Tag Archives: rewarding

#HAWMC Day 29 – The six sentence blog post

6 May

Firstly I should state that the #HAWMC (Health Activist Writers Month Challenge) is well and truly over. Although I wrote my last two post at the end of April this is however the first real opportunity to post them.

Post 29/30: A six sentence blog post

Life can be difficult & tiresome, yet rewarding in many ways.

Using the power deep within, we somehow convert the difficulties into positives and with that we grow stronger.

When it comes to our children we’re fight you to the core.

We will climb up any Mountain, swim any Ocean.

We would go to the ends of the earth and back if we had to.

Because we love them and nothing will ever change that.

Post 29/30 in the #HAWMC set by Wego health

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“Stressed! Who me?”

15 Nov

Stress! it’s something we all face at one time or another through life. Some people are stressed because of work, others have exams at uni and deadlines to hit! Then there are the parents.. stressed out because their children have kept them on their toes the entire day! The stressed out teacher who has encountered cheek from at least a fourth of his pupils out of his thirty something class………. I can go on all night you will never run out of examples.

What makes one person stressed, is a walk In the park to another. It’s very easy as a parent of a child on the autism spectrum to get frustrated and almost angry at others when they are sat complaining on the bus, train.. where ever it may be, about they’re “stressful” day at work, or the well dressed woman sat chatting with her friend about the stress she encountered while shopping on busy Oxford Street in the West end! You sit rolling your eyes thinking in ones own head, “Try my bloody day! The battle to remove my child from his bed, the challenge to persuade him to dress then go to school when his only had a few hours sleep meaning you have too!” That’s it now you’ve got me started… “If I have succeed in my morning quest, I’m then collecting my child from school at 12pm, his ten years old yet on half day and that’s even if his lasted that long!” You try hard to stop this bitterness but it keeps coming…. “Try shopping in Sainsburys with your ten year old verbally bashing you as you try to shop or better still throwing himself into shelves while screaming and shouting he hates you while having a full on meltdown… You don’t even know what’s upsetting him! But my god you need to find out. This is Sainsburys, I only wish I could shop in Oxford Street!!!!” It don’t stop coming…. “Bedtimes your child is still beeping and acting like a bus at 2am and all I wanna do is sleep”

The thing is… this guy and this woman both have the right to vent no matter what the reason is behind their stress! I’m not saying that just because I have a child on the spectrum my life Is harder then his or hers! That’s beside the point! These people haven’t done anything wrong.. I’m just sat there and if it has been a bad day I’m proberly just feeling extra sensitive and sorry for myself… If anything I’m just acting bitter. But why? I love my life and wouldn’t change it (I would change certain things that have happened, but wouldn’t we all!) A few mornings ago little man woke up in the worse mood and as result decided to beat up my bedroom door. Things like this I would change! The smile on his face as we board the 450 bus is priceless 🙂 This I would never change.

As a mother to three.. I get stressed! And beleive me, it’s not all down to my little aspie man. What do you do as a way to unwind? Read a book, watch a little telly, or chill to the sounds of London late night love songs on heart? Us mummy’s are normally only part free to indulge in mummy time, once our little angels are in the land of nod us mummys go for it! The thing is little man don’t sleep till the early hours! I put the baby to bed and like magic (99% of the time) he goes to sleep within minutes. How different my boys are! As soon as baby is fast a sleep I find myself getting ready for the night a head. There is normally so much I want to do, but just as much I have to do! Once my daughter is in bed, I start the battle to get little man in his! This is a battle that can go on for hours & hours… When he does follow his bedtime routine (we made a timeline using visual aids) he will normally just lay there in his bed in complete darkness, talking to himself about bus routes or acting out the bus doors opening and closing. Though I can hear him.. Beeping away, I know his in that bed and with this I jump in mine, Mac in hand and normally I will do a little blogging. Yep off Loading all my crap onto you guys is my stress reliever. If I didn’t have the blog I would be a “bonkers” Mummy (yer don’t think I don’t know what your thinking!) I only wish I got more time as it’s often the case that I pass out before I’ve even logged in!

A few nights back I really did have the chance for some me time. The childrens father was here taking care of the kids and I was laid upstairs with mood lighting (lamp dimmed) waiting for a TV show that I really wanted to see “I don’t watch much telly and I really wanted to see this show” I woke up the following morning fully dressed and in a state of utter confusion. Do u know I jumped out of my bed and stood there in the middle of my bedroom for a good five minutes trying my hardest to piece together what was going on!! Did I watch my programme? why in gods name is it light outside? Where’s my Children?

Once i had finally placed my brain firmly back in my head it all came back to me… well the children being with daddy, the mood lighting and just how comfortable I had felt! typical me had passed out again. Just then my daughter appeared fully dressed and ready to go to school. Daddy had stayed over as I was somewhat sedated and he had got the children ready for school (Well Not little man) he was doing his usual morning routine…Refusal to get up, washed, dressed…ect..ect…ect…
Well, I must have needed that sleep! Like they always say, “Everything seems better in the morning after a good nights sleep” So…. Did it? Did it heck!!

So yes I like many get stressed! It doesn’t mean I can’t cope or I’m having a breakdown! It just means I’m human.

After all… Life is stressful.. But it’s also Incredible rewarding, given the chance!

SO WHAT!

1 Feb

G is different from other children in more ways then one. But that’s that.
Please Don’t say you fell for me or tell me to keep my chin up. Because all through he can be hard work and send me a little la la from time to time he still is the best kind of hard work there is. I would never want it any other way. He teaches me more then I ever fault I would learn about life’ G and his sister are my life and I enjoy everything about it. The only thing I would want to change if given the chance would be to change the way people see ASD. I wish I could click my fingers and then his school and many others would have this great understanding on ASD. The results being a great deal more support on offer for families and the child. “But come on!” We can’t change everything sometimes that’s the way of life. No one can change others views on a subject no matter how annoying this maybe. We can try to educate’ if that brings some awareness to just one person then that in itself is a welcomed result.

Giovanni can demonstrate bad unwanted behaviour but don’t all children do this to some degree? OK it may be a little more intense but it’s not 27/7. I’m sure some people think I have this 8yr old that is extremely bad. Giovanni can and more then not he does demonstrate very good behaviour. Some of the things he does others would count as bad and unreasonable behaviour when there not! These things such as saying something to another that could be seen as rude would not of been meant to be seen in this way. That’s the thing you see. Children with Aspergers tend to end up with problems due to reasons that can’t be helped.

When ever someone says Stay strong, I fell sorry for you or anything along these lines. It makes me angry!
Why fell sorry for me? I have a amazing son who yes has Aspergers!
BUT SO WHAT?
G is mine, I love him, I’m proud of him and love being his mummy:)
Looking after any child can be exhausting. But it’s rewarding isn’t it? Well it’s the same for me. Aspergers makes this no different.

IM A MOTHER TO A CHILD WITH ASPERGERS! SO WHAT?

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