I am taking medication for it now and just waiting on it kicking in. Both the children love that mummy is going to have another baby :) Little man was the first one to fell baby move  with Alice having her turn soon after. ( daddy is still waiting Lol ) It was amazing and little man’s face was a picture. I had just finished telling him that soon he would be able to fell baby move by placing a hand on my tummy. So that’s what he did and to my delight baby happy responded awww. I have my scan tomorrow and hope to find out the baby’s gender :) Fingers crossed. Little man wants a brother and Alice wants a sister lol ( Always the way ) When I first discovered I was going to be  mummy again it did cross my mind maybe the baby may have ASD or Aspergers. I wont lie! yes I was a little worried but life will be what life will be and I will love my baby whatever happens :)

Also this month well yesterday in fact, we took little man and his sister to the cinema to watch ice age 3. Things were going OK. Yes I was a touch worried little man would upset everyone but it was all a little different. Yes he left his seat once or twice and said a few things a little on the loud side but on the whole he wasn’t to bad. In fact it was other peoples noise that upset him. God I should of guessed as when we speak when he is watching a film at home he becomes very upset and this is what happened. He was getting stressed as a couple of teenage girls behind us were giggling and at times chatting :( DVD is a much better option next time I think.

Well thats about it for now! Hope all you guys are great and will post again soon.

IT’S THE FINAL COUNTDOWN.

It’s the final countdown.

I’m guessing most people all over the world knows this song by queen (Freddie mercury )

However I bet you don’t know it as well as me! Reason being is I hear this song at least 30 times per day. No I’m not a huge queen fan. Don’t get me wrong there songs are pretty cool but not really my cup of tea. I really don’t have a choice but to listen to it most of the day. Reason being is Little man loves it! When I say he loves it I mean he adores it. If it’s not playing from his laptop 24/7 You can bet your life on it that little man will be singing it from the top of his lungs. He knows every single last word, Just like a pro. Only down side is sadly he takes after both his mother and father who both don’t have the voice of angels :(

So I took action. I fault that if he liked the final countdown so much then maybe he would enjoy some of queen’s other classic tunes (Hay anything was worth a try ) At least then we could listen to a number of different songs. So I went onto utube and had a look. Did It work. Well kinda! Yes he enjoyed many of the other songs. The classic Bohemian Rhapsody, Living on my own and I want to break free were soon become close favorites. I would hear him in the tube singing aloud but still nothing topped his number one spot. Yes the final countdown is here to stay.

Less tired and ready to go.

So here I am again, hoping that now I can carry on and enjoy my blog. 

God I just haven’t been able to put as much work into it as before. I’m hoping that now my energy levels are a little better things will improve. I’m now 14 weeks pregnant and felling a little more me ( LESS TIRED ) I really don’t remember felling soooo run down when pregnant with little man or Alice. Then again I guess stuff was easier back now, For a start I had no children or just the one young child to contend with. The children haven’t been bad ( Only sometimes ) it’s just hard sometimes. We are still trying to deal with a lot of little mans issue’s like school and some of his sensory problems, Which I must add seem to be improving. As you may of read on my last post little man has just got over the chicken pox and returned to school on Monday after the half term. We were really lucky, so much so that he only got eight spots :) He was finding the whole thing pretty horrid and I think any more spots really would of caused him a great upset. When your child is on the spectrum and has sensory problems, chicken pox can be a grate challenge. However there is some great news! Alice never got the pox :) Maybe like her big brother she has already had them but only suffered a minor outbreak leading to her only getting a few spots, or maybe she was lucky. Who knows? 

The house still needs a lot off work doing to it before the baby comes and that really helps to stress me out. The housing fixed the ceilings but it’s still a war zone. Not good for a pregnant mum and two children one in which has Aspergers. Even though I went to the local paper I was still very tired as was in the very early stages of pregnancy. Now I’m felling much better the housing wont be left alone! I need repairs done and I need them done already so beware housing!

Alice went on a school trip today and little man will be having his tomorrow. I’m hoping all goes well and nothing upsets him along the way. When picking him up from school today I heard he wasn’t on his best behaviour. He had been rude to teaching stuff and walked out the class. I felt sorry for him in a way as he had a teacher he didn’t know, She wanted him to do RE but little man wanted to learn handwriting. This is what upset him. To make stuff even worse he came home in a stinking mood :( and is still pretty much the same way a few hours on. It’s very warm and the heat never seems to help. Lets hope after the weather cools down tomorrow so does little man.


BUSY MUMMY

God it fells so long since I last posted anything onto the blog. However I do have good reason’s for this. Life has just been so busy right now. I have had so much on good and bad. Some of you may remember my post what goes bump in the night. Yes the one telling the nightmare of the ceiling craving in on us in the night. I had the idea of taking my story to the local paper, WHY ? Well I was angry, being a mum of two children one of which has Aspergers I found the housing to be very wrong in leaving us in a house of danger. We were told not to enter our living room which I must add leads to our kitchen. We were told the reason being was because it still wasn’t safe. What got me was the fact that they did not plan on repairing the mess to 13th May which was a long two weeks after the big bump in the night. So yes I did contact the paper and yes the story did go to press on Friday 8th May. I was pleased that this was my choice as since then work to our home seems to have picked up a bit :) Bad news is there isn’t much left of our stunning newly decorated living room. The new TV is broken, the fire and floor are scratched and the sofas are ripped. The wallpaper and wall’s well let’s not even go there! So my home is still a building site and the children and myself are having a hard time coping with it! More news and again not great is little man has the chicken pox, :( and has been off school since Tuesday :( Children always find chicken pox a hard one but being a child on the Autism spectrum with sensory issues has added to the stress and discomfort of little man’s bloat of the pox. Yes there driving him wild. One good thing is he seems OK in the fact he has no longer got a fever :) So let’s hope it stays that way. lastly some good news :) :) I’m going to be a mummy again :) Yes I’m pregnant ( I have been dieing to write that ) I’m three months and now want to share my oh so happy news with the world. This has come as such a joy as the end of last year I sadly had a missed Miscarriage which yes broke my heart. With each day I’m becoming more relaxed and excited. The kids love the news. Alice wanting a sister and off course little man wishing for a brother. Am I worried this baby may have the same condition as little man ? No way! This baby will be loved no matter what :)

LITTLE MAN VISIT’S THE DENTIST.

Yes it had been some time since little man had sat in that dentist chair. Please don’t think bad of me but after our last visit we both found it hard to go back! Then there was the fact that I was always likely to pass out at the sight of needles. But we had to do it! so off we went. Why I worried I will never know, Little man seemed to enjoy this trip ( I’m guessing that’s because all she did was take a look. ) The dentist seemed really nice, she really seemed to understand little man and his needs. We where only in the room a few seconds before she asked does your son have spacial needs ? Yer that’s all routine! That’s what I fault. But as I opened my mouth to speak I could see in her eyes she know what was coming. When I said he had Aspergers, she nodded saying yes his speech is very formal that’s what I would off guessed. WOW HAS IT GOT TO THE POINT THAT YOU CAN SEE IT MORE NOW ? YES I THINK SO! I NOTICE HIS DIFFERENCES MORE EACH DAY. I remember trying to explain to doctors, teachers, family and friends my concerns for my son, In return I got some funny stares as if to say WHAT?????? I was speaking with my mum about this just the other day, and yes she agrees. Well the dentist was great, she was on a great level with little man, she was building trust with him! I was just about to discover why! Yes he would need one silver filling, not today but tomorrow at 8.30am :( Am I worried hell yer. She explained that often children with a condition like aspergers, find things easier ( FILLINGS ) when the parent, carer is not present to witness it happening. So I’m going to see if I get away with waiting outside. I hope so! Seeing a needle and little man in pain is to much to bear. ( I’M A COWARD I KNOW ) I haven’t told little man about what having a filling means, I’m worried the noise and felling may bring on a sensory out burst. If  I’m honest with him it will be a battle to get him there ( FOR SURE ) So my fingers are crossed that all goes well, I will be sure to update you all when we return.

WHAT WENT BUMP IN THE NIGHT

img_0135img_01311As we all slept so peacefully in our beds we were woken by a loud (very loud) bang. OMG our whole living room ceiling was now a whole cloud of smoke, that filled the house. Yes the ceiling had fallen down. The dust made it hard to see or Breath The children were screaming. Then it happened! the cloud of dust had set of the smoke alarms. SENSORY OVERLOAD.  Little man was screaming, he hates the noise of the smoke alarms. This plus all the other goings on was well to much for him. Alice my little girl was also taking the whole thing badly. She was just to scared to remain in the house and was picked up at 4am by my mum.                                                                Well my newly decorated living room was now a danger zone. Lucky nobody was hurt. The housing told us it was unsafe to enter the living room. GREAT! We also had a gas leak last Tuesday and have been living with no gas. I have been informed that they are not fixing  the gas to Tuesday next week, As for the ceiling they want me to wait to the 13Th of may! So I’m unable to enter my kitchen that leads off my living room and I’m living with no gas. Did I ask to move out to the work is completed ? Of course I did! I was told NO. So despite the health dangers that face me and the children ( one of which has Aspergers ) I am still refused help!                                                                                                                                                                                                                                                                                              Well I’m not the kind of person to sit back and cry. I phoned the papers and they have agreed to take some pictures of our house :) Take a look and let me know what you think!

THE JOHN AND ROBIN KIRTON INTERVIEW

So the time has come, It’s time for the big Interview. This Month I have John Kirton joining me. He and his wife Robin are the only parents in America who have six children on the autism spectrum. WOW. This Interview is a great insight into the lives of a family with six amazing children. Welcome to the Big Interview. ENJOY :)

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Hi John it’s really great to have this chance to chat with you today.

How are you?


I am doing FANTASTIC, thanks for asking.

 

And how is your wife and the children?

 

We have had a really good winter this year.  The last few years one of the children would bring home a cold or the flu from school, then another would get it. The next couple of weeks it would go through the entire family.  And that happened 3-5 times during each winter season.  It wasn’t much fun.  This year?  Just once and it affected only a few of the children.  We feel that taking supplements and a special diet have helped quite a bit.

 

So John for those that do not know! Why is it that you understand so much about Autism spectrum?

Well I’m no expert on Autism itself, but I am learning all the time.  

Is it true that all six of your children are on the autism spectrum ?

 Yes, it is true.

 

How is life for you and your wife?

 Well, six children were as much as we were counting on. However, when Autism came into the picture it added to the time and emotional requirements.

My son has ASD ( Aspergers ) He can be a little bit of a handful at times! But having Six children on the spectrum wow I’m guessing family life can be a little hectic.

 Very true, people do not know the half of it unless they have an Autistic child.  I read somewhere that having an Autistic child was the equivalent of having 3-4 “normal” children. If that’s true, we have 18-24 children!  No wonder we are a little crazy at the end of the day.

 

So Where along on the spectrum are your children?

 

Bobby (15), Emma (11) and Nephi (10) are all Aspergers.  Sarah (7) and Ammon (5) are classic or the most severely Autistic.  And Mary (4) is PDD-NOS.  We have had a number of people ask about the origin of the children’s names.  Some are because of my English heritage and some are from the Book of Mormon.  My Great-Grandfather, John Kirton, joined the Mormon Church in the 1890’s and immigrated from Wallsend, England to Coalville, Utah.

 

How does autism affect each one of your children?

 

Whoa! I can write a book on that question alone.  Bobby is very quiet, does very well in school (mostly A’s), has no real friends and has few social skills.  Emma varies from being quiet to very emotional, she does OK in school, she will have emotional ‘meltdowns’ but has done better with the diet, and she is a fantastic artist, writer and likes to design clothes for her Barbie dolls. Nephi varies from being quiet to very emotional as well, and is a more outgoing male version of Emma. Instead of Barbie dolls, he likes Bakugan and Star Wars/Clone wars.  Sarah is very happy and bounces and moves around a lot. One of our many nicknames for her is ‘Tigger’ from Winnie the Pooh. Her favorite ‘stim’ right now is tearing and ripping any kind of paper.  She’ll sneak away with a roll of paper towels or dinner napkins and we’ll find her bedroom ankle deep with the shredded remains. She has just a few words that we must coach her to say. And she is not potty-trained.  Ammon is much like Sarah in many respects.  His favorite ‘stims’ are flapping his hands, bobbing his head and watching doors that he can open and close (see him at the Zoo on my YouTube channel, http://www.youtube.com/watch?v=DbdkstTZhOE) He can climb anywhere and up and over most everything.  He has NO fear. He too is not potty-trained.  Mary is our child that is the most ‘normal’ of the bunch.  We thought the Doctor would say she was not Autistic, but she was diagnosed as PDD-NOS.  She talks well, has friends at school and is just a bit delayed right now.  However, at 4 years, 4 months she too is not potty-trained.  But she is at least working on it.  Looks like I did write a book.

 

Are any of the children home schooled? 

 No.  Robin says, “What, do you want me to totally lose my mind? LOL.

 

I love your site Autism Bites , I’m a big fan. Where do you find the time to add to this fantastic site?

I do it in spurts and usually when the children are in bed.

 Do you get much time for anything other then parenting?.  

To get anything else done, Robin and I take turns keeping an eye on things. Much of the time we are both on the job and rely on each other a lot.  During the times that we take an eye off of things… well that’s when we find surprises the children have created for us. Without one another we would never make it.

 

I am in the UK but I have still seen some of the shows you and your family  have appeared on. Good morning America and Larry king being a few of them. How do you find all the media attention? 

 Well, I put the ‘media ball’ into motion.  We went through a lot of grieving, emotional lows and soul searching as we found out about our new lives with Autism.  By having our story told we hope that we can help other parents with their trials. We blog, belong to various Autism groups, do TV, radio and Internet (wink!) interviews.  We get many emails though our website and so far have answered every one.  I’ve just been accepted as an Internet reporter for Autism on examiner.com and will be posting there a number of times each week.  People that ask or need more answers or help, we will contact by phone.  We have a number of Autistic adults that we talk to quite often.  We hope that our experiences can help others with their journey on the road of Autism.

 

And tell us a little about autism 6 on the Discovery Health Channel.

 

I got a call on my cell phone one day from the president, Bill Hayes, of the production company, Figure8 Films.  He told me that Discovery Health had been looking for a family that had multiple children with Autism to do a story about.  They discovered us from a local newspaper story in Salt Lake City, Utah.  They especially liked the idea that we have the entire Autism spectrum in one family.  Robin and I thought this would be a perfect opportunity to increase Autism awareness and acceptance.  We were of course concerned about how we would be portrayed. Bill said we would be able to see the show first before it was broadcast to insure we were happy with the final product.  We are.  The film crew started shooting every month for 2-4 days, from December 2007 to May 2008.  The crew was four people, the Producer, cameraman, soundman and crew assistant. Some people have expressed concern about our children being exploited or being put through undue stress.  We are a very loving family and our children just do not have much of the change of routine problems we hear that other families do.  Ammon would climb on the camera tripod and want to be picked up and hugged by all of the crew.  He was very persistent and got in the way of filming much of the time.  Sarah was going through a ‘sniffing everyone’ stage and did.  All the time.  When the crew followed Nephi at school, he introduced them to everyone they walked past, “This is MY film crew!”  The crew got a big kick out of that. The story is a piece on each of the children, with mom and dad comments throughout.  We have teachers from the schools and one of the doctors from the University of Utah’s Autism Research Project talk about their Autism.

 

As you know like yourself I’m a member of model me kids ( A great social network for autism ) Do you find it important to meet other parents of children with ASD and raise awareness for the condition? 

 

I really do.  It’s great to be able to find someplace that you like and are accepted.  Model Me Kids is the best I’ve found and I’ve been all over the Internet. (Thanks MT!)  There are too many places where parents fight, call names and are just plain nasty.  No one needs that, especially parents dealing with Autism already.  I just wish I had more time to be available to give comments or suggestions, but sometimes just getting up in the morning is a great day.

 

As it’s Autism awareness month would you be so kind to give us one reason to love and embrace autism. I know there are plenty but I only have the one blog:)

 

Love and embrace your Autistic child, advocate for them and get you and them out into the world so the rest of the world will know and love them too.  I’m not saying it will be easy, but I am saying it will be worth it.

 

Thanks so much for taking the time to speak with me John. I know you’re an extremely busy man and I thank you very much. Look forward to learning more and more about yourself and wonderful family. 

 

Thanks Claire.  Please ask your readers to be my friend on Model Me Kids (http://modelmekids.ning.com/profile/JohnKirton) and to visit and comment on our blog (http://autismbitestheblog.blogspot.com/).