Tag Archives: Obessive interest

When Special Interest become obsessive in children with Aspergers Syndrome

28 Feb

Special interests are great but sometimes pose a problem!

Its fantastic when your child diagnosed with Asperger’s syndrome has a special interest, one he/she can focus positive attention, gain enjoyment from and importantly, learn from. 

Little man, has always had a special interest in transport and although this often skips between trains, buses and the London underground, it always remains within this area. 

Little man also enjoys Lego since discovering how much fun it can be, this has become an additional interest of his. Though it should be noted that he does incorporate his special interest of the above, within his Lego play. He spends lots of time creating new models of transport, whether it’s a bus or a train, he could be there for hours. 

This however isn’t a problem, though his special interest in transport did reach the point of extremely excessive a year or so ago when he was back in mainstream school.

 I found Little man was constantly mimicking the transport announcements that he had studied and memorised to a perfection! He was also intensely interested in the mechanisms of transport, especially that of the bus doors. He would use his hands to act out the opening and closing motion and spent hours beeping, so much so that I could hear it in my sleep! No matter where we were, if little man saw sliding windows or doors, he would head straight for them, sliding them open and closed as to recreate the same motion of the doors on the bus. I remember visiting his doctor at CAMHS for an emergency appointment which had been organised because of the trouble he was having in school, his low self-esteem, the anger it was creating, along with a whole host of other issues which resulted from such difficulties. He spent the whole appointment sliding the windows of her office open, before bashing them back together in a loud distracting manner. His doctor could hear the beeping sounds he was making as-well as the monotone voice he put on as he mimicked the announcements normally heard when on a bus! Right there and then she drew the conclusion that his special interest had become somewhat extreme, and if such behaviour was getting in the way of life, it was time to limit it. 

This may seem, to some, an extreme thing to do! Why stop him from doing something that clearly makes him happy (after all, he was having the most horrid time in school). The thing with Aspergers Syndrome and special interest, is that these interest can actually restrict interest and focus in all other areas in life. Basically, his interest in transport had reached a point where he could no longer focus his attention on anything else! It was clear to see that this had become much worse since things had could hugely down hill at school, that lead his doctor to believe that as-well as engaging in his obsessions because he enjoyed them, he had also started using them as a coping mechanism. Not only this, we also established that the opening and closing of doors and windows, or just the hand mimicking actions he was displaying literally all of the time was also providing him with some degree of sensory stimulation, he was sensory seeking! 

 I found that during the course of that year, we spent more time riding on buses than I likely had in my 20 odd years off living! To some degree this had its  advantages, not only did the bus drivers know us by name, often allowing us to indulge his love for free (I’m guessing they guessed this activity was costing me a small fortune, plus it wasn’t hard to work out, that Little man, wasn’t your “Typical child”) but I also found this to be a good reward system, no good behaviour, no riding the buses! Of course when this happened, a meltdown on a huge scale would follow,and although I admittedly caved on a few occasions, I largely remained consistent, which is obviously that best way to be

 Little man did some amazing talented things during the course of that year, he could basically tell you where any bus was heading in London, doing so with such acuity. Although he had always been pretty good at this, it was now on a whole new level! My son was able to tell us what bus was destining for where, despite never having been on some of these bus before!

 It was incredibly hard to take the doctor’s advice and over time, limit the time he spent on this interest. This itself took strength a whole bucket load of the stuff. I used to find him wandering around the house at 4 am beeping away, worse he would be unravelling the toilet tissue around the house as to create a route for his imaginary buses to follow. I could lead him back to bed, but I couldn’t always keep him there, I couldn’t switch his mind off his interest, he’ll just lay there in the dead of night, recalling hundreds of buses and destinations from memory.

 It was only after he started his new special school for children with autism and aspergers and his discovery of the Lego brick, that I finally saw a dramatic decrease in these behaviours! OK, despite Melatonin of a night, his still up till the early hours, and of course he still beeps and has a run through of bus numbers, but it’s nowhere near on the same level it once was.

 The Lego gave him a distraction and another form of sensory play, while his growing confidence in himself as a result of his new-found happiness at school, are the reasons behind this reduction. 

 Little man’s interest in transport will likely always be his special interest, and probably that bit more obsessive than most people’s interest. However, now it is manageable and I couldn’t be happier with this!

  I even got asked by the bus driver last week, if all was OK because he hadn’t seen us for a while… Result! 

 

The Highs And Lows…2010 in a nutshell (part 1)

31 Dec

What a year!!!

So much has happened in 2010 and looking back through my diary and reading some past post, I’m shocked at how much we’ve squeezed in!

Though it’s pretty clear from my reading that sadly the lows far out weigh the highs… …  It’s still them few highs that I believe have kept me sane throughout 2010 and helped my family pull itself through them Oh to many low days!

So Now I attempt to write a post that looks back over the 12 months of 2010…Regular readers can reminisce alongside me and those of you that are new hear can discover life so far in a nutshell!

January….

… The year 2010 started off as an amazing one! With my new son born on the 11th December 2009… I couldn’t have been happier. Little man was and still is crazy about his little bro. My family was complete, with three beautiful children I wanted for nothing. Sadly my baby became quite ill in the January at just 5 weeks old he had a bad chest infection (Severe Bronchiolitis), refusing to take a feed or just vomiting the whole thing up (exorcist style) we took him to hospital… Where we stayed for the next week and a half. He was fitted with a feeding tube that went through his nose, and had to be given oxygen for hours at a time to keep his stats up. I worried about my baby so much… But also had the added worry about leaving little man and his sister for so long. How would little man cope with seeing his baby brother with all these tubes? of course I worried about my daughter who was almost 7 but I knew she was stronger than her brother in terms of managing with her feeling and fears, She found it easier to discuss her fears and ask questions on things that would worry her (She was much easier to reassure and comfort during times like these)

The children visited and I would do my best to reassure them their baby brother was recovering well. Little man was becaming very distressed with the sight of all the tubes, as was his sister. A few days into our stay the baby got worse and contracted H1N1 and pneumonia. Myself and his father tried to stay strong for the sake of the children but we were going out of our minds with worry . A no visitors rule was imposed… Only myself (who stayed at the hospital) and his father were able to be with the baby. Little man was broken he couldn’t visit his brother and worried himself sick. His father would come and stay with the baby for a few hours while I would spend them few hours with the children. It was an incredibly hard month!

At last our baby came home and slowly I settled back into a routine of being a mummy of three.




February ….

… Having baby back home was  amazing. Little man had been having a few issues at school during January but I put this down to the change in routine (me staying with the baby at the hospital ect…) However things went belly up after extensive works started on our house. Our ceiling had fallen down in 2009 and was still not complete and the Walls had now started caving in around us. The job was a huge one that meant knocking down all remaining plaster (taking the walls back to brick) and re-doing them all from scratch! Works were planed to take a week. This was no place for a recovering baby and two young children… One who had sensory sensitivity… we knew we couldn’t stay and moved to my mothers. I visited my home every few days to check on things and collect my post ect.. I would leave in tears as it was like a builder’s yard with massive piles of dust. The works went way over schedule & we were at my mothers for what felt like forever! (No offence to my mum but we needed to go home)

Little man was stressed all he wanted was to be at home. Problems at school grew more difficult and I noticed I was getting more and more phone calls & letters from the Head & Deputy Head teacher. I wanted to ask the LEA to assess but was told by his school the LEA would not agree as there was more the school could be doing. Little man was given two unofficial exclusions on this particular month. Looking back now It’s very clear to me he was dealing with a hell of a lot and wasn’t handling stuff as well as I may of thought he was at the time… We were not at home and everything was different. Yet he was keen to attend school for the first time ever… He had even started to make some friends.


March….

… On the 1st March I made a parental request for a statutory assessment. Outreach services were asked to come in to school to observe, advise the school and work with Little man. This was the month Little man received his first official fixed term exclusion on the 3rd March… Things just kept getting worse. The relationship between myself and school was rapidly breaking down over my concerns about the lack of support and understanding that was being given to my son. On the 18th of March little man received his second fix term exclusion… And at the end of March I attend court for non school attendance for the period June-Dec 2009 (Little man was not sleeping at all and refused to attend school daily) As I stood in court like some harden criminal being fined… The school was busy imposing the third exclusion of the month via voicemail… Little man’s third exclusion within a few short weeks! Things were serious.

April…

… It was nice to get away from the stress of Little man’s school situation even if it was for just a few short weeks! Unlike many parents, I found myself dreading the Easter Half term coming to an end & the children having to return to school. It was nearing the end of April when Little man returned (two days after his peers as he was given a 4 day exclusion at the end of March that carried over to the new term) From the word go we encountered problems. I had a meeting at school which didn’t go well, I found myself losing trust in the school, and I felt though things were serious but no one was taking it that way as every concern was brushed aside! Little man was now always angry and his self-esteem was at an all time low. The LEA were not following the statutory time limits when it came to the six-week time limit for making a decision on if/if not to assess Little mans Special Educational Needs under the Ed Act 96 & the code of practice! I found myself having to chase people for answers… Only to then be told that they have decided to take it to panel on the 17th May weeks after the required time frame with no explanation offered! I felt like I couldn’t enjoy my new son due to always suffering the worry of the phone ringing, the fear of further exclusions or being asked to prepare my child to miss his break/lunch time or both, normally for incidents said to have happened a day or more before… I was becoming so down and feared that depression was setting in.

It There was one or two highs to the month… My birthday and spending it with the children, and the phone call informing me I had been accepted onto the Early Bird plus programme (dispute Little man being a tad over the age limit)

was world autism month and I was busy raising awareness for autism through blogging and my facebook group (that seemed to be touching the lives of more and more families thanks to the great support of members and the fantastic admins now on board)I started to notice that over time I had required some truly inspirational contacts & friends, who are some of the nicest, kindest people I know… All because of Autism.

May….

… For me, May was the month that I thought… “Can it get any worse?”,  “Was the straw that broke the camels back” so to speak! Having Only just returned from exclusion a few weeks pervious the exclusions started up again! On the 5th of May my little dude was excluded for one day! This was also the month the Allotment project started, resulting in what I can only describe as continuous acts of discrimination. Little man was either brought back from the allotment… With the school only informing me of such incidents a week or more later… Or he wasn’t taken at all. There were also weeks he found himself excluded on the same day as the project took place. Little man was given two exclusion this month on the 5th and 13th. We had a multidisciplinary meeting at school at the end of the month and it was agreed that the school could not meet my child’s needs, yet….  It was also this month that I found myself yet again chasing up the LEAs decision on the statutory assessment. I finally discovered by phone the request had been refused on the grounds his school could meet his current level of need and he was making adequate progress. This was my first real insight into the sheer twisted system supplied by LEAs… There was penalty more insights to come!

Although things were appalling at school, I started to gain more skills through the parenting classes for parents off children on the autism spectrum (Early Bird Plus) Meeting other parents who nodded when I spoke because they related to what it was I was saying was just heavenly. This was one of my reasons for creating the blog and the magnificent Facebook page… “I just love that page” I wanted to connect people as it can be a pretty lonely world if no one relates to you or your child, even if they pretend they do!.. Meeting parents of children like mine was uplifting and really brought me up from the lowness I had recently started feeling. I could speak to the staff running the programme without judgement, they even visited me at home… I was shown how to create social stories & the benefits of using visual aids (That we now can’t do without) I looked forward to Tuesdays and remain extremely grateful to the staff for agreeing to my attendance on such a beneficial programme.


June…

… After yet another blissful Half term… The children returned to school. Little mans sleeping problems were really showing its ugly head once more… despite the use of Melatonin. The month of June showed little or no improvement with the schools over use of exclusions… They just refused to take note on the effect they had! It was only impacting on his own mental well-being and his behaviour become more challenging not less. At home he was starting to have huge meltdowns and failing to cope with any day trips through fear of being rejected from them (even with his own family… he had lost all faith) Little man was excluded once again a few days into his return to school on the 10th of June (another allotment trip consequently lost) The LEA carried on rule breaking, resulting in letter writing on my part as a way to obtain the important letter refusing to assess in order to appeal to the tribunal… This I finally received it at the end of June.

Although things seem less than rosy in June it had a number of perks… Things may have gone overly sour in regards to Little mans education, but things started to look up for me and the family as a whole. I received an email from Nas inviting me to be interviewed for the training course to enable me to become an adviser for the Advocacy for education TSS service (Tribunal support service) We also received a fabulous gift from Merlin’s magic wand… Four tickets to Chessington World Of Adventures was much appreciated, and brought huge smiles of happiness across Little man and little sisters face! The sound of pure excitement filled the house and gave the family something fun to look forward to. Merlin’s went all out and helped us make up for all the school trips and activities my little dude was currently missing. The plan was to take the children to the theme park during the summer holidays that were almost upon us.


Well…… As you can see and it isn’t for me not trying… I just can’t seem to pack one long busy year into one single post without achieving some kind of world record for the worlds longest blog post (That’s if I don’t already hold the title!) So…. Time for me to wrap this up and continue from July through to December in part 2 tomorrow (Well it will give me something to do 🙂 ) I’m hoping you will all return to read about the highs and low of the last 6 months of 2010 🙂

TO BE CONTINUED…………

Christmas… Little man style

29 Dec

At long last I write a positive post… And I’m loving it

The blog has been full of doom and gloom this past year! Ok there has been a happy post here and there… But only a small handful at the most. It brings me great joy to report some happiness has gone down in the Little man household … And it’s all thanks to a little thing called Christmas!

We tend to take no day for granted, as we know Little man can often blow like a volcano without any prior warning.  Christmas time can be incredibly stressful for any parent, However parenting a child on the spectrum at Christmas (like most days) can be a great challenge. Social gatherings, changes in routine, over excitement… ect… ect…  All these and more can be a child with asd’s nightmare.

The fact we have had such a hard time this year… What with the whole school situation and the up and coming tribunal, I just wanted us all to have one special day. Was it too much to ask the man above for….  A day without meltdowns or tears, a day where little man felt truly happy, and so did we? I just wanted Little man along with his brother and sister to have an amazing magical day.

Things were looking pretty bleak in the run up to the big day. Little Mans bedtime routine has gone of the wall… The “crazy”  Little dude is settling down to sleep at  6am… Not at all ideal when Mum needs to wrap a thousand gifts. I think it was a whole lot of everything that was contributing to this lack of sleep routine. Since the week before the children officially broke up from school, Little man hasn’t been (And isn’t going back!) As mentioned before in an earlier post… Little Mans mental wellbeing was becoming a great concern and for this reason I decided enough was enough! Luckily we have been told a statement is in the process of being drafted… we’ve just got to wait and see what’s in it and make a preference for a special school. The LEA have already asked all the maintain special schools in and out of the area. They either have no places, or can’t meet his needs… We have been offered five hours tuition in a library in till a school place comes up! What a bloody disgrace! I sure as hell wont be agreeing to this being put in part four of his statement. So…  My point is…. A lot has gone on, and the prospect of a meltdown free day was…. Slim!

Well… I had to eat my own Christmas hat! Christmas was a meltdown free zone. Given the fact Little man had rarely closed his eyes, and his tendency to be easily “set off” when sleep deprived… He  proved me wrong and was a star!

“OK… OK, I would be lying if I said he didn’t have the odd moment… But his ten and that’s what most ten-year olds have… MOMENTS! We had the brother and sister bickering, and he almost lost it when his sister began singing “All I want for Christmas is You” By Mariah Carey (He goes mental if people sing… But this isn’t acceptable and upsets his sister a great deal. He has to learn to tolerate this as his sister tolerates his “loud” singing at all hours… day & night) Apart from these Mini hiccups, We had a pretty awesome Christmas.

This year, given the fact Little man is a non believer in Santa… I let him choose his gifts. He hates surprises and if you get it wrong… “HE TELL’S YOU SO!” So I took my chances and stuck to the plan. I even broke one of my own golden Christmas  rules when I reluctantly agreed to take Little man out with me to the shops where all the crazy christmas shoppers rushed around us. We went the day before Christmas eve and I convinced myself I was in for some hard work… Again I eat my own hat… Little man coped well… If anything I was the one stressed and falling apart. There was one funny story to our trip…  I asked Little man to go to the collection point in Argos while I was at their Jewellery counter awaiting something else. We had been wise and had reserved a number of items via the net ensuring that they would be in stock and would save a great deal of time (Waiting & Aspergers… Never a good combination, as I was about to find out once more…) Once I had collected my item of jewellery I walked over to the collection counter where little man was stood. As I got nearer I could hear him talking to the assistant in an overly formal voice. “I’m not being at all funny, but… The number has been called, yet I don’t see the item I want… My ticket also say’s a six-minute wait… (he now looks at his watch)… I make it ten whole minutes” Can you just imagine the look on this guys face! I think he was utterly gobsmacked…. Once he had gone over my little man’s words in his own head… He replied, “I’m extremely sorry sir, but we have a small problem with staffing today and I will be sure to look for your item right away! Again I’m very sorry” Little man stood nodding like an old grumpy man, and I felt my cheeks glowing. I told the assistant I was very sorry… which lead little man to state… “Shut up Woman, You always undermined me” Lol… He was deadly serious and I was now gobsmacked alongside the assistant and my fellow Christmas shoppers. Sensing a volcano brewing I grabbed our order said my thank you’s and good byes and got us the hell outta there.

I often wonder where he finds these lines… He really does take in everything!

So…  Meltdown avoided… Shopping was a success 🙂

Little Man had been bleating on about getting a smart phone (htc) I was a little reluctant given the price and his age… However I discovered the HTC was a lot like my iPhone (Which he doesn’t leave alone) He would be able to download apps and these applications could have a great impact on his communication skills. There are educational games, applications aims at children with Sen and autism, social stories and more. Also little man has been using music as a de-stressing tool of late. He can listen to music for hours… Sadly the same song or set of songs… Over and Over. The phone doubles up as an mp3 player… Something I was already considering putting on his Christmas list, so the HTC was suddenly becoming very appealing! After finally agreeing we got on the net In the search for one. My god these things are like gold dust at Christmas and things were not looking promising…. Till… One of our local stores emailed me informing me they had just received two in stock and would put one aside for us to collect in store that or the following day. Little Man did not stop begging for his present early… I admit he did my brain so much damage I almost gave in! It was so worth the wait as Christmas morning he was over joyed… So much so that he stood crying! I’m not talking watery eyes… I’m talking River Thames! His father stood shocked, turned to me and said… “Why is he crying, don’t he like now?” He really couldn’t get his head around the fact his son was reacting this way due to sheer happiness. All though it was fantastic to see him so happy (been a while) he didn’t seem to stop! He cried on and off every few hours, he sat staring at it. He spoke about it non stop to anybody that would listen and he took it to his room where he recorded himself announcing  bus destinations!

Other things he added to his christmas list were… Safety pins, magnets, handwriting pens, stapler, new padlock, bus picture, 2011 diary, and lots of stationary items!

After three long days awake (that’s me by the way) due to sleepless nights with little man, Christmas shopping and looking after the children throughout the day, and wrapping Christmas presents till 7.15 am Christmas morning had finally had a huge impact on me… I  fell into bed Christmas night at just past midnight. My bed was warm and comfortable… To me it felt like the best place in the world! After having had such a beautiful christmas day… I thanked god and happily entered the land of nod 🙂

Chessington the aspie way

31 Aug

The school summer holidays are almost over! to end things on a high we took the children to Chessington world of adventures curtesy of Merlins (Who we are most greatful to)
The day brought a mixed package of emotions but on the whole it was a great day. Little man did receive a ride access pass to avoid queueing, equally meaning this should aid the avoidance of meltdowns. However through this helped in a huge way, we did not avoid meltdowns completely in fact we did encounter a few.

First Meltdown: Before leaving.
Second Meltdown: Within 30 minutes of arriving at the park.
Third Meltdown: During the Journey home.

Although the above meltdowns are never easy and will be tough on all concerned they were bearable and easier to tackle compeared to some encountered in the past. These are what I refer to as Grade 2 meltdowns. it’s the grade ones that I really can’t bear!

Well from our own experiences, I would like to share some top tips. Looking back at the time leading up to our trip, the journey, and overall day, I think these tips could be extremely beneficial to any family like ours planning a day at Chessington world of adventures.

THE LEAD UP TO YOUR DAY OUT.

a) Adjust schedules and timetables as needed.

b) Prepare your child for the trip well in advance. We began this process weeks before. This enables the child time to adjust to the idea and prepare themselves mentally. (sadly they may also go on and on and on)

c) Avoid postponement where possible.
we had to postpone hence reason for meltdown number 1:( This is a disappointment for any child! For those on the spectrum it’s a disaster. You as the parent will pay the price.

d) Be sure to have the right documents for a ride access pass. New regulations state Photo ID is needed and proof of disability that relates to a condition that makes it hard for the child to cope with the concept of having to wait/queue.
We used a osyter 5-10 card and little mans writen diagnosis. More information can be found on the website.

e) Look online for any offers that can be used in the park. Some sites offer vouchers that enable you to receive 20% or more off food and gifts brought in certain food halls and gift shops within the park.
Note! Food can be expensive and you may want to bring your own.

f) prepare child for queues. Yes you can obtain a ride access pass but you will still need to queue for use of toilets, food outlets, gift shops e.g. My little man often pushed his way to the front while holding his arm in the air displaying his bright yellow wristband. He was shouting: “Clear the way, I have a wristband and don’t have to queue” Yes not ideal and a tad embarrassing.

g) Download a map of the park. if u have an iPhone or blackberry download as a PDF file. Maps can be picked up on the day but by doing it this way your child can familiarise themself with the park and it’s contents (Worked for us)

h) Check travel updates. Driving? check traffic update before leaving. If like us you use public transport be sure to check departure times of trains and buses. Long waits at busy stations are never easy.

JOURNEY TO THE PARK

a) Don’t even think about exploring the stations M&S or WH. Smiths. This didn’t go down well with little man.

b) If your child is like mine a transport enthusiast then be prepared. Once on the train little man beeped all the way there, pressed the button opening the train doors at each and every station, repeated all the names of the stations we stopped at, and took notes on the route for use later (AT HOME, AT 3AM)

ONCE AT CHESSINGTON

a) We had curtesy tickets meaning no long queue at the ticket sales at the gate. I suggest you order your tickets online. Pre-purchased tickets can be sent to you in advance meaning you two can avoid the massive ticket sales queue. If this isn’t possible be sure to arrive early.

b) Once inside head for Market square where you will find the admissions & information office. This is where you obtain your childs ride access pass (wristband) You are required to show your documentation before the child is fitted with the wristband. I found the staff most helpful and very understanding. (Ride access enable your child and between 2 to 4 carers to enter a ride via the rides exit area. This means the child avoids queueing. This is only for adults and children who don’t fully understand the concept of queueing or just can’t cope having to do so.)

c) While at the admission centre do get your child/children measured. Some of the big rides require you to be aleast 1.4 meters tall. We didn’t think to do this when we arrived. Little man spotted a ride that required him to be 1.4 meters. He just reached the top of the measuring stick but only because his fluffy hair encounted for aleast 3 inches. Me and the member of staff who was measuring him could not help but laugh when I pointed out just how lucky it was his father had not given him a hair cut. After much debate on Little mans part that consisted with a few worries “Does this ride ever break or get stuck?” followed by “what’s the odds out of a 100 of the ride becoming stuck while I’m on it?” We were allowed down to the exit to await instructions to board. Just as we went to jump on another member of staff asked to remeasure the little dude! With that we were pointed in the direction of the Admissions centre for a prober measure up. We were then told to come back with a blue wristband to show he met the requirements of the ride. He had the largest meltdown of the day. He was shouting “I have a F***ing yellow wristband!!! I don’t want a blue one”
He then sat with his head in his hands on the dirty floor. I stood asking if everyone was enjoying the show and his father who came with with us was running for the gate.

d) This ride should come with a Warning! It should state the BUBBLE RIDE may cause sensory overload!
I assumed little man would love this ride. After all I did as a child. I didn’t consider the sensory impact it may have on a child with ASD.
Note: This ride would be ideal for sensory seekers. The things a person on the spectrum may find unbearable.
. WATER: Its a slow moving ride that is water based.
. SMELL: The changing smells of bubble gum, soap, to fruity pop amoung others were very over powering.
. NOISE: The loud music that changed suddenly each time the ride entered a different area was messing with my head, so it must of done a great deal more to little mans!
LIGHTS: The ride features strobe lighting. A warning sign is displayed to show the risk for those with conditions such as epilepsy or pregnancy.
This ride frighten the life out of my little man. We purchased the ride photo that showed little man covering his head with his arms with the fear of god in his face. Another child with ASD enjoyed this ride and was now having their second turn. I had got speaking with his mother in the queue for photos who was telling me how much her son loved it. So this shows it can go either way. Sadly for us it was the wrong way. (at least Little sis had fun)

e) Bring spare clothing or waterproof wear. As fun as those water rides can be! there is nothing worse then wet wringing children! (Note the park provides halogen heated booths, but my children would not go near them)

f) Make time to visit the Zoo and Sealife centre. We did not visit the sealife centre as little man was having problems with the small queue. The Gorilla house is fantastic and worth a visit.

g) Do not wait for all the rides to finished before heading to the gift shop (open for extra 30min after park’s closing time) We did this and were faced with huge queues and a very crowded gift shop:( Stick to spending amount and do not cave with the added pressure from childs threat of tantrums.
I ended up spending way to much:(
Note: The best gift shop that offers best value for money (pocket money gifts) was the main Chessington Gift shop located in Market Square.

h) Leave before park closng time! Why? unless you want to be faced with huge queues for the bus (station a ten minute walk, little man cried like crazy as we promised the bus) Or a packed out very noisy train, that is very overcrowded? Then take my advice! We sat on the train and were surrounded by teenagers screaming and laughing. No wonder this was the reason for little mans final meltdown.

Yes we run into a few problems but we managed to still have fun. Little man loves rollercoasters and there were some smaller one like the runaway train. A train that’s a rollercoaster! Of course he loved it!

So there you have it! Chessington the Aspie way. I hope you enjoy your day, and with the help of my tips you get the best out your trip to chessington.

Obsessional Overload

14 Apr

So we are around a week and a bit into the school break. Alice will be returning to school on the 19th April with little Man returning on the 21st two days later than his peers as a result of his current Exclusion. I feel as if the return to school is a million years away. Little Man has kept us busy and to say his been a little demanding would be an understatement.  His routine has gone a little of the wall these past few weeks. Since his first exclusion I’ve noticed his sleeping is once again on a downward spiral . This is with the use of Melatonin. If he over rides it than we are in trouble for the night. No sleep results in a real pain in the back side for the day that follows. Like any human being a lack of sleep will always result in a lack of happiness! Yep he transforms into this walking time bomb. You want your head to remain on your shoulders than best stay clear of Little man when his in time bomb mode.

Over the past week I have again noticed an increase in his obsessional behaviour when it comes to buses. It has gotten so bad that all he wants to do is ride on the buses up and down the road we live on. The friends he has made lately have knocked and asked him to play. When he does he just seems to drive them loopy with talk of buses. I have noticed  a decrees in visitors since Sunday. He said he would rather study the buses where Jordan just wants to go park and climb up trees. Alex just wants to play fighting games. I just don’t want him to stop mixing with the friends he has made. It wasn’t easy for him to make these friends and to see them slipping away is hard. But then if they are real friends they will understand and be there waiting to play once the obsession settles. But kids will be kids and at  least he isn’t being bullied for his obsessed ways. He really has been on a bus mission from the moment he wakes up till the moment he sleeps. I’m hoping it wont get in the way of his learning at school but then again he isn’t doing much of that lately.  lets just hope he can do a full week without exclusion. God he needs educating and I need a break. I’m not going to feel bad when admitting that. I’m not super mum and don’t we all feel this way as we near more to the point of the return of school?

Fighting yep there has been a fair bit of that happening at our house these past couple of weeks. Little man and his sister are at it consent. Well it feels consent. I’m sick of hearing my own voice telling them to give it up. Any little thing they end rowing. Little man is so controlling and becomes so angry if she don’t play by his rules then all hell breaks out. Marriage! I feel sorry for the woman who marry my Little man. Ok I wish him love and happiness in his adult life but he is gonna drive them ladies crazy. Everything has to be done his ways, His way or no way. Alice seems to give as good as she gets lately. Can’t blame her as she spends so much of her time being bullied by her big brother. She told him if he carried on she would poke him in the eye! He laughed and said go on then. Well to cut a long story short she did. He stood shocked with his month open before leaping of the sofa and chasing her up the stairs. Um yes good times.

Yes it really has gotten to that time where I’m longing for them to go back to school! Never mind little mans routine suffering mine has disappeared. I’m just hoping for a smooth reintegration back into school. Or mummy could end up becoming a little insane!

IT’S ALL ABOUT AUTISM & ASPERGER’S

14 Oct

How many people in this world can tell us what the word Asperger’s means ? It’s shocking that despite the high percentage  of people now diagnosed as having ASD, It’s still not known or it’s just greatly misunderstood!

ASD stands for Autism Spectrum Disorder. Asperger’s is a high functioning form of Autism that is on that very spectrum. Being a mother of three beautiful fantastic children one in which has been diagnosed as having Aspergers is an amazing experience for me. I love being a mum and feel it to be my life’s purpose! This blog has been created as place I can express myself, Get heard, raise awareness, stress rant and rave ( some of the time 🙂 ) But most importantly a place for me to share this amazing boy who has this gift, The boy I’m so proud to call my son! Having a child with Asperger’s or ASD doesn’t mean the end of the world! Far from it! God it can be hard and at times you feel like screaming but it’s also incredibly rewarding. ASD is not an illness but a condition. If you look for a cure I’m sorry but I don’t believe you will find one. My advise to you would be embrace and love your child. Aspergers can be seen as a gift! There will be many battles to fight and problems to resolve but there will also be many times that your Aspie child makes you catch your breath as your heart melts with pride. That I promise you.

By writing this I’m reaching out to other parents and careers of Autistic children. Lets share and advise one another. Let’s keep talking! By doing so we create awareness. If we are not the voices of our children who else will be ?

IF YOU HAVE JUST TAKEN THE BIG STEP INTO MY WORD AND JUST DISCOVERED YOUR CHILD IS ON THE AUTISTIC SPECTRUM. THEN IT’S MY HOPE YOU GAIN SOME UNDERSTANDING AND COMFORT BY READING MY STORY.

This post was updated on the 8th April 2010. This update included a name change and new image.
Glitter Graphics

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