Tag Archives: research

A boy with Asperger’s get’s sponsored for the Mad blog awards

8 Sep

 This is it guys, it’s almost here, on September the 30th I’ll be of to the “Mad blog awards for the awards ceremony in London’s Soho.

 What makes this all the more exciting, is the fact that somebody likes the blog so much that they have agreed to sponsor me!

 These day’s it isn’t just footballers and big name brands that get sponsored, but bloggers too! 

 When looking for a sponsor I wanted to find a brand or company that were passionate about what they do, in the same way I’m passionate about my family, raising awareness for autism and my love of writing and of course blogging. As well as this pretty huge requirement, I also wanted the companies brand/product to fit in with the overall theme of the blog.  So, for me this would be a brand that deals with parents but with the added addition of autism.

 Well, I’m pleased to say, that I think I found this and a whole lot more in my sponsor. Yes, I’m both incredibly excited and delighted to be working with them!

 So, without further delay…

 My Sponsor for the Mad blog awards is…  Drum roll please …

  “OPTIBAC PROBIOTICS”

OptiBac are an independent family run business with a passion for Probiotics almost as big as my passion to create awareness for autism and help families dealing with diagnosis and the challenges it may bring.

 For those who have no idea what Probiotics are and how they relate to autism, let me explain!

 What are Probiotics?

 Probiotics are live microorganisms  (more commonly known as friendly bacteria) and are something we all have, and need within our own bodies. This bacteria, alongside Pathogens, (Bad bacteria) can be found living in our intestines. It’s the good bacteria’s (Probiotics) that are needed to ensure good digestive health, while playing an important roll in keeping our immunity and energy levels high.

 It is important to have a good balance of both good and bad bacteria, and although we produce both, it is often the case that the balance needed becomes fragile. This is a common occurrence what with, Stress, ageing, travelling, high sugar levels and more, all being contributing factors.

 When our bodies experience an imbalance of the two, a person may experience symptoms, Such as, low energy, bloating, allergies & food intolerance, skin conditions such as eczema, heartburn, Diarrhoea, constipation, thrush, IBS and more.

 Probiotics and autism

 It is well documented within the autism world that the link between autism and digestive health is a pretty big One, with hundreds of thousands of children and adults with an autism spectrum diagnosis, having some type of ongoing digestive/Gut problem, that quite possibly requires some form of treatment, medication or diet requirement. 

 I, myself have heard a mass of stories from other parents of children on spectrum speaking of their child’s poor and problematic digestive health. 

 Just a few days back, a thread on my facebook page,“A boy with Aspergers” highlighted the high number of children with poor digestive health against a very minute few who have little or no issues, to be rather substantial.

 Though my own little study proves little, there has been a great deal of research involved in discovering if there really is a link between the two? Most results indicated that, yes there is!

Check out these few sites, ‘Food for the brain‘ & ‘Incredible Horizons’,  

 I have come across many parents and individuals who are trying to improve their child on the spectrums digestive health by changing the way they eat. If you are a parent to a child on the autism spectrum or you yourself are on that spectrum, its pretty likely that you have come across terms such as, lactose, gluten or casein! These naturally occurring proteins, can all be found within the foods we eat and children and adults with autism can be extremely sensitive to such ingredients (food intolerance) however it is thought that such occurrences could be due to the imbalance of probiotics and Pathogens (friendly and not so friendly bacteria).

 Most children with autism, already have a very limited diet and although there are plenty of Gluten-free and Casein-free foods now on the market, many parents experience a great deal of problems trying to introduce this to the child with ASD. Another important factor to remember, is the differing finds within scientific studies when it comes to eliminating these food groups and the true benefits for the child with autism.

 Little man is a child who has some degree of problems with his digestive health, mainly maintaining his regularity and the stomach cramps this causes him. His diet has improved over the years though not greatly! It lacks a lot of the healthy foods. His eating habits are quite limited and he therefore quite shamefully gets by on chicken or bacon. He also has a great fear of public toilets and certainly wont do a number two anywhere but when at home or when visiting one of his two grandmothers, which of course does nothing for his digestive system. So, of course I put these issues plus his terrible habit of wind breaking down to the above, but lately I’ve been forced to rethink, looking at the whole picture. You see, I don’t really know if little man has any food intolerance, though even if  he did, the work needed to change his whole outlook on food would be a great challenge! So, if there is a possibility that a supplement of probiotics could help balance out his good and bad bacteria, I’m up for giving this a try!

 You see, it’s not just problems with the gut that children with autism experience, but also a mass of other problems, such as, behaviour problems, poor sleep, anxiety and more! Again little man suffers quite severely from all listed.

Research into the probiotics has found that a daily dose of certain strains of probiotics given to a child with autism can dramatically improve areas of concern such as those listed above (especially poor behaviour and concentration levels).

  More about the, ‘A boy with Aspergers’ sponsor, ‘OptiBac’

 These guys are awesome, and yes, they know all there is to know about probiotics! They are in-fact the UK’s best selling probiotic range and are unique in the fact they use specific probiotics for specific health conditions, meaning there is a probiotic supplement right for each and every one of us. OptiBac Probiotics are so safe most can be used while pregnant, breast-feeding and some can even be given to children as young as 6 months old. With this and the fact OptiBac offers its customers affordable probiotics, aimed at each ones particular concerns, makes this a really trusting brand.

 Strains of Probiotic

Lactobacillus acidophilus Rosell-52 is one of the most commonly known probiotics and is actually used within five of the nine OptiBac supplements. The probiotic strain is often combined with prebiotics (prebiotics, is a source of food for probiotics to grow, multiply and survive in the gut) and is a good aid for health conditions such as IBS, reducing the risk of yeast infections and can even minimise the risk of diarrhoea, especially in travellers. Rosell-52 is used within the children’s range (from 6 months-12 years) This same supplement is also safe to take when pregnant or breast-feeding , so is therefore recommend to both children and expectant and breast-feeding mothers. (this is the supplement Alice-Sara and little H started today). The species ‘acidophilus’ can also be found within the premium range, such as, ‘Extra strength’ which consist of a further four strains of probiotic and contains 20 billion live probiotic microorganisms per capsule. This is the species we have started little man on this morning, which is given in the form of a capsule! Little man is used to these as he takes Melatonin to help aid his sleep at night, so, he had no problems taking it!

 There are many other strains of Probiotics that OptiBac use in their products and with each strain a different dosage helping to combat a persons health concerns in the most natural and healthy way possible . The above example is just one of many strains and more detailed information can be found over at the OptiBac website within its resource centre, You will also find a full list of the probiotics on offer and what each can do to benefit your health. 

 You will find that most if not all, probiotics are approved for use, if you are a vegetarian or on a gluten or Yeast- free diet. They all contain no added sugar, (Sugar can actually counteract the benefits of the added friendly bacteria, which is while Probiotic yogurts are not really recommend, due to the added sweeteners and sugars) lastly they are free from artificial colouring.

 OptiBac really impressed me, yet we’ve only just began our journey discovering the potential benefits for children on the spectrum, like my little man, and my families health as a whole ( Yes, that’s right we’re all having a go !) 

Alice-Sara and baby H are taking the,For your children’s health supplements (for their general everyday good digestive health) £16.34

Little man is taking the, ‘Extra strength’ capsules (to help with digestive health and improve his bloating and stomach cramps, that maybe a symptom of his autism). £22.49

and as for me, Im taking the New, ‘Maintaining Regularity (for my IBS and bloating, though don’t worry, I’m not about to start blogging bowel movement updates). £24.98

 Other products that look great are, ‘Flat stomach’ and ‘For those on antibiotics’ (That’s the actual name of the product) which is a fantastic supplement designed to replace the bacteria’s that antibiotics kill, causing symptoms such as trash (it’s happen to me and I only wish I had known about Optibac)!  This is just one of the many side affects that can result from taking a dose of antibiotics. 

 So, there you have it. The brilliant OptiBac are my Mad blog awards sponsor and will be so kindly putting me up in a lovely hotel on the night of the awards. 

In the meantime I’ll be taking my daily supplement and hoping my bloating stays away on and before the 30th

 Make sure you all look out for updates, to discover how the probiotics are working for little man! Will there be improvement in his digestive health, sleep, behaviour, or very poor concentration? Let’s just wait and see.

 Please show some Love and like OptiBac on ‘Facebook or follow them on twitter. Also don’t forget to check out the OptiBac website Just pop on over to any one of these and say hi. I would really appreciate it and I bet they would too!

OptiBac in London … Catch OptiBac in London between the 5th-9th September 2011

The guys at OptiBac, have one of their very own Naturopath’s visiting a number of London stores and are inviting you along for some free health advice and special offers. Check out the site for locations. 

NOTE: We are not after a cure, we love Little man the way he is. OptiBac nor myself are claiming such nonsense. I’m just pointing out that yes, children with autism do tend to have digestive/gut problems and Probiotics may help improve this and maybe some of the difficulties listed above. If you’re looking for a cure, then I’m afraid you wont find one in probiotics or any other source for that matter!

My Incredible Boy

30 Nov

So he did it!!!

Yesterday was the big day, Little man was all set to take part in a new study for children with autism spectrum disorders & ADHD at Kings college London’s Neuroimaging Centre, Institute of Psychiatry at the Maudsley.

The aim of this study is to investigate the effect of a single acute dose of a serotonin agonist, Fluoxetine, on brain function and functional connectivity during disorder-relevant tasks in children with Attention Deficit Hyperactive Disorder (ADHD) and with high functioning Autism Spectrum Disorder (ASD) This is done by using Functional magnetic resonance imaging (fMRI brain scan) 20 children with ADHD and 20 with high functioning autism will take part in the study All children will need to be aged between 10-17 years and only boys will be participating. Well my little man was one of them 20 boys with high functioning autism. The study will also investigate the brain differences between ADHD and ASD children in brain structure.

We were pretty well prepared for the day ahead when we stepped into our waiting taxi at 8.15am yesterday morning. (I say well prepared this doesn’t include the fact I left my purse and a number of other things indoors) Once we had arrived and met up with the lovely Kaylita Chantiluke, who would be carrying out the research as part of her PhD with the supervision of Dr Anna Smith, Professor Katya Rubia and Prof Murphy. We were shown to a comfortable room where Little man took the pill (either a placebo or fluoxetine) and then practised a number of cognitive games that he would later do in the scanner. It was pretty hard to engage the little dude from the onset, but Kaylita was fantastic with him and got him playing the games. Within just ten minutes of meeting the little man Kaylita asked me if I was sure he didn’t have ADHD on top of his AS. Well, he was bouncing of the walls. I think she was even more shocked on discovering he had only had two hours sleep the night before.

We had a good five hours wait before Little man could be scanned. As well as the cognitive games he practised which were…. a Stop Task, Reversal Task, Temporal Discounting Task and a Working Memory task (N-Back) we also had a ton of paperwork to get through. These were all questioners mainly based on Little mans behaviours in home and at school. I remember filling out a couple of similar ones before Little man had his Aspergers diagnosis when we first went to Camhs. It was crazy to see how different my answers were. I remember when I filled in the first one in 2007, thinking, “Oh his Ok! He doesn’t do that or I haven’t noticed that” How very different it was now… As every single box that highlighted the extent of his problems was ticked.

Just before lunch time we were taken to see the mock (dummy) scanner and Little man was able to lay on it and try it out. He wasn’t able to hear the noises it made due to it being a mock scanner, but he seemed quite confident with the whole thing. After this my life saver of a friend (I love you Donna) came and met up with us and lent me some money for lunch and stuff (Remember I left my purse back at home) With this we all visited the local McDonald’s ‘Very classy”… By the time we got back and stuffed ourselves and warmed our cold hands It was time for the real thing!!

I noticed on the way down to the scanner little man was anxious! How do I know this? Well it was the whole nasty attitude he had suddenly acquired. He always does this when he is worried, frighten or about to enter a new environment. Once there we had a little confusion over if I was able to sit In the scanning room while little man was scanned. This was because of a past operation I had  in the past. However we soon got the Ok and off we set.

My God the force of the Magnet inside that room had my hair standing on end. I could tell by Little mans face he was getting worried and to be honest I was too. He was so brave laying down, having all the equipment placed on him. The machine attached to his finger really freaked him out… I sat thinking “Well, how will he cope in the scanner if he can’t cope with the thing on his finger?” Placing the cage type think that has the mirror attached over his face was a bit of a worry. I knew he would be Ok with the closed space but I started to worry about all the other things like the noise and the fact he had so much equipment on as this was already causing him stress. He needed much reassurance and also needed to know how long each scan was. He wore ear plugs and massive earphones and I wore the same. It was hard as I could hear him a few times shouting for me once in the scanner and shouting back he couldn’t hear me. He needed to come out a few times and again needed reassurance. We all told him we could stop but he kept insisting we try again. The noise was so loud that I ended up with a huge headache, that and the magnetic force was the likely cause. I kept thinking If I feel this way he must be going crazy!

Though we were in the scanning room an hour, much of the time little man was outside of the scanner were he required reassurance. We did manage to get a through good images but expecting little man to tolerate the scan for more than a few minutes at a time was too much and though he didn’t want to give up (My little fighter) everyone decided not to put him through anymore (myself included)

We have another one in a month were again he will take the tablet (Either placebo or one acute clinical dose of Fluoxetine, depending on what he had yesterday) and then will try again at the second scan. Little man was unable to do any of the cognitive test while in the scanner but his participation in the study will still help a lot. I have explained to little man he does not have to go through with the second scan… but like the trooper he is his said he wants to.

It was a long day and we didn’t get back into our taxi till gone 5pm. After telling little dude how hugely proud of him I was… I feel fast asleep in the cab. Once home and feed we went to bed for an early night. Sadly Little mans little sister was unwell and up half the night and after a cat nap so was little man!

So here’s my message to my wonderful little man, ” Yesterday you did a really brave thing that will hopefully help lots of children like you! I  think you are one incredible boy who I’m proud to call my son” Love mummy.xxx

To read more about this study visit Kings College Institute of Psychiatry webpage.

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