Tag Archives: passion

Words Written By Me

28 Oct

Wow… What an incredible week its been.

First off I discover I’m one of 10 finalist for the SavooSmartest Shopper Competition” then I go on to be interviewed by four great judges in London.

The competition has a great prize attached. The prize money is generous but you are also given the opportunity to write a “Money Saving Blog” with support from Savoo.

Did I feel incredibly shocked yet incredibly excited about getting this far in the competition? God, Yes…

No matter how far I get in any sort of writing related awards or competitions I still always find that need to pinch myself and pinch myself hard.

Why? Well, there are a few reasons for this but there is one that stands out particularly!

I could say that blogging has opened many doors for me, given me something to tell the grand children (in the FAR away future) but I won’t… Instead I will say how Writing has opened such doors for me instead.

Yes, without the blog how could I do the things I’m doing? But its what goes on the blog that should be noted, after all… What’s a blog without its content.

I wrote a post a while back that spoke about my writing and the reasons why I’d never imagined myself doing what I’m doing today. You see, writing was never my thing (just read this), if anything expressing myself through written content was something I struggled with and therefore disliked immensely! I remember my English teacher telling my mother how I had this amazingly creative mind that I was just wasting by not using it to reach my full potential! Once she started that if I could just put down on paper that creative vocabulary of mine, then we could sell books. I knew even at 12 that this was sarcasm. I’d been a bit of a diva and spoken back to the teacher who was simply not impressed with what I had to say (I had detention for weeks to follow). However, she was always impressed by whatever writing I’d reluctantly produce and she did think that by continuing to write I’d open up a whole new inner passion that I never knew I had.

“Blah blah blah…” I’d think to myself as I impatiently tapped my finger nails on the desk while yawning in an exaggerated manner. Teachers were never right, not by this girls knowledge anyway! I actually remember being sat thinking “Oh stop banging on about it miss… Its Not gonna happen!”

I often sit wondering what she would say if she see me now?

I’m not claiming I’m the best writer! I never read the stuff I’ve written and think to myself wow girl… You sound amazing, go write for a living!… Though I did actually make myself cry once when reading a post id written some months after I’d first published it! My point being, I’m always immensely humbled when I receive an email from a reader complimenting my writing style. I am used to getting emails from readers claiming that I’m an inspiration for sharing my life as a parent to a child with Aspergers and sen. I’d also get those thanking me when I would help them access educational services or advise them on the education laws surrounding their child’s special educational needs. And although i’m just about getting to grips with such words, its those emails and comments that claim my writing to be anything other than bog standard that leave me shocked yet amazed.

If you had asked me as a small primary child or even a raging mad hormone infused teen, if I’d ever see myself writing in the future, and more to the point… actually enjoying it , you can be bet your house on it that I’d quickly respond with with a swift “NO” followed by a burst of giggles (the type that implies you must be insane to even ask).

What I’ve leant is… Miss Whitehead, you were right! Yes, I love to write, I do express my feelings so much better on paper, and if I could chose to do anything during my “Me Time” I’d do exactly what I’m doing now… I’d write!

Did I want to grow up and find myself writing a blog? No!

Did I ever think I’d see any of my writing published in print? No!

Did I ever dream I’d be nominated for any type of blogging awards? No!

Did I ever once think Id go on to collect a Mad blog award (inspirational) in the name of my blog “A boy with Aspergers” for not one but two consecutive years? Whatever… This one is followed by that Swift burst of giggles that again imply your craziness.

Did I ever imagine that people would read about my little self and that blog of mine in the papers? Ha-Ha-Ha… Joker!

20121028-180739.jpg

I’ve learnt that by combining my passions with words and sharing them through written material in whatever format I choose, I’m able to gain something back that is incredibly rewarding! That something is the knowledge that by doing something I love I’m providing others with something they relate too, laugh at, learn from, take inspiration from or simply just enjoy!

20121028-175045.jpg

That is something wonderful… And Its something I’m not planning on stopping… Not for a very long time.

So, whether I’m blogging about the ups and downs of parenting a child on the autism spectrum, what I’m wearing, how to make your own face mask, sharing tips on how to get the most out of eBay or simply where to get the best shoes for the littlest price, it doesn’t matter… Why?

Because each would mean nothing without the passion I hold for the things I believe in, the things I enjoy and finally the desire to translate them into words, words written by me.

Every time something amazing comes from something I’ve typed on my Mac… I go through these same motions!

Its these motions that have inspired me to blog today… Who knows what tomorrow may bring.

20121028-175332.jpg

Aspergers and how it really affects us as a family

12 Oct

Some people comment “It must be so difficult for you as a parent” My answer is always the same… “We’ll, I don’t really know any different”

You see, your born with Aspergers Syndrome and given little man is my first child it means I’ve been parenting a child on the autism spectrum for some 12 years now. It’s not like he suddenly got it and as a result everything had to change! You adjust from child free young women to mum and you adjust in the way that works for you and your child regardless of any condition or disability.

Ok, that doesn’t mean we don’t have difficult days… God only knows we do! But we have good days too.

The thing is, little man isn’t sick, his not got a disease but a condition. His a child that is very able he just struggles within certain areas of life but is able to learn skills to make these areas more comfortable.

There are some very difficult challenges that come from parenting my little man, the lack of sleep is most probably one of the hardest. But then so is watching him become extremely anxious and upset and being powerless to fix it.

I’ve mentioned before that for us the “label” isn’t an issue. It’s my opinion that many families need to acquire a formal diagnosis to open doors to services (that even then you have to battle to obtain them). Autism is a spectrum and although some families don’t feel the need to seek an official diagnosis, many others do.

A younger Little man with a younger Alice just before diagnosis

20121012-062046.jpg

However, there are some downfalls of that diagnosis and that’s the way others suddenly treat your child. We found ourselves fighting a discrimination case that we brought against Little man’s old primary school as he was forever excluded, bullied, isolated and more. The good thing the label did do, was give us the grounds to bring a case and ultimately win it.

The truth is the official diagnosis helped us get little man the education and treatment programmes he needed! It didn’t change Little man, he was still the same little boy he was the day before diagnosis… Yes he had Aspergers he just didn’t have Aspergers on paper!

Little man with baby brother Harley now 2

20121012-061632.jpg

In all honestly, life is much harder when your child has Aspergers but mainly because the system… It’s the system that needs fixing not the child.

Early intervention is extremely important as we all know. Nonetheless 18m to 2-year waiting lists to even see a child paediatrician is just diabolical! It’s in this space of time your child starts experiencing certain difficulties but has no access to the appropriate services! By the time he has the diagnosis the difficulties are now boarding on extreme yet your waiting another 18 months for an assessment for recommended treatment of appropriate programmes.

Little man’s siblings do often find things difficult especially Alice-Sara who has often experienced violence at the hands of her brother and his unpredictable behaviour. Yet, she has always been a sister to a brother with Aspergers and although this doesn’t make things different its still all she knows.

Another sibling war

20121012-061538.jpg

We get on with things… We are presented with problems such as that above we tackle them and we keep on tacking them in till improvements are made. Sometimes these are made quicker than others.

I’d be lying If I said little man’s Aspergers didn’t affect us as a family… Of course it does! But life isn’t unbearable, it isn’t a total display of darkness. Days spent full of meltdowns and distress. Sometimes Aspergers doesn’t come into it! Not everything he does is down to an Aspergers trait, sometimes his just having an almost teenage moment and although behaviour can seem challenging its just that of being a child growing up and having a moment of hot headedness.

Aspergers is apart of little man but it doesn’t define every aspect of his personality and even when it does it doesn’t have to be in that of a bad way.

Aspergers makes little man more goal orientated and rule bound which can be an extremely beneficial trait for a young boy. He is passionate and honest (most of the time) and very intelligent in many areas.

Parenting little man has also made me change as a person. It’s introduced me to a whole new way of thinking. It’s given me drive and passion, opening my eyes to what it is I’m good at and what I want to do with my life.

It’s brought me here to this very blog, its got me writing, sharing something that’s important!

We’re happy and although somedays we may seem as though we are not! We are… We are happy!

%d bloggers like this: