All about us

I’m a mother to three gorgeous children, one (my eldest) has a diagnosis of Aspergers

Little man (aka, A boy with Asperger’s)Me, ‘Mum’ (Claire Louise)As well, as documenting my journey through life with a child on the spectrum, while sharing content on autism, mental health, special educational needs and more, I will be writing about my life as a parent in general, posting extracts of my sometimes crazy and very random days as a mum of three. These articles could be based on anything from potty training to fun, or even disastrous days out. 

Here you can read our  story based on a family living with autism. You will discover the real me, the passion that I have within me, to raise awareness for autism spectrum conditions. You will quickly discover how it was my eldest child who is known as the ‘Little Man’ inspired me to write this blog, to reach out to others.

When I first heard them words, “Your son has a Aspergers syndrome, a form of autism”, I felt like my world had crumbled on top of me, I felt so alone.

I read everything I could read, I tried desperately to learn all there was to know! Once maybe twice, I convinced myself they had got it wrong! 

Then It hit me! He was no different from the child he was a month ago (pre diagnosis), he was the same little boy, who still loved trains and buses! Only now we had a name for his difficuilties, we had reasons for challenges we had faced and would likely face again. Would I rather live not knowing? What good would this do? None at all. 

You see, It was from this day on that I decided that I would no longer cry the tears of dispear, I would no longer ask god why! I was blessed to have this amazing quirky little guy in my life. Yes I was proud to be his mummy! 

Of course it wasn’t all flowers and candy from here. We had battles brewing, ones I never dreamt I would undertake, but embracing my child’s aspergers and focusing on his many strengths helped me to see autism in a whole new light!

Our journey so far has been an incredible one. Since starting this blog things have changed in so many ways! Although things have been far from easy… I really wouldn’t wish for things to be any other way! Yes, …. That does include little man’s ‘autism’ 

My son is a bright child who has a fantastic mind. Although he can be challenging the good far outweighs the bad. My son has Asperger which is just one part of who he is. Aspergers don’t define him, it just adds to his awesomeness 

Then there are the siblings… a little sister of eight (who is an amazingly beautful child with a heart so big its beat sounds like a drum!) Baby brother Harley, Aka, ‘Little H’ is just a tad over eighteen months… Little man dots on him, he truly adores him! Together they make up my beautiful three! I’m so proud of them, I could burst, at times you may find the post have no bearing to autism at all! Well, that’s because it doesn’t rule our life, and writing as a parent, I write about all three of my children (yes, the two without autism are just as important to me). 

Now, I see it as my duty to my son and those like him, to make others look up and take note. Autism and Aspergers don’t have to be a bad thing. There are many wonderful reasons to embrace ASD. Yes, there will always be battles need fighting and a whole lot of work need doing but you will do them, adjust and learn… As together we are parents who love our children…  That’s right… I’m proud to shout out loud so all can hear… I’m a mother to a boy with Aspergers and I don’t care!!   Below Alice-saraHarley, (aka, ‘Little H’)

34 Responses to “All about us”

  1. Ann Harkin October 1, 2014 at 10:01 am #

    Your words have come to me at a time in my life when I needed clarity My son is eight and is so anxious at school I could really use your advice he has Aspergers our mainstream experiences are so similar I walked the same path with my 17 year old daughter still hasn’t got any better.

  2. Suzanne March 29, 2013 at 7:17 pm #

    Just the words I need to hear. Thank you x

  3. Tom June 24, 2012 at 11:51 am #

    Insparational.

  4. Nicola Tyrrell April 9, 2012 at 7:57 pm #

    Hi my son has just been diagnosed on the spectrum, he is three and they are saying Aspergers or High Functioning, he needs more assesment, i feel like my world has fallen apart and could do with some help. Thank you for your blog, if you have any advise it would be gratefully received. Regards Nicola

  5. Sara- Jane February 11, 2012 at 10:09 pm #

    Hello, and thank you for writing such a beautiful and inspiring blog.
    I am blessed with having a beautiful 16 year old son who has high functioning autism/aspergers and dyspraxia.
    Over the years I have never ceased to be amazed by some of the things he has done and I am sure will go on to do in the future,he fills my heart to bursting.
    I won’t lie and say that it has always been easy, because it hasn’t,and trying to ‘ balance’ the every day normality of life around the sensitivity of ASD can be very challenging at times ,but that said I would not change it for the world.
    The other day my son was singing along word perfect to the whole of the sound track of Scrooge: A Christmas Carol,and I just thought Wow,Son you can do this and yet you struggle with making a jam sandwich,it really blows my mind at times.

    I have other friends who also have children with Aspergers who I am sure will enjoy reading and following your blog.
    I am off to tell them about it.
    thank you .

    take care,
    Sara- Jane x

  6. mark kent December 11, 2011 at 12:38 pm #

    i saw your story in THE WEEKLY NEWS. very very well done. i am a adult with a.s. married 13 years,we have 3 children one has a.s.my wife is not disabled in any way.i can not work
    but do take part in a lot lot research from universities.i have met in person UTTA FRITH we
    spoke for 45 mins,i write letters like WHAT IS IT LIKE BEING A NORM..EE. FATHER
    AND LIVING WITH A.S. SYNDROME if interested in seeing ask me i allso have results
    from research i take part in.if interested ask me I ALL SO HAVE M.E..if you would like to ask me anything please do
    mark kent

  7. Lors October 5, 2011 at 9:11 am #

    Hey there.

    Just wanted to leave you a little love my dear. My name is Lors I am 37 and have one son aged 14 who has Autism. We live together just the two of us,

    My son was diagnosed aged 17 months and we have been on a long road together. helping my son to deal with the things in life that many others never have to. Sleep problems. Faddy eating. Hyperacusis.speech and learning difficulties.etc.

    I just wanted to come on here and say girl MUCH LOVE to you. And that if you or anyone else would just like an hear hand or shoulder I am here …anytime.

    Love + Blessings

    Lors ( Scotland)

  8. Dalia Colon July 13, 2011 at 5:52 pm #

    I’m a reporter for HealthyState.org, a public media project in Florida. We’ve just produced a video about what it’s like being a young adult with Asperger’s syndrome. You will enjoy the insights of the four brave people featured:

    http://healthystate.org/archives/13793

  9. clairelouise82 May 20, 2011 at 4:20 am #

    goodness yes, I was pulling my hair out pre-diagnosis. Well, some days I still do lol. It just kinda falls together and that’s when you know everything will be Ok. Thanks 4 popping over, lovely to meet u too.xx

  10. solodialogue May 20, 2011 at 2:40 am #

    So nice to meet you Claire. Isn’t it funny that once we have the diagnosis, we can make sense of so many things in our child’s life? I know what you mean about becoming more tolerant. I’ve only had my son’s diagnosis for a year now but I understand him so much better now and can completely tolerate his meltdowns that would stress me to the max before! Will be checking in as I can!! 🙂

  11. clairelouise82 May 1, 2011 at 5:41 am #

    Thanks so much Dannielle. I visited your blog and love your writing. I’ll be sure to blog roll you. Claire.xx

  12. Dannielle McCarthy April 24, 2011 at 8:14 am #

    Hi Claire

    I have been enjoying reading through your blog and have added a link on my blog http://fragilehouse.wordpress.com
    I would love to share our stories.
    Kind Regards
    Dannielle xoxoxox

  13. superlittlemen January 21, 2011 at 1:43 pm #

    HI, just found your blog, and think it is amazingly useful. I started a blog over a year ago just to vent some of my frustrations and it is a very generalised blog, but I have been debating recently about turning it more into a resource kind of blog simply so others might avoid some of the pitfalls we have experienced or gain some help from it. However, this is on hold at the minute as I am also trying to establish myself as a freelancer in my field, after losing my job! Looking forwards to having more time to look round your blog and links x

  14. Christopher Woodward November 10, 2010 at 12:34 am #

    Hi, I’m a 28 year old with AS. Just found your blog and very impressed though I haven’t been able to read much yet. My blog is to do with the issue of social situations from the perspective of one with AS. It may give a clue as to the issues your child may face in the future, so you can prepare if at all possible. I hope you like it.

  15. Woman on the Edge October 3, 2010 at 10:36 am #

    Hi Claire

    My son 16 has Aspergers, ocd and epilepsy. I love your blog. Reading your stories, struggles, frustrations and fears is a mirror image of what we face as a family daily.
    I have just got my own blog up and running after about 10 years of wanting my stories down. I am finding theraputic but also very dark at times. I hope you get a chance to take a look at it.

    My link is : livingwithasparagus.wordpress.com

    Take care and thank you for sharing your life with us.

  16. Lynda September 27, 2010 at 12:46 pm #

    Having come across you page on Facebook I followed you to this wonderful, heart breaking, yet joyous blog. It takes me back to all those years ago I walked in similiar shoes to yours, my son is now 15 and surviving school. I like you fought a battle each and every month with my local education board and won a few along the way, not many, but it was better than nothing..and shamed a few folks who are very fond of their red tape along the way😀
    If you ever need a listening ear from someone who is further down the line than where you are now..its always here for you…X from me and x from him and X from my partner who has ASD also..

  17. Anna August 11, 2010 at 4:30 pm #

    Invitation to join top TopHealthSites.Net

    Hi,
    I invite you to join our top with alternative medicine, natural health, diet, nutrition, medicine
    and related sites at: http://www.tophealthsites.net
    Our top have a friendly interface and it offers free web promotion for your site.
    You can find:
    -title and description;
    – screenshot of your website
    -statistics about the number of your visitors(unique/pageviews);
    -comments about your site;
    -the ranking is by sites unique visitors in a week;
    -first 5 sites are scrolling in the right side of the site on all site pages;
    -7 sites are selected random and showed on the header slideshow of the site;
    -statistics with the visitors you got from our top;
    After you join our top take the voting code and put in your site
    to be accepted to our site.

    We’ll be expecting you at http://www.tophealthsites.net to subscribe your
    site. If you have any question don’t hesitate to contact us.

    Thank you for your time.

    admin@tophealthsites.net

  18. Melinda January 13, 2010 at 8:25 pm #

    Hi, Claire! I’m contacting you on behalf of Autisable.com, a blogging site dedicated to raising awareness and encouraging discussion about the challenges of autism, aspergers and ASD. We are interested in syndicating your blog on Autisable.com. Please contact joel@autisable.com for more information if you are interested in adding your blog to Autisable and reaching even more people with your story. Thank you!

  19. Jane Agius November 9, 2009 at 9:02 am #

    Hi, I have just been told my 3 year old son most likely has Aspergers Syndrome. I am devastated and terrified. I need to speak to people who understand and I came across this site. Thanks for having so many links in the one place. I feel like I am grieving the loss of a child in a way and that I am seeing this new child for the first time in a new way and understanding more. I don’t care how hard this is for me but I am suffering severe depression and anxiety about what the future holds for him. I would love to meet people in the same situation for advice and support,
    Love and thanks
    Jane

  20. Lee McAlilly September 18, 2009 at 7:49 pm #

    Hello!

    I recently found your blog on your son and Asperger’s Syndrome, and I wanted to reach out. I’m the blog coordinator for EverydayHealth.com. We’re currently recruiting people to write a weekly blog post about their various health conditions and I thought you might be interested.


    
Everyday Health has over 25 million monthly unique visitors to their website, and there is a lot of potential exposure and traffic to come from blogging with the market leader in online health information. It’s also an excellent platform to promote education and awareness of issues associated with Asperger’s, and any cutting edge research or advice.

    
Let me know if this is something that you’re interested in and might like to talk more about.
 I enjoyed reading some of your old posts, and I think you have a unique perspective that Everyday Health readers would love for you to share.

    
Thanks so much!

    

Lee McAlilly

    Blog Coordinator, EverydayHealth.com
    lmcalilly (at) waterfrontmedia (dot) com

  21. Pierre Cardin August 30, 2009 at 4:24 pm #

    It would be rude of me not to say hello .. .. .. so "hello"

    One of my kids is a diagnosed Aspie (he's also 8 years old) and reading some of the posts here is like holding a mirror up to our household.;. All the best!!

  22. captainff June 11, 2009 at 12:37 am #

    It would be rude of me not to say hello .. .. .. so “hello”

    One of my kids is a diagnosed Aspie (he’s also 8 years old) and reading some of the posts here is like holding a mirror up to our household.

  23. ansella April 24, 2009 at 5:14 pm #

    wow this is a very informative place!

    keep the spirit up dear (^__^)

  24. knowledgetoday March 30, 2009 at 9:36 am #

    I love your site. Keep it up !

  25. Gilly March 27, 2009 at 1:45 pm #

    Please get in touch with me. I would like to talk to you.

  26. Mara Kaplan March 9, 2009 at 2:52 am #

    Hello—
    My name is Mara Kaplan and I have a son with multiple disabilities. I am also a consultant to people who are designing playground so that playgrounds go way beyond ADA and our kids can actually use them.
    Friday I have a design meeting with a major manufacturer of Playground Equipment. This is a very enlightened company that is committed to ensuring that all children have successful experiences at their playgrounds. To that end, they are spending large amounts of time and money looking at new designs that children with Autism and/or SPD will enjoy.

    I would like to go into this meeting with hundreds of ideas, suggestions, and thoughts from parents, children and professionals in the field. Please help me! You need to act quickly because the meeting is next week.

    Here are multiple ways that you can get your thoughts to me:
    • Leave a comment at my blog: http://letkidsplay.blogspot.com
    • If you are a parent, complete a short survey at http://www.surveymonkey.com/s.aspx?sm=WQHnBgp422LuqehxsASrsw_3d_3d
    • Email me at mara@letkidsplay.com
    Please tell me what works and doesn’t work for your child at the playground. If you could create absolutely anything for a playground what would it do and what would it look like? If you could design an entire new playground, what would it look like? Draw a picture–scan it and email to me or if you want to fax me, email me for my fax number.

    This is a very significant way to make a difference for our children. Please take a few moments and share your ideas and then forward this message to as many people you know that would be interested.

    If you would like to visit my website and learn more about me and my philosophies, come to http://www.letkidsplay.com
    Thank you so much!

    Mara

  27. recessionwoman March 3, 2009 at 11:58 am #

    Delighted to check out your terrific blog. I will put it on my blogroll. I remember the supermarket days. Rian is 11 now and not interested in going.

  28. hbacmama February 24, 2009 at 10:44 pm #

    Thank you for the comment on my rant and wail the other day. Today has surpassed the last one. Too miserable and teary to even soak in much of what you have written. I’ll just stare and sob for a bit if that is okay.

  29. Val February 2, 2009 at 12:23 am #

    Hello Claire, Wow what you have done here is really a blessing to other families.
    Thank you so much for placing my website as a link on your page.I am always here with an extra pair of ears and strong shoulders for any parents that wish to chat.
    You have taught me something new about other children that have many issues I will keep this close too me and if you have any ideas on items that I can make too help, please let me know. That is how our business grows on a daily basis.Everyday something new.Half are on even on the site yet.
    May, you always find a way to smile and forever hold your children close.Keep doing this and never give up.
    Take care, Claire!!!
    Lots of Love and Wishes
    Val

  30. Drax January 18, 2009 at 8:30 am #

    Thanks for your comment on my blog!
    I’ve updated that page since your visit and I still have more to add to it.

    I really enjoy your blog as it gives me insight of what it’s like from the other side. My general diagnosis from various specialists earlier on in my life was that I simply had ADD, so my parents just accepted that as the answer. I knew there was much more to it but could never explain exactly what was going on with me. It has only been a year since my official diagnosis of Asperger’s (I’m 22) so I’ve spent a good part of my life learning to understand myself and I gained valuable insight into my condition.

    So if you ever have any questions about the condition, or you are looking for an insight into certain behaviours or traits, then feel free to send me an email and I’ll be glad to speak from my own experiences.

  31. Apar January 17, 2009 at 5:54 pm #

    Came here from the link you left at my blog. I am blog rolling you! I don’t even know how I would be if my kid had any form of autism! Best wishes to you and your kids!

  32. stevegrand January 16, 2009 at 5:38 pm #

    Hi ClaireLouise,

    You left a comment on my son’s blog the other day (csgrand.wordpress.com) when he was musing on the possible responses of autistic children to humanoid robots, so I thought you might be interested in Kerstin Dautenhahn’s, work on this topic. Check out

    http://kaspar.feis.herts.ac.uk/ and http://homepages.feis.herts.ac.uk/~comqkd/

    Great blog, btw! Good luck with your son. Don’t forget that it’s people who are “different” (and especially those on the autistic side of humanity) who are the ones who change the world and make history!

    – Steve

  33. Nina/Poetry Lover January 15, 2009 at 12:37 pm #

    Hi!

    I really like your blog! Maybe we could get in touch and share our thoughts and feelings upon Aspergers…? I’ve got Asperger’s and my 10 year old son as well.

    I would like to invite you to Safe Haven Forum… I’m the host of the forum.

    Take care!

    /Nina

Trackbacks/Pingbacks

  1. Hygiene Tips for Kids with Sensory Sensitivities | Different Dream - July 9, 2013

    […] Claire Louise, mom to a son with who is sensory sensitive, knows this. So in a recent post at her blog, A Boy with Asperger’s Syndrome, she shares strategies she uses to help her son practice good hygiene. She offers these tips in these areas: […]

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

%d bloggers like this: