Tag Archives: routine

Tips for preparing preschoolers with Aspergers for full time education

13 Jan

School isn’t an easy place for the child on the autism spectrum. Here’s some tips to prepare preschoolers on the autism spectrum for what lies ahead as well as some tips designed to help you, the parent, find the right school for your child.

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1- If possible introduce your child to a play school or a nursery setting so that they are given the opportunity to get used to being around other children. If you don’t, then you run the risk of problems when it becomes compulsory that your child is educated.

2- Introduce social stories that are centred around that of your child’s first day at school. Continue using social stories that cover school in general… especially trips, sports days and other activities that don’t happen on a daily basis.

3- When deciding on what school to send your child, take your time looking into the different options. If your child has a statement you also have the option of looking into special schools.

4- If possible take your child with you to look at schools. They may only be a pre-schooler but its important to see how the school sits with them. Be sure to choose a school that has experience of educating children on the spectrum and one that offers all the support your child will require.

5- Check ofsted reports as well as online reviews its important to do lots of research when it comes to schools.

6- Ask teachers if you could possibly take some pictures of the school and classroom setting (obviously not the children)! It would also be great if the class teacher and head teacher wouldn’t mind you taking a picture of them (the teaching staff). With these pictures you can build your child a social story that is centred around the school they will attend.

5- Pictures like those above could also be added to a child’s visual timetable. You could even create them a travel book. Inside this book you can display pictures of the teacher, toilets, playground etc… This would allow the child to use visual clues throughout the day in a number of ways. It would be an especially great tool for the non verbal child.

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6- Engage your child in role play. Have fun playing a game of schools, therefore preparing your child for the real deal.

7- Prepare your child for the world of education by starting out early. Giving a child a head start in education is a wonderful gift regardless of whether they have autism or special educational needs. Counting games and colour matching, arts and crafts and reading are all great ways to learn and will help your child practice concentration techniques needed for the classroom.

8- If your child has poor sensory processing then start introducing them into the world of sensory play. By playing a number of sensory games, over time such exercises could help your child adjust & adapt to different types of sensory stimuli.

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Above image from my autism and sen pinterest board (pinned from the awesome site Carrots Are Orange

9- If your child is yet to be diagnosed then do all you can to get professionals to see your child as early on as possible. Lots of children are diagnosed as being on the autism spectrum much later on once attending school. Children with Aspergers can often find themselves struggling in primary or even secondary school, while parents are battling the system for that of a medical diagnosis or a statement of SEN… quite often its usually both. Though, it should be noted that some traits of autism, especially Aspergers Syndrome may not surface till much later on, once a child is in school. Its not always a struggle to obtain the diagnosis. Good schools and SENCOs may be the first to spot a problem and therefore refer you to a specialist for an official diagnosis.

10- Children with Aspergers prefer a good set routine. School is a very structured setting and the child on the spectrum will really like this aspect of their school day. However, there are times when routines have to be slightly altered and changes need to take affect. We have found that unannounced supply teachers upset little man more than anything (even when he does have warning he still finds it hard to adjust)! Be sure that your child’s teaching team fully understand the importance of routine and the need to inform you of changes asap. Of course there will be times when changes are unavoidable and occur last minute but the earlier you know the better prepared your child will be for the change… However big or small it may be.

School is a substantial part of a child’s life. It is a place they will attend 5 days per week, for an average 6 and a half hours per day. Its imperative that they are comfortable in their learning environment. As parents it is our job to see that they are!

Thank Goodness Its Over

2 Jan

Firstly, let me start by wishing you all a very happy new year. Here’s hoping all your hopes and dreams are granted this year.

We may only be in the first few days of 2013 but what an eventful few days these have been… Well in our household anyway! With the children still off school it sure hasn’t been quiet!

Little man’s routine has gone totally off course and once again as a result I have a child who sleeps all day and is awake all night. Yes, I do drag his backside from his pit most days but when you’ve spent most the night awake yourself it is kind of tempting to let him sleep. One, your able to get stuff done and two… Have you ever tried dragging a 12 year old boy from his bed? Especially one who has the tendency to wake in a super foul mood? I rest my case!

Still, its to be expected I guess! Christmas and New year does tend to interfere with the body clock of a child on the autism spectrum. OK, he isn’t the best of sleepers generally, its just that bit worse these past few weeks. That’s why I’m kinda glad its all over now… Well it will be once the children are back at school. I don’t wanna sound all ba humbug, I actually love this festive time of year though I also love a little normality in the house (not that we are your average family on most days but I guess you get my drift).

So… Let me tell you a little about our Christmas and New year…. There was lots of fun in our house. Christmas itself was really pleasant. Yes, dinner was a tad later than expected, but it was actually really nice and chilled. That’s as chilled as Christmas can be! I know for some it can be a really stressful day. Especially when you have a child on the autism spectrum who likes everything to run like clockwork. However, this year we managed an almost stress free day. Keeping things small really helped. There was no huge family dinner, just me and the kids and their father. We briefly popped to my mums in the morning which was really short and sweet, then we sat watching Christmas TV with a load of Quality street within reach. Dinner did ran a little late as mentioned but I blamed the Turkey! It had clearly been living in another time zone when living as it had no intention on playing by the rules and cooking in accordance with the timescales so clearly stated on the packet. Little man did get a little stressed at this point but so did I. Maybe it was a mix of his Aspergers traits and that of hunger. I’m guessing it was more of the latter as I know I was close to starting on the pudding I’d prepared at some point.

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As mentioned in a previous post, that of Boxing Day didn’t go so well. With no schedule as such little man was handed a dose of the post Christmas blues and handled this in the only way he knew how… With a Good old fashioned meltdown… Little man style.

As the days passed, Little man kinda felt as if he was in limbo. The week between Christmas and New Year is a hard one for little man and I can kind of understand why. I swear, even I was unaware of what day it was occasionally. With money spent up on Christmas I found myself with nothing else to do but watch television and even I was getting pretty bored of this. What with one day being a holiday and the next day not, supermarket opening times still up in the air and not knowing if the rubbish would be collected or not (not great when you have a bin full of turkey bones, rotten veg and a truck load of gift wrap) you can’t blame him for the confusion… or me for the lack of schedule planning.

As for New Years Eve, well, this was spent with my mum. Just myself, mother and the children. So again a pretty quiet family affair (that’s if you don’t include the noise that was coming from little mans direction)!

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You see, little man gets somewhat excitable when it comes to New Year. He is petrified of fireworks, but only when stood beneath them, so the prospect of watching them on the television is one of great excitement for him. As the stroke of midnight grew closer little mans excitement was growing off the scale. He had come up with this wild and somewhat bonkers idea to do his own countdown for the benefit of his youtube channel (have I not yet mentioned his growing fascination with creating videos for youtube? Another time maybe). Anyway this meant that he wasn’t only sat filming the mental piece clock but that of the TV. As the stroke of midnight finally came we were not only greeted by the sound of the fabulous London firework display on the TV as well as a somewhat loopy firework hating barking dog running around mums living room but the sound of little man as he commentated the whole thing in his own unique style (sweet you may thing but you were not the ones reaching for the Paracetamol so early on in the night)!

So… There you have it. With all the festivities well and truly over I’m just about ready for the year ahead. I have our holiday to butlins in April to look forward to but before that I have a monster high themed sleepover/party to organise for a very excited 9 soon to be 10 year old daughter…. The joys of being a kid!

I hope you all had a wonderful Christmas too…. Heres to a splendid & wonderful 2013.

Help your child with Aspergers to get the most out of Christmas

3 Dec

1 – if like my little man you’re child with Aspergers isn’t big on surprises then simply don’t surprise them! I used to hate that little man used to get anxious about what I was getting him for Christmas. He would worry himself sick that I’d get it all wrong so now he buys his gifts with me.

2 – Plan well ahead for Christmas Day. If possible try to spend Christmas at home so there isn’t to much change.

3 – We all know its the month for advent calendars. Little man can’t help but to open all the doors on day 1, just to munch the chocolate (sweet tooth like his mother).This year we are trying the LEGO Advent calendar and given he can’t eat the Lego this is working out pretty well.

3 – Let your child become involved in the overall planning of the day. Make a visual timetable together and let them hang it in their bedroom at least 3 weeks before the date.

4 – if your child has extra sensitive hearing and therefore freaks out every time someone decides to pull a cracker, then why not introduce an alternative to crackers. I shared a post on my sister blog mummy of many talents where I made cute table flavours made with a paper doyley and ribbon. You can pack this out with cracker treats and paper crowns so no one loses out.

5 – If your child is a fussy eater then its worth making a separate meal plan for them. however, do encourage your child to try some of what your serving up. Little man has gone from only eating a small selection of Christmas dinner to most of what we eat which makes dinner time a much each time.

6 – Don’t be surprised if your child with Aspergers just laughs in your face when you announce that Santa is watching to see if his been bad or good. Little man was just 4 years old when he informed me that he knew Santa was a fictional being. He told me it just didn’t make sense and was not logical for a man with a white bead and fat belly to be able to deliver presents to every single child in the world, let-alone fit through their chimneys. Yes, it broke my heart but this is the way he is and I expect this (as long as he doesn’t ruin it for his siblings)!

7 – don’t over do the tape when you wrap the Christmas presents. Little man struggles more than most as he has difficulties with his fine motor skills and he becomes all fingers and thumbs as he sits frustrated as he tries to rip the paper of his gifts… I then have to sit unwrapping the gifts I’ve spent the night wrapping.

8 – Little man has a lot of trouble sleeping and Christmas Eve is no exception. If your child takes melatonin then try to stop giving it to them around 5 days before Christmas Eve. This means that when you reintroduce it come Christmas Eve the body is more excepting and it therefore works much better (after all there is nothing worse then meltdowns on Christmas Day).

9 – Let your child have time to unwind and relax doing what they want on Christmas morning. Don’t be offended if your child offloads the gifts to their bedroom and then wraps the duvet around them why they settle on the sofa watching cartoons. Little man does this. Its not that his not excited about his gifts its just that he needs time to unwind and fully wake up before opening anything… Things will soon liven up so just enjoy the peace and peel the spuds.

10 – Don’t forget batteries! Every child will throw a wobbler if you do, but the child with Aspergers just don’t get how you forget and meltdowns can be mighty.

11 – Avoid doing the food shop with the kids in toll. Its bad enough taking your child with Aspergers to the supermarket but if you take them at this busy time you’re just asking for trouble.

12 – I’ve been trying for years to stop little man asking family and friends how much they paid for his gifts and where they brought them from. Its just that he can’t help but know it actually eats him up inside if he doesn’t. Family have come accustomed to his probing and we try to not make to much of a big deal of it now. My mum will go as far as leaving the prices on for a peaceful life.

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His So Not A Morning Person

1 Dec

To say little man isn’t a morning person is somewhat an understatement. In all honesty, little man converts into something of a wild untamed animal whenever the day light appears.

So, you can just imagine the warm fuzzy feeling I get within my tummy whenever I need to wake him… NOT! Its actually a complete nightmare, one I approach with dread and even a little fear for what is waiting to greet me.

Well, I’ve come somewhat accustomed to little mans morning explosions and I normally just get on with the morning battle of getting him out his bed, followed by all the other tasks that come with it… direction into the bathroom, begging he gets dressed and finally the push he requires out the front door when his transport has arrived! Breakfast, I give up on… His just not the type of child who wants to eat anything of a morning.

Last week was particularly difficult when it came to little mans morning routine. On one occasion following a pretty long night involving very little sleep, he then decided he wasn’t going to even try and make an attempt at seeing the world… Understandably he just wanted to remain in his bed!

There was a lot of swearing and shouting from little mans end as I tried to get him up. He wasn’t budging and I wasn’t giving up.

His father came to help but instead the stress of the whole situation just had us shouting at one another rather than being a team it was like working with the enemy… Not great I know! Children, especially those like little man don’t need this. However as the escort stood at the door with his school transport parked outside the situation just got far to stressful.

With little man laid in bed screaming abuse at me as I refused to give in… Regardless of the waiting transport, someone had to break and thankfully it was him! He quite literally throw himself out of bed and right at me.

All this while his poor escort is stood at the door. I almost gave in, told her to go and I’ll get on the train with him! Nonetheless the thought of doing this was enough to keep me going on my pursuit to at least try to have a somewhat normal day.

Finally ready some 20 minutes after he was supposed to leave, I finally had some peace in the house (well, apart from the sound of the toddler playing with his Thomas the tank engine) but thats ok, playing is good, its meltdowns that leave me a crumbling mess for the remainder of the day.

Here’s to a better week next week!

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Aspergers and Control

21 Sep

Control we all like to have it, though some more than others. It’s important to maintain control of our life’s, after all what a pickle we find ourselves in when we lose our grip.

So what’s life like for a person who feels the need to control everything around them. Is this the type of somebody that one classifies as a control freak?

My little man is a child who has this uncontrollable need to control his surroundings. From what I’ve learnt about Asperger’s syndrome and the way the mind works I understand this has a lot to do with predictability ‘Making the world a predictable place to live in’.

I sat and thought about how my own child uses control, Who he uses it with and importantly where and when!

Since little sister came along and taught the little man about the joys of play, I’ve observed him in numerous situations. I’ve watched him during games that require lots of imagination, games like schools and shops. It’s these games in particular that the little man will come across as somewhat bossy as he try’s to control the whole game using his sister as an actual play object. Once they’ve played it one way they have to play it the same way every time.

Thinking about it little mans need to maintain control of absolutely everything is quite extreme. At times it’s like living with a husband! It’s even the most simplest things that he must control. A great example being the television. Yes, sometimes I have to remind myself who’s the patent here! He will just come in switch over the tv regardless that I’m sat watching it. He will then try to argue his case.This does have a lot to do with him just wanting to watch something but its when I say no things go OTT! He goes crazy at the thought of backing down and losing control of the situation.

This is why his very particular when it comes to creating a Birthday and Christmas list! He can’t get to grips with surprises and the few times I’ve done this things have ended badly. I’ve learnt my lessons here and now discuss everything with him first.

Last year it was a case of giving him money in a card then taking him and his money to the shops to buy his own gifts.This felt so impersonal but something I know to be Practical… This I cannot deny!

Mainstream school was Incredibly difficult for him. He spent so long without any help that his need to control his environment become very over powering. Lets be honest here… It’s difficult enough for even a teacher to control an environment that consists of some 30+ kids. Little man therefore didn’t stand a chance in hell did he. As a result Little man found himself excluded on a regular basis, so regular that it was weekly at one point. Visual aids used within the classroom helped a great deal however this was too little to late and the damage had already been done.

I know that Little man wants things to be predictable and that he finds it hard to relate to the feelings of others when his trying to make it happen. I just wish that others would understand this and see that his not just the spoilt child they assume him to be.

The Transition To Secondary School For A Child With Aspergers Syndrome

6 Sep

So, the time finally came, Little man’s return to school as a secondary pupil.

I noticed that in the run-up to the big day, Little man’s anxiety levels rose and as a result we did have a rather difficult last few weeks of the holidays.

I was dreading the whole “getting him up in the mornings” scenario. He tends to be the ultimate nightmare to wake, given he usually doesn’t go to sleep till the small hours. Unless you experience such sleepless nights paired with early mornings, you can only but imagine the utter tiredness his experiencing. Consequently I do understand… After all someone needs to keep a watchful eye on him over night.

I’ve tried my best to maintain his bedtime routine during the holidays (that’s if you can really call it a routine)! He usually goes to his room and just doesn’t shut down. His like a long life battery. Melatonin isn’t something we rate highly, and even through the slow releasing type sometimes has a small effect every now and then, it’s far from a reliable answer to the problem. On a high note, little man is more wary of the problem and understands that bit more that it’s this situation leaving him feeling crap throughout the day. He now gets rather upset when struggling to fall asleep and by 3am his almost certainly at the point of tears. When it isn’t a school day and his little eyes haven’t closed till 4am, I’m tempted to leave him to sleep throughout the day. However, as one would expect, this is no solution! Things just become a million times harder in the long run.

So, back to my original point… I was dreading getting the Little man up and ready for school. The nasty insults that fly out of his tired mouth are nothing… I’m used to these! It’s just the whole destruction it causes to the morning. He will often refuse to wash for sensory reasons and once he has I’m faced with the struggle of convincing him to dress. The taxi can be sat outside while the escort is stood at the door and he will still be in his pants. Not ideal but something you get used to.

His first day back was in-fact yesterday (5th September 2012) and to my utter surprise, the morning wasn’t as bad as expected. He almost seemed excited about his day. Tuesday I took little man and the tiny tot to Drayton Manor Theme park and zoo. It’s the home of Thomas Land and we were there to review a new Thomas film just released on DVD, and of course the park itself. Little man had an awesome day and didn’t experience a single meltdown while at the park (in the car was a different story but given it’s a 3hr drive each way, he can be forgiven). I think it was a combination of the long car Journey and the whole day spent at the park that resulted in him actually sleeping before midnight.

He woke Wednesday morning with a somewhat positive outlook towards the day ahead and given it was his first day back, this left me astounded. The fact that Little man had spent the last two weeks of the last term before the summer holidays integrating from the primary building into the secondary department, had obviously helped him a great deal. Now he was better prepared mentally! Yes their was lots of anxiety still, but at least he wasn’t just stepping into the unknown. Anxiety seems to be a pretty common trait for those with Aspergers Syndrome and for me It’s one of the hardest issues to tackle. It’s both heartbreaking and worrying seeing your young child so stressed, especially when the cause is beyond your control.

Little man had his new stationary that was kindly given to him by STABILO all packed and ready and his lunch loaded into his lunch bag when the escort knocked at 8.30 am. He was quite literally ready to go as soon as she arrived. I’m guessing this was something of a surprise to his escort… But a pleasant one all the same!

Throughout the morning I received no emails or calls from the school highlighting any concerns. Any parent can tell you, especially those of a child with SEN, this is always a lovely sign that things are going well.

Come afternoon however, I did receive an email from the class teacher! Luckily this wasn’t to report some challenging behaviour or other equally concerning matter! It was just in-order to let me know that as from the next day, little man wouldn’t be allowed to bring in his chicken burger as they will no longer be heating his food in the microwave! Little man’s school has such a small number of pupils that school dinners are not practical, and even if they were, I’m guessing so little children would opt to have them. Little man wouldn’t even entertain the prospect of even trying school dinners during his time spent at his old mainstream primary school. This wasn’t a huge concern as living 2 minutes away, I was able to collect him, feed him, then drop him back.

Little man will not touch a packed lunch regardless of what’s in it. He may eat such items at home but as soon as your packing it, his not touching it. Warm wrapped sandwiches, warm yogurts, and warm apple juice don’t appeal. Putting it in the fridge doesn’t seem to make much difference, the issue that it was put into the box more than an hour ago seems to be a big no-no for him.

It was decided last term that he could bring a chicken burger and heat it up in school. He has no cheese, sauce, or anything else. Just a flame grilled (not breaded) piece of chicken in a bun. He also has lots of fruit and a drink. His concentration levels were therefore reported to be better in the afternoon as he was finally eating, and I was pleased that I was no longer being presented with an untouched lunchbox at 4pm… I couldn’t afford to keep this up!

The new teacher has stated he needs a healthier lunch and I’m lost at what I’m going to do. Don’t get me wrong, I understand the school have their reasons and I’m in no way stating they are in the wrong, I’m just at logger heads at what to do! Today little man arrived home with an untouched lunchbox. I don’t even thing he touched his drink.

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He was really upset yesterday. Having received the email I had replied stating that I wished the school to inform him of this change, I knew he wouldn’t be happy and I didn’t want him thinking it was my doing. Of course when he arrived home screaming and yelling, I had to support the school in-order to be consistent! He would otherwise struggle more with this decision and a challenging child at school was the last thing I wanted. However he did cry on his return yesterday, he protested that he had done all his work, tried his best and behaved appropriately! He felt as if it was some type of punishment (as always I blame the old school for such a way of thinking)!

We obviously had some difficulties this morning but despite his upset and empty tummy, I’ve received an email from his teacher alerting me to the fact he has had a really good day. His reported to be doing great in secondary and is settling into the routine better than expected. She also informed me that they had a chat about lunch and suggested maybe taking a flask of soup or pasta. We will try this as on his return today his eaten half the contents of the fridge which for me is much more unhealthy than the burger.

So… There it is, an update of little mans first few days as a child with Aspergers attending secondary school at an independent special school. How I’m relived to have gotten him out of the mainstream education sector in time! I’m convinced that this post would have contained content that displayed nothing but heartache if I hadn’t!

Holidays, festivals and Aspergers

14 Aug

As some may have noticed, this blogger has been a tad quiet these past few weeks. This I can only put down to the 6 week holidays.

The children have done well at keeping me on my toes since breaking up from school, there’s been all sorts of crazy family ups and downs (luckily nothing to explosive has happened)!

Little man struggles to get the most out of his holidays, what with the lack of a more structured routine, things can often get on top of him. However, this year his doing pretty well and I’m super impressed at how little man is adjusting himself and as a result his enjoying an easier, less stressful school break.

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Don’t get me wrong, it’s not as if family life paints the picture that portrays that perfect family the “Walton’s” or even that of the “Little House on the Prairie”. There has been meltdowns, sibling rivalry, tears and of course a little cursing. But thankfully on the whole, it’s been OK and could have easily been worse!

I don’t think I ever imagined that I’d write something like that of the above, especially not during past school holidays which have seen me wondering around in a zombie induced state or that of a women sitting in a corner with her head in her hands, questioning out loud her ability to be a parent! I’ve now come to learn that its a combination of careful planning, self confidence & consistency that makes holidays relatively pleasurable for the whole family (especially for that of the parent and child on the spectrum)!

Little man may scream & curse when I’m requesting a new rule is followed but these rules actually make his holiday and every other day more predicable. He has a clear message surrounding my expectations towards him.

This is the same when applying new activities to a timetable/schedule, as by doing so he is aware of what we’re doing and where we’re doing it. The only problems with this are that of having to reschedule a planed activity or trip, cancellations are by far the worse! Little man like most children diagnosed with Aspergers Syndrome, doesn’t really grasp the whole unavoidable circumstances explanation and things can therefore become extremely heated and long winded.

This year we haven’t really been on any huge trips and certainly not holidays. Yes, we’ve done some days out to the zoo, park and that of the beach but not as many as I would have liked! Nonetheless, little man seems happy as he engages himself in his special interests or spreading time in the garden where he jumps on the trampoline for hours at a time.

Yet, like his siblings and any other child for that matter, Little man does get bored. Sadly his one true friend who happens to live next door, is off on his holidays where he’ll spend a long sunny 3 weeks in Florida. It’s apparent how much the Little man is missing the friendship and as a result I’m often finding myself having to contend with a snappy, moody 11year year old.

The above has left me needing to think outside the box. There’s been a need to create fun on a budget in-order to keep the little mans mind healthy and stimulated therefore reducing the chances of him getting over absorbed in his interest or annoyed, over stimulated or bored.

Garden sensory play, board games and back yard camping have all played a huge part of our life these last few weeks.

Other then being a parent to three children there has been other things keeping me busy (thankfully I wouldn’t call these chores)! Their are a few new projects I’ve embarked on and some awesome brands I’ve started working with. Actually if I’m honest, I’ve had some lovely surprises since the kids broke up! Discovering I had been chosen to become one of the new Butlins Ambassadors, was one of those surprises, one that caused big cheesy smiles from fellow members of the household.

Becoming a Butlins Ambassador means I can book a holiday with the children between now and next August, and then share my views on the resort by written review and video.

Most importantly, I can report on the little things that matter to those families who have children on the autism spectrum, those with SEN and other types of disability. A holiday camp such as Butlins, runs scheduled activities & events throughout the day which is most appealing to the child who needs structure and routine to feel safe and comfortable.

As well as the review, I’ll be able to share all the need to know Butlins news which includes anything from fantastic competitions to fabulous savings.

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If the above wasn’t enough for me to get all excited about, I’ve also met with Acer who invited me to check out their latest Tech releases while celebrating the Olympics 2012 games and its worldwide partnership, by sitting down for a spectacular 3 course lunch at the stunning Spencer House in London (blog post & images coming soon).

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Last week was the week I got myself a little ‘Me’ time. I’ve just returned from a the “Wilderness Festival” in Oxfordshire. I spent the entire weekend with a friend discovering what Wilderness had on offer for its second year… and it was bigger and better than its first year ( review coming soon).

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So now I’m home and enjoying being mum. Yes, it gets tough sometimes but there is no place I’d rather be.

20 ways to make summer a less stressful time for the child with Aspergers

19 Jun

Summer activities with a child on the autism spectrum can become something of a wash out, something many families dread. But who wants to spend an entire six week school holiday stuck in the house fearful of going out.

All children need entertaining, boredom is something that never goes down well in anyone’s book and although I’ve done the whole staying In doors thing In the hope it saves me from the public meltdown, I’ve moved on from this, there really is no point in hiding away and not dealing with situations head on.

Summer is much harder when siblings are involved, there’s places they want to go, ones you know the child with Aspergers just can’t cope with. But as a parent you want your children to be able to experience the things they want to, building a set of awesome memories throughout the way.But as a parent you don’t want any of your children distressed and unhappy.

I am lucky in the fact that I can sometimes leave little man with his father while taking the other two children out for the day and vis versa but there are times I don’t have this option and therefore need to weigh up the pros and cons.

Below I have included some ideas that may help you have a reasonably good school summer holidays, but remember every child is different and what may work for some won’t work for others.

1) Many children on the spectrum are not great with overly hot temperatures so try to visit local parks etc in the late afternoon early evening. This way all the children can enjoy the trip to the park.

2) Avoid massive crowds unless you are visiting a facility that caters for your child’s needs. Most theme parks do a wristband that means your can skip the queues and avoid sensory overload and meltdowns.

3) Cinemas are now doing autism friendly screenings which means all children can see the latest film release and no one is left disappointed this summer.

4) Try to have a least one day out where the activities are focused around your child’s special interests. My son likes transport so a visit to the transport museum always goes down well. If siblings are attending spilt the day into two doing something they want to do first (I say first as yes your child is likely to ask when are we leaving and going to the transport museum for example, but if they go to the transport museum first they have nothing left to look forward to and may not cooperate as liked.

5) To avoid boredom on the days your not going out, set up a schedule of fun activities in the garden. All children can get involved. Have some sensory play in the sandpit, burn some energy on the trampoline and why not have some fun sensory play in the paddling pool. This is perfect as your child has the option of coming inside when it all gets to much and other children can continue to play and have fun.

6) If like mine, your child is a fussy eater and wont eat anything that is A) packed in a cool bag and B) isn’t hot, than picnics are not really a suitable family activity. Instead of having children miss out completely why not opt for a disposable barbecue instead. This way the children get the experience of eating outside in the sunshine without any tears.

7) If going out for the day to the park or beach a potable pop up sun tent is a must. These can be brought at a reasonably good price and is a haven for the child who becomes overly sensitive to the heat.

8) As much as I love to do things on a whim I no longer get this option. Checkout what’s happening this summer, plan a scudule and try to stick to it. This way your child knows what activities and visits/days out are happening on each day.

9) The above is essential when going on holiday. This is likely easier in places like holiday camps etc as you can adapte there scudule to suit that of your own and your children can easily express what activities interest them.

10) Another great thing about holiday camps is the supervised activities meaning your other children can still go of and have fun even if the activities are not to the child on the spectrums liking.

11) If going on long car/train journeys over the summer break, bring something to entertain your child, an iPod, iPad, potable DVD player, book or handheld game console (a must for all children).

12) Try to keep bedtime routines the same (as much as possible). This avoids problems when the holidays come to an end and your child returns to school.

13) Talk your Aspergers child through any activities planed for the summer, especially new ones. Try to do this well in advance. Show your children pictures of the places you plan to visit or check it out on there website if they have one.

14) Give your child choices, letting them feel they have a certain amount of control over planed activities. Many children with Aspergers need to feel a certain amount of control.

15) Don’t overload your child, ensure there are free days at home where your child can relax even if the day is scheduled.

16) If going on holiday take your child’s blanket and pillow to make sleeping easier.

17) Expect difficult days and try your best to prepare for them. Lack of routine will always make things harder for the child with Aspergers Syndrome.

18) Educational play is a good way of keeping your youngsters brain busy during the summer. This is great for the child who doesn’t like homework as they tend to learn without even knowing it.

19) Use the summer months as a time to help your child build on their independence skills.

20) When a parent becomes stressed this has an undesirable effect on the child with Aspergers. If your finding the summer months difficult try to talk to other parents in the same situation. There are many online support groups and forums for parents of children with autism.

Half Term Battles

5 Jun

So yesterday was another one of those days. Woken early I had lots to do, firstly there were the kittens, two would be leaving us and although I knew we would all be a tad dishearten, there was one person in particular whom I knew would find the adjustments a little tough to take! Yep… The little man!

Little man was playing in the garden when the first kitten left… I thought it would be better this way! It wasn’t like he wasn’t aware he was leaving, he had said his good byes and gone of to play on the trampoline! Still preparing for the event didn’t make things that much easier and as expected Little man cried for a rather long time! He called me names, told me I was evil for taking his Bellas babies away!

The turn of kitten number 2 came and despite him knowing that we could visit this kitten as she would be living with my sister he still branded me a cat napper. “A cat napper indeed”

Change is always hard for little man, his become attached to these little furry balls of cuteness and his certainly been dreading their departure.

Children adjust, that’s what we are told, I know this is true we all adjust as human beings because we have to! It’s just that sometimes it takes the little man that bit longer and in the meantime his certainly not the easiest of children to live with.

During the early hours, Bella (the mother to the litter) is pacing, she’s crying and hunting for her babies! Little man showed no intention on sleeping instead informing me that he was cat sitting! Yes… Cat sitting! I dont know who’s worse, Bella or Little Man? I’m sure they both felt I was going to steal the remaining two kittens during the night as both wouldn’t leave the room and Bella was continuously carrying her kittens around the room before trying to stash them beneath my bed.

I do love the connection little man has with our cat Bella, yes it sometimes feels like a kick in the guts when he shows her more affection than me… His mother, but he just has a different connection with animals which in many ways is beautiful.

Another thing that seems to have affected little man is not only the half term but that of the extended bank holiday weekend. Like many of us tend to do, the little man is getting his days mixed up. The whole thing has thrown his body clock into overdrive… I guess it’s kinda of like jet lag. The half term can often be disastrous and the fact it’s another bank holiday today won’t help!

The queens jubilee seems to have taken over the television and the little man is getting somewhat tired of it. Plus it’s messed up the bus timetable so we will definitely not be going anywhere that requires such a mode of transport for the remainder of the day!

I would say that luckily the little man is now sleeping but it’s 2.30 pm and this just makes it harder for him to settle tonight! We often find any sort of bedtime routine that we have put everything into establishing goes to mush once any type of school holiday hits.

One thing the little man has been focusing on, which I guess makes him feel that bit more relaxed, Is that of his special interest. Transport and Lego are a bit part of his life and now his added wrestling to the equation his had plenty to occupy his Busy mind… And mine!
Admittedly he has been driving me a little bonkers with his Lego master pieces which largely consists of buses and wrestling rings and that of his constant re-enacting of wrestling matches which involves lots of banging and crashing (headaches are a continuous part of my life these past few days)! However his interest have saved us from any major meltdowns and have been my secret weapon for reinforcing good behaviour, so, yes they have their up sides.

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Here’s hoping the rest of the half term runs smoothly and we don’t face any back to school battles!

Summer Dreams

3 Jun

Summer dreams… I’m lying on a sun lounger some place hot, the sea or pool ( I really don’t mind which) is a stones throw away. I have a generous Glass of pims in one hand and a good read in the other!

So… Ordinary, wouldn’t you agree?

I used to have summer dreams like that of the one above. But dreams change, they no longer seem like dreams, more like desires that I long to achieve. My dreams are simple in theory but often unreachable in life. Not because they are not possible, they are… If I give it all I have to live them.

Now although a holiday is much needed by all, it’s something that I’m sure will not be happening this summer, so as the days draw on I begin to kick my own backside and remind myself that I have a dream that needs fulfilling, that dream… To have a well plan out and organised summer!

Sounds boring and yes somewhat pathetic, but for me it’s the key to a long and happy summer. Doing things on a whim is a speciality of mine but such a skill is unethical when your a parent to a child with Aspergers Syndrome.

Some days you wouldn’t know my son was on that Autism Spectrum. Like everything some days are more difficult than others.

Little man is currently on half term as is his younger sister ‘Alice-Sara’ (I’m bracing myself for plenty of sibling wars!) Now, although this week will get little man into a bit of a mess with the lack of structure and routine, (Yes, I do try but I can never complete with the structure of school) the summer holidays are for a much lengthier time period, this huge change and the pending anxiety about the coming new school year (new class, teacher, ect…) can mean an explosive 6 weeks.

So, what’s the solution? Well, I wouldn’t call it a solution, but a semi one at least. Organising activities in advance, making little man aware of where and when we’re going, good organisation and structure is the key to his and of course my own sanity.

You would think that I have learned my lesson by now.There’s been plenty of trips and occasions that haven’t been planed as well as they could have been. We’ve had our fair share of meltdowns as a result.

I maybe a mum of a child on the spectrum, but I’m in no means perfect and the whole organisation thing is not my strongest trait.

So… Although the dream of a day spent soaking up the sun’s ray, while relaxing on a beach some place inviting, still exists, it’s in the back of my mine it will stay.

If all is organised and I start booking trips and planing days out now… My summers dream could go something like this…

A day out as a family some place nice, we would laugh and smile, eat a picnic fit for a fussy eater. The children would run around having fun, playing games together… No screaming, arguing… No violent meltdowns, abusive language! There would be no tears, no anxiety, just enjoyment being had by all! And If I could control the weather and public transport I would!

Ok, almost, because life isn’t always so simple, anything can happen! A sensory related trigger, a delayed train or even a wrong turning (getting lost is my little man’s pet hate)! But I will try as by planning and preparing that summers dream will be that much closer to a summers reality!

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This post was inspired by this weeks Britmums blogging prompts! If you’re a blogger why not check them out and join in.

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