Tag Archives: independence

The Challenges That Come With Independence

12 Oct

So, its been a while since I blogged, all reasons beyond my control.
Well, Little man is officially a teenager now. On the 1st October he turned 13.
As a result his special school felt that he was ready to make a huge step forward into the world of independence.
Instead of of being collected by the school bus every morning he would walk to the train station through the park, take the 20 minute train ride followed by short 5 minute walk to school. Was I hesitant? Of course I was, what mother wouldn’t be? You see, little man had an intense ‘Special’ interest in trains that lasted many years. He was therefore very excited about this big new step he would be taking! Me I was worried sick that firstly we may find him over obsessing about transport once more. It may seem harmless to most but when a child with Aspergers is obsessive nothing else in the world matters.

This however was not my only concern! Little man is a child that struggles to sleep of a night time and if he had experienced one of he’s ‘All Nighters’ then how could I possibly let him ride the train to school? He could fall asleep and spend hours going back and forth to Hayes and Central London… What if he woke up in central london? At least if he was getting collected our morning battle would come to an end once I’d physically removed him from his bed and got him on the transport. But he hated everything about the new transport system, the one he had been placed on this September with little warning of any changes! Little man was used to taking a taxi with two other children and an escort which is provided for by the councils SEN team. This September no more than one day before the return to school he discovers that his escort has gone and will be replaced by another. He also discovers that there is no longer a taxi but a mini bus with a new driver and a heap more kids too. The battles to get him onto the bus were anything but easy! The last week before his independence training started someone from the SEN travel coordination team called me to say that little man was on his last warning! Apparently the new escort couldn’t handle the children, especially little man. I hear a fight broke out between my son and another boy. As a result the escort was pushed (not by little man but another child who as a result had been taken of the bus for good).

So, with this and little man’s pleas I decided that the transport plan drawn up by the school would probably be best at this current time.

To cut a long story short, since little mans been taking the train his had more days off than I care to remember! The first few days were fine. He loved the feeling of independence traveling to school gave him (he still does) however, his sleep pattern has once more gone up the wall and getting him out the door has been a fight that I’m losing. Even when he has left for school his been leaving late. With this and the constant warnings, Little man is on his very last chance and this time its with me!

I’ve made the decision to reintroduce the melatonin despite how its effects make him more drowsy during the school day. What else can I do? It gets to 4 am and I’m seriously at my wits end! Just the other night (well, I say ‘night’ but really mean early morning) I found myself screaming at him… “Why can’t you just go to sleep?” Only for him to look and me and reply “I want to but I can’t… I just cant.” its frustrating… Its frustrating for him, for me… And for the school, especially when they can see his a bright young boy with heaps of potential.

I find myself becoming so angry at life, for we go through these battles, get over them only for them to resurface months later. Its one hell of a rollercoaster, one I have no choice in riding.

Little man doesn’t tend to talk about thinks that may have upset or confused him during the school day, which sadly can lead to all sorts of difficulties, leaving me playing the private eye game. Switching of isn’t easy for most, especially when we have worries and troubles laying heavily on our minds. This for little man, a boy who has difficulties expressing them worries, a boy who already lacks precious sleeping hours, is a struggle on a level most would fail to reach. Its stuff as such as this that makes those morning and night battles that little more difficult than it currently is.

I do sometimes wonder how many other parents there are out there… Going through the same nightly and morning battles that we do. I know there are plenty but at times its a real lonely place.

Changing

23 Apr

A teenage terror!

Is terror a little harsh a word? Um, No, Probably not!

I myself went from a sweet little girl with pigtails to some unrecognisable rebellious monster with too many hormones! Ok, I gave my mum headache for a couple of years but then I got it out my system and grew up.

Nonetheless, I do remember the total chaos I caused in the house. My terrible attitude and stinking mood swings. Now as a mother I’m totally crapping myself at whats to come.

Little man is 12. His almost a teenager and already seems to be experiencing the changes puberty brings.

For many years family and friends have commented that when Little man becomes challenging he displays the many traits of a teenage boy. For this reason and others i’m left asking myself the question… “is the mix of Asperger’s traits and those of puberty going to create an explosive combination?”

Meltdowns are already highly charged. A trigger, depending on what it is, can spark some of the most explosive meltdowns that go on for hours on end. Will these triggers become more heightened or will we be faced with new ones all together?

I’ve already started to notice changes in little man’s behaviour. Having worked extremely hard to master the signs, these are now becoming harder to spot. Its that feeling that your walking on eggshells that or there is some ticking time bomb in the room.

I am extremely grateful to little man’s school. If he never had this placement he may have had to struggle through secondary school. For some children with Aspergers this can be a trying experience! I guess what I’m trying to say is at least he is in a supportive school who can help him through those sometimes confusing teenage years. This is one less thing to worry about.

But its not just meltdowns and mood swings that concern me. As a mother of a teenage boy I worry about all the normal stuff but then with Aspergers thrown into the mix I guess I worry a tad more. For one, there’s the issue of girls… Just because his on the autism spectrum doesn’t mean he won’t experience all those new and confusing feelings when it comes to the opposite sex.

Little man can be somewhat blunt when it comes to saying what he thinks so here’s hoping social skills training will make this area of concern less of a problem.

Changing bodies, feelings and an injection of hormones are sure to bring about a some important lessons for little man and of course for me, his mother.

We are currently working on issues surrounding personal hygiene. With tactile defensiveness little man absolutely hates to bath. He loves to use a power shower and this is something I’m currently requesting from the housing association (which isn’t a walk in the park). Having a shower fitment would make the world of difference to us as a family. Instead of wrestling him into a bubble filled tub, I’d instead have to wrestle him out of the shower. Both myself and his father have both talked with little man about the importance of personal hygiene, especially as he gets older. His already Experimenting with different brands of deodorants because as dad clearly stated… ‘No body likes to be friends with somebody who smells of BO’

As for sex education, the school have already began to teach little man and his peers the basics. There has already been lots of discussions on how their bodies will change as they go through puberty so that there will be no surprises or sudden shocks in the future.

Just yesterday little man informed me that he was developing a few teenage spots that were completely normal for a boy of his age. We talked about the importance of washing his face and reframing from spot popping to which he responded with, ‘ Yuck… I won’t pop them thats disgusting!’ Yes I too was pleased we agreed on something.

I don’t know what these teenage years hold for us. But like everything, its just a case of taking the rough with the smooth. No doubt there will be problems but I’m guessing there will be many achievements made by little man along the way.

These are the years in which little man will become a not so little man. The lessons both myself as his parent and his school teach him, will now be some of the most important to date! Now is the time to work together to get it right, shaping my little man for the future. The end results… A promising life as an independent working adult who looks forward to life’s little surprises instead of fearing them.

How My Son With Aspergers Has Changed Since Attending A Special School

10 Dec

So, little man has been in his independent special school for children on the autism spectrum for some 18 months now! With this, I’ve decided to write a post concentrating on all the positive changes I have noticed in this time.

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1 – Improved confidence: This is one of the most apparent changes in my child. He is more confident in his own skin. Special interests are celebrated and his not afraid to share his likes and dislikes with peers. His no longer ashamed of his differences and is more able to see them as positives rather than negatives.

2 – Moods: Little mans moods are less impulsive than before which is because he feels much happier than he did when he was in a mainstream school. Ok, he can still become angry and agitated at the flick of a switch but I can defiantly see a reduction in this type of behaviour.

3 – Attitude to learning: Its very apparent that Little man is more willing and excited to learn. I love it when he comes home raving about the stuff his has learnt. His enjoying his lessons and finishes his day with a head full of new knowledge that he just can’t wait to share.

4 – Improved social skills: Yes, we still have a long way to go but his learning new skills daily. The fact that he actually has a whole school period every day dedicated to social skills training means the improvements are really starting to show. He tends to be less impulsive with the things he says to others. Overall he has a better idea when it comes to behaviours that are socially acceptable.

5 – Willingness to attend school: Little man actually looks forward to school now! The only issues we still have is with his sleeping leading to some issues with attendance. However, the fact he likes his school and wants to attend is just amazing!

6 – Better Understanding of Aspergers: He has a knowledgable understanding of Aspergers Syndrome and feels Better able to talk about how the condition applies to him.

7 – Independence: Since attending his new school little man has noticeably become much more independent. He still requires lots of visual clues but is more independent when it comes to creating and following a routine that his independently applied to a visual schedule. This is a really big achievement for Little man and is a huge step in the right direction therefore giving me more confidence that he will cope OK, when it comes to his life as an independent adult. His even cooking on a weekly basis. He brings home some amazing dishes that put my own to shame.

8 – Better reactions to sensory stimuli: He is still very sensitive in many ways and to a certain extent probably always will be. We have noticed some slight improvements in this area though, which is mainly down to the work he does with the occupational therapist while at school.

9 – Engagement & concentration: Although his attention span remains pretty short he is slowly showing some improvements in concentration levels. Good relationships with teachers and a high teacher to pupil ratio means he is engaging in tasks and able to complete work projects more so than he was before.

10 – Willingness to try: This is a change on a huge scale. Little man is more willing to give things a go in all areas of life. His added confidence is a big contributing factor. The fact he is less scared of failing means his less scared of trying. Little man was sadly discriminated against while in mainstream school and this lead to problems both at home and in his learning environment. The fact he is finally moving on from this, making friends and enjoy his school life is simply awesome to witness.

The Big Fat Autism Myths

10 Oct

Still today we are surrounded by countless myths concerning Autism and Aspergers Syndrome. Yes, we’ve come far to raise awareness for autism and the fact its a spectrum condition but still many struggle to except that some things are myth as opposed to fact.

Here’s some great examples…

Those on the autism spectrum have late language development!

Now although to some extent this is true, its not always the case especially in those at the higher end of the spectrum (Aspergers). Little man actually said his first word at 5 months and was able to speak very well by the age of 12 months.

Children on the autism spectrum make low academic progress because of learning difficulties.

Again this maybe the case for some children, mainly those at the lower end of the spectrum. However, some children on the spectrum have no learning difficulties whatsoever with some actually having higher IQ levels than those of their peers.

All children on the autism spectrum cannot attend mainstream schooling.

Admittedly mainstream school admitted that they could no longer meet little man’s needs and he eventually gained a place at an autism special school. This was despite him being on the higher end of the autism spectrum with an Aspergers diagnosis and a high IQ. Like many children with Aspergers he struggled with the more social side of school and suffered terrible anxiety. The truth is children with autism can receive a mainstream education… It just depends on the child and school in questions.

People on the autism spectrum don’t have feelings.

This is a big fat myth! If anything Little man feels to much and its these feelings of love and worry that cause him to become anxious. For little man its just harder for him to express those feelings… I know they are there and that’s a huge difference.

People on the autism spectrum don’t have an imagination.

Again this is a big fat fib. Little man finds it difficult to play imaginary games as he likes to base things on fact. He also likes to have a visual reference. However little man uses his imagination in other ways and is extremely clever at creating ideas when relating to something of interest.

All people with autism hate loud noise.

This is all down to the senses and regardless of autism we all have our own level of tolerance. Yes, many people with autism have heighten senses and this can make loud noise very uncomfortable (often to the point it becomes physically painful). However as well as children with autism experiencing sensory sensitivity, some are actually sensory seekers and will therefore seek out some type of loud noise.

All children who like Thomas the tank engine are autistic!

What can I say… Total Bull S#%# Yes little man liked Thomas the tank engine and statistics indicate that many children on the autism spectrum have a liking for Thomas at some point, however lots of children love Thomas and not all are autistic… That’s just crap.

All people with Autism are the same. If one person with autism experiences a certain difficulty then so will another.

Rubbish! This is why we call it a spectrum. Plus no two people are the same, we all have our own traits with and without autism. Yes there are a certain collection of traits that make up an autism diagnosis but this is a limited number.

All people with autism are Savants.

As lovely a myth as this is, it is just that… A myth! We all have things we are good at but only some of us have what it takes to be considered as Gifted which is the same for those on the autism spectrum. Many people with autism have things they are extremely good at (like little mans ability to memorise travel information) but rainman he isn’t and this is often the case for many.

Autism can be cured!

Most know how I feel about this myth. Autism is a life long diagnosis… There isn’t a cure. However, with the right education and learnt social skills things can be made less difficult for those on the spectrum.

Autism is caused by the MMR

Many will argue with me that this is not a myth. However I do believe it to be just that. You are born with autism, you do not develop it at some stage of your life. You don’t suddenly become autistic. And you don’t become autistic because of a childhood immunisation!

People with Autism are good a math.

Admittedly, little man is excellent at Math, but I do know other children on the autism spectrum who struggle with math and therefore find it their most difficult subject at school.

Children with autism can’t grow up to lead independent adult lives.

Many people on the autism spectrum, especially those on the higher end of the spectrum go on to have fully independent adult lives. This includes having a job, home and family of their own!

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The stepping stones to independence

8 Sep

As my child takes another huge step in his life’s journey I feel my heart burst with pride.

Little man has come so far in such little time. If you asked me 2 years ago if I thought he would be at the place he is now, my answer would have been, “probably not” considering how bad things were once upon a time, this fact alone should be a comfort for any parent who are now stood in the shoes I once stood in.

We have some incredibly tiresome days, ones filled with rage and anger, others filled with anxiety and disappear.

Yet, one needs to understand that like anything in life, we take the rough with the smooth. Ok, at 4am when his well past that tired stage when his running around pretending to be a wrestler, crashing and banging as he repeatedly throws himself off the backs of the sofas, before gathering up speed and darting from one wall to another, roaring and shouting as he mimics those overgrown kids that consider themselves men on WWE, I do feel a rather sorry for myself, the siblings and even our poor neighbours.

Evenly the smooth part does come through, and although it normally last far shorter than that of the rough… It’s a delightful place to find yourself in.

Despite the issue we’ve been experiencing with Little mans reluctance to eat a packed lunch as opposed to something he can heat in the school microwave (this is no longer allowed) His still coping outstandingly well with all these major changes that have taken place.

I can slowly see the pieces coming together. His growing up and with it his learning the skills of independence needed to go with it. Yes, I worry he will have difficulties in adult life, but then again what mother doesn’t? Finally… I feel progress is being made and It’s this progress that fills me with hope for my little man’s future.

Here’s to another great week, next week…. I’m told positiveness is the key and I hope that this key opens many doors for little man.

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Dear Little Man

31 Aug

Dear Little Man

One day I’ll set you free, you have my word on that. I’m sorry you feel held back…. I never wanted this.

You see, its not that I don’t trust you because honestly I do. It’s them I don’t trust, those in this world can be so crawl, more than I hope you will ever need to know!

I know you feel it’s so not fair when the boy next door you’re age goes everywhere. You think its because you have Asperger’s that I worry and say I’m holding you back,! Maybe you’re right, but only a bit… I just don’t think it’s safe out there.

Your just 11 years old, still so young, so much to learn. I am your mother and it’s my job to keep you safe from others.

You go to the park the local shops too, but to have you go far would be a worry to myself and others.

I hope that one day you’ll see that everything I do, I do it for you, not me!

As the days tick away and the years grow closer, your Independence and awareness will be much much stronger.

Little man… its difficult for me… I just love you and want to keep you safely near me.

So… please dry your tears, because with time you will see, that all that I do is simply because I care so much for you.

Love mum

Girls can do Meccano too

20 Aug

When we came back from our break away, the children where delighted to  discover they had some rather lovely Meccano sets waiting for them.

Later that day I was chatting with a friend online why the kids got  busy with their reviews (no rest for the wicked) My friend asked me  what my daughter was up to. Well, to say she was a little shocked when  I told her Alice was busy with her own Meccano set, was an  understatement! Honestly, you could hear the gasp from miles. Seriously  people, are we still stuck in the dark age where girls were expected  to play happily with Barbie and only Barbie?

The lovely people at Meccano  sent Alice-Sara, the rather pretty,  ‘Girls tool box construction set’ Wow, take a look at this and tell me  Meccano is not for girls! This is totally chick, very appealing to any  princess, I’m sure! A 60+ piece set all stored inside one very pink  and glittery tool box.

This girlie set is aimed at little ladies aged from 5-8 years. Each  set comes with an instruction booklet which is broken down into easy  to follow steps to enable your child to construct a total of ten  different girlie vehicles (note… only one piece can be built at any  one time).

Alice is 8 years old, and at the, “Higher end of the recommend age range” that has been given for this set. This showed as she had no trouble  following the instructions and constructing a range of different models. She commented that she enjoyed the challenge of constructing  the different models and had lots of fun doing so! Alice has built all  10 models in the instruction booklet. Here favourite is the funky buggy type car, she has dismantled this reconstructing it back together a  number of times. Alice seriously enjoyed the meccano set and rated it a 10

From a parental prospective, the Meccano set for girl’s, is a great  addition to the children’s construction range. It’s my opinion that  Meccano should bring some new girlie additions to this collection in  time for Christmas (here’s hoping they do) I will be honest, I was tad  disappointed that Alice did not require my help! I was kind off  looking forward to showing her how it’s done (though I think she may  have done better than I would have, probably showing me a thing or  two)! It’s great that brands like Meccano and Lego are now marketing their toys at girls as well as boys. When I was a kids I looked to get  my mitts on my brothers Meccano, but he would always tell me, ‘It’s  not meant for girls!’ We live in a world where little girls grow into  woman who choose to become mechanics and train drivers therefore why  shouldn’t we play with toys like Meccano.

Meccano helps the development of hand/eye co-ordination and fine  motor skills, it also helps a child gain independence and teaches them  how to follow basic step by step instructions. The beauty with Meccano  is, the sense of achievement it brings when a child has constructed a  model independently. The accomplishment helps build confidence, a very  important life skill. This is a set that receives a huge thumbs up from mum.

We were sent this product direct via the manufactures. However through  some online research it would seem that the, ‘Meccano girls tool box  construction set’ can be brought from a number of well-known stores and is priced at around £19.99 by most stores including Toys R us (though prices do vary).

Look out for our next Santa’s little helpers review to discover how  the boys found their Meccano sets…Coming Soon!

Cost-free effective ways to help your child on the spectrum

29 Jul

There are so many parents with children on the spectrum that spend thousands of pounds on the new latest therapy said to improve a child’s communication difficulties or their sensory processing needs. Not everyone has the funds for this or any other therapy besides, whether that be speech and language (SALT) or occupational therapy (OT)

So, here are some tips of things you can try that are cost-free and effective. Yet you should note that, 1) Here, you wont find any freebies,  just my little old  tips. 2) I’m not sharing a cure (there isn’t one)!  3) Nothing is a quick fix and finally… 4) Everybody is different, the difficulties mentioned in this post may or may not even affect your child like it does mine. Remember, somethings work better for some then they do for others. 

 Note: You may want to discuss some of the methods below with your child’s doctor to ensure their suitability.   

Roll play to enhance imagination and improve social skills: Play games that require imagination. Shops, is the type of game children love to play and my daughter has shown her brother how to play shops in a non repetitive way. (well, his getting there)! Little man has the mathematical brain so he does all the pricing up and change giving etc…This also teaches important ‘Life skills’ essential to children with social skills problems and difficulty with social interaction. There are other games you can play, like,  Schools or emergency services. Little man always pretends to drive a bus through the game is often repetitive it has still required a certain amount on imagination, which is what we are trying to achieve.    

Body brushing for tactile sensitivity: Body brushing helps children on the spectrum who are sensitive to certain forms of tactile stimulation that can come from a range of different textures. Little man is tactile defensive and has issues when wearing certain items of clothing due to the materials they have been made with. Body brushing is a technique that would normally be carried out by an OT and Little man currently has it  done during his OT sessions at school. However this can be done in the home in addition to an OT programme. (You may wish to get your OTs advice first.) If you’re not in a position to get your child on an OT programme due to funding or because of an inadequate statement of special educational needs, (SEN) but you are fully aware that your child’s over sensitivity to touch, this is something you could do at home on a regular basis. We just lightly brush Little mans arms and legs with different objects of different textures that each give off a different sensation. Good items to try are, body brushes, used for showering and different types of sponges. Body brushing a few times a week for ten minutes a time could make a huge difference to how you child copes and responds when dealing with different tactile experiences.

The guessing game: Another way of helping a child who has tactile sensitivity is again though play! Placing a range of different objects into a large paper bag and getting your children to place their hand in the bag and without looking ravage around and fill for an object. Before pulling the selected object out of the bag, ask your child to describe what it is they can fill out loud so you can hear, e.g… it’s smooth, quite big, round etc…,  etc…. Then continue on by asking your child to guess what it is that they think it is that they are holding. This again gets your child used to different textures while helping them think outside the box. 

Special interest: Encourage your child’s, “Special interest” embrace and celebrate their interest no matter how unusual or strange they may seem. Most people on the spectrum have interest that are somewhat,”Obsessive and a little over powering! If it really is becoming too much and completely dominating their time to the point it affects sleep, school or any other important events then try to limit the time spent on the activity, coming to a compromise! For example, “You can play buses or memorise bus destinations for half hour, then we will bake cakes!” The secret here is to make sure the compromise involves something else they enjoy (Even though it isn’t going to be something as important as that of the, “Special interest” it can still be extremely effective, so…  It’s Worth a try at least! )

Praise: Use lots of praise, if anything, “Over Prise” Catch them doing something good and praise them for it! If your child closes a door as opposed to slamming it as he normally would, praise him at that exact moment, not later but straight away! Trust me it helps!

Social stories: Write social stories to prepare your child for the unexpected or  just  those situations/events that worry them. There are plenty of free resources on the web and there are sites tailored to help you create your own social stories. Taking pictures is always an idea. If writing a social story about visiting the dentist for instance, you can take pictures of the dentist room and even the dentist if he agree. Use them in your social story, helping your child to familiarise themselves with the surroundings in-which you wish them to visit. 

Visual aids: Use visual aids to help your child follow a routine, whether that routine is for the whole day or just part of it! (Bed or bath time.) It can be expensive to purchase  pre-made visual aids so why not make these yourself? Again there are sites that are designed for this, ones that provide free images that are designed for this very purpose. You can also look for your own images by googling, “Free Clipart” be sure to check the terms of download and do not use any images protected by copyright laws. If you are a creative person you could draw your own symbols (this doesn’t have to be anything complicated, draw a bed for bedtime etc…. put the word, “bedtime under the image and cut out in the shape of a square) As with the social stories, you can always take your own photographs, e.g, a TV for telly time, their bed for bedtime the bath for bath time. We didn’t use real life images but a mix of downloaded, printed images and symbols that I drew and photocopied as spares. We used visuals to help maintain a bathroom and bedtime routine! After a while we changed from pictures to words and this works just as well.  

Energy burning exercising for your child: Bouncing, “Yes” Bouncing! Its great fun and takes a lot out of a child. If you have a garden that happens to have a trampoline, then of course this is perfect. I like to get little man jumping on our trampoline, sadly as the novelty wears off over time, he is less keen as he once was! Yet it’s not all about trampolines but about burning your child’s access energy so they are more restful at the times you want them to be, like, “Bed Time” I’m not suggesting you go out and buy a trampoline (that cost money and this post “Isn’t” about money, it’s about doing things to help your child that don’t cost a penny)! With that in mind, why not let your child run out their energy at the local park; go on a bike ride together; if your child does enjoy sport, (some kids on the spectrum do) then play a bit of your chosen sport after dinner. These activities can give the same effects as jumping on the trampoline and there all free!

Art for improvement of motor skills: Try to get your child involved in art, whether that be a drawing, painting or a creation of a “Double Decker Bus” (Yes I’m referring to my own child and his special interest. You could actually use your child’s interest to encourage art!) Art helps with a persons fine motor skills and that of hand-eye co-ordination and is great for all child not just the child on the spectrum. 

Memory games: Some children on the spectrum have poor short time memory (Like remembering an instruction, but more the order that the instruction should be carried out)! Little man has an amazing memory for remembering bus numbers and their destinations. He also has the ability to remember song lyrics very quickly. When it comes to fetching something, like his shoes or something else I’ve asked him to get for me that’s upstairs, you can bet your life on it that his forgotten by the time his reached the third step. Good memory games include, “Go fish” which is a card game and, “Pairs,” another card game. One of the best games we have played is one where we take it in turns to hide two or three items around the house and garden ( you can build up to more items with practice). Then the other person must find them by way of following instructions and clues. The person who has hidden the objects must remember where they have chosen to hide them while giving out instructions on how to locate them to the other person. This not only helps with memory but social interaction and multi-tasking. When your child is taking the turn of the person looking for the objects, they will improve the skills needed to follow a sequence of instructions. This is a game that helps children of all abilities, develop and improve some of our most needed skills ready for adulthood. 

Tracing: We have a light box that both Little man and his sister use to trace pictures on. Yes, Little man just wants to trace buses, but who cares, like I said before, “Embrace” their interest! To trace a picture does wonders for a child’s fine motor skills and can be done without a light box,  just a few sheets of good tracing paper alone. 

Money box: Help your child get rid  of the unwanted language/behaviour for good! Do this by, deducting pennies from their pocket-money. The trick here is to make your own simple money-box by using a clear container, slitting a hole in the top to drop the pennies into. They are then able to see the pennies mounting and it’s likely to make a bigger impact. If I tell my son his lost a £1 of his pocket-money on Friday, it just doesn’t sink in! Why? Because it’s just words! Like many kids on the spectrum, Little man needs things, (even sanctions) to be visual and this is! This is only our first day trying this out, but I’ve heard it works for some and I’m taking this approach with Little man and his sister as I know it will also have some benefit on her too (I must add she doesn’t swear but lately hasn’t been too worried about giving mum a little attitude)! There is also the option in allowing your child the chance to be rewarded with pennies being redeemed from the box for behaviour that is consistent with your expectations (The trick here is not to make it an easy solution as this may seem like you’re giving in to their demands)! I will report on our process over the coming months.

Sensory seekers: Make your own play dough as many children with autism seem to love this stuff, not only is it fun creating stuff with it but many kids like the texture, the way it feels when playing with it. Note Be careful they don’t eat it, Little man once did! (Though home made dough is non toxic so don’t panic if they do)!

Record and Monitor: Create your own diary as to record the foods your child is eating. Analyse the graph and try to establish if there are any patterns that give clue to any triggers for challenging behaviour, anxiety or sleep difficulties. There are many food ingredients in our everyday diet that can send a child on the spectrum spinning out of control. This form of documenting can be applied in other ways like, the recording and monitoring of meltdowns to establish a trigger(s). Over a period of time this could potentially reduce the number of  blow ups your child engages in!

Adjust your language: Its simple and effective! Avoid the use of ambiguous language! Speak clearly saying exactly what you mean! This avoids misunderstanding. Metaphors are a big No, No in our house, (when they slip out, I pay dearly).

Reward: Positive behaviour should be rewarded continually! This can be given in tokens allowing your child to collect and work towards something special (like a game they have wanted for some time, etc.). This is something we have done with Little man and his new school continue to do this. So far so good! (Just look at last weeks post, A little inspiration’) 

Offer alternatives: If like little man your child has a tendency to use fail language to the point it’s extremely worrying and not to mention embarrassing then try this! We have told Little man to use alternative words like, “Duck Off” or “You Witch” (‘Duck’ in replacement of the “F” word and ‘Witch’ in replacement of the “B” word) Yer, yer, I know it sounds silly! That’s what Little man said! But you see, Little man can be very grown up or very immature, every time he said Duck off, he would burst out laughing making him want to use the Duck word more! We still have a very long road ahead. Swearing has been a massive issue with little man for a long, long time now! 

 Independence: Remember your child will grow to be an adult just like all children do. Allow your child independence as they grow. Small steps that gradually increase to bigger ones, “Yes it’s harder when your child has social communication problems” but that don’t mean to say you should stand over them all of the time! (Of course this statement depends on the degree of autism your child may have.)  

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