Help a child with Autism communicate with the world they live in

So, I was on twitter recently (nothing new there I know) when I came across a very interesting tweet from one of my new followers.

The tweet in question contained a link to a very interesting website and article focused around a campaign that is aiming to help children with autism by providing them with a way to communicate with the world they live in! Here’s how.

With your help a child with autism can be given the tools needed to better communicate their needs, making the world a much easier place for them to live in.

The charity making this happen is “Hearts & Minds Challenge”

They don’t need you to give funds, they don’t want your money, all they need is your old mobile phones, even those that are no longer working!

Here’s what the charity had to say!

Once upon a time, a mobile phone was a status symbol, a way to tell the world that you were so important that people had to be able to reach you all the time. Nowadays a mobile is a necessity, but we still like to have the latest model with features that can improve our daily life.

Now; when you want to trade up your old phone, you could be helping someone with Autism to communicate their basic needs and for the first time, truly express what they want. And the phone doesn’t even have to be working to help….

Autism is a developmental disability which typically affects social interaction, imagination and the ability to communicate. Half of all people diagnosed will have severely delayed speech and as a result, can become frustrated, leading to behavioral challenges and social exclusion.

In the past, these individuals could be taught to use picture exchange communication or “pecs” a system of handing over a picture to request an item. Thus replacing that negative behaviour with a vocabulary of different pictures, all of which have a huge value to the individual. They are prompted to try to say each word and can slowly learn to speak independently with the picture system as support.

However, at least a 1/4 of all people diagnosed with Autism will have to use an alternative communication system for life, which can become very unwieldy as their vocabulary grows.
They must also rely on carers and therapists to update and maintain the system, so they never have independent control of what they want to say.

There are electronic picture devices, but the vocabulary is static, the devices bulky and expensive and the individual cannot express exactly what they want.

However, thanks to the development of a simple App, which recreates the picture system in a digital format, so called ‘non-verbal’ people can communicate exactly what they want on an Apple iPod or iPad. The Grace App, named after the little girl who inspired it is a basic picture vocabulary in a digital format which the user selects then shares to communicate what they want. Most importantly, they can actually add to their pictures themselves using the device camera, or google and save an image if they cannot find and photograph what they need.

Lisa, who created the Grace App says:
“Just because someone is not yet talking, it doesn’t mean they have nothing to say”

Lisa said the App has allowed Grace to express herself clearly and her frustration and tantrums, which could last for hours are now vastly reduced.
“Grace is also interacting with us a lot more, and I’m delighted to hear her using her own voice, as her speech continues to improve”

There are a lot of families that could benefit from trying out Grace or one of the many Apps developed to support the needs of people with autism – but they need the device to use it. This is a big commitment for a family who may have limited means, and a lot of demands on their income due to the pressures of raising a child with Autism.

Hearts and Minds are a charity with a mission to raise the quality of life of individuals with autism have come up with a scheme to turn old mobiles into new technology like the Apple iPad, while raising funds towards opening an Education Centre For Autism in Greater Manchester.

To help: Go through your drawers and cupboards and clear out all those old mobiles that are taking up space, contact the school and donate those devices in the envelopes provided. Not only will you be giving a child with autism the chance to communicate, but you will go into a draw to get your mortgage paid for a year – who wouldn’t like that?

Once I read the above I just had to write this post and share this great campaign with my readers.

I also found a great video on the Hearts and Minds website that really does share a strong message with the world on what a difference we can make by donating our old mobile phones. The video shows a selected number of children with autism using their iPad at home or in school. Attached is a message from the families of these children who state what a remarkable difference the iPad has made to their child’s life.

Warning… The video is a real tear jerker! I sobbed all over my iPhone!

I was actually about to write a sponsored post for a company that specialises in recycling mobile phones, saving the environment and making us a bit of extra cash in the process. Then I read about ‘Hearts and Minds’ who are not only saving the planet but helping a child with autism to communicate. Of course it’s Ok to recycle your mobile for cash, especially if you have little… We all need some extra pennies sometimes. But remember this charity are happy to take any mobile phone, regardless of the state it’s in… Broken, old, “a brick” it really doesn’t matter!

Thankfully my son is verbal and actually speaks very well! However he does have an array of communication difficulties and even for him such technology is a godsend. Little man attends a special school and as part of an OT programme he is now learning to touch type, his fine motor skills are very poor and his handwriting hardly legible. An iPad is on the Birthday list and it’s something I’d purchase with the knowledge of knowing that for little man it’s so much more than a fancy handheld tablet.

I hope that others will read this and next time they open a draw to discover an old dusty mobile they remember this post and therefore remember that for a child with autism that dusty mobile is a door that opens into a world of communication!

Remember families and schools wanting to register for the programme can do so over on the hearts and minds website

For more information on the programme visit Grace App or Hearts and Minds to see if you can help give a child with autism a way to communicate.

Disclaimer: This is not a sponsored or guest post. I have not been asked to write this and have not received anything for sharing this information. I have done so as a way to help a charity on their mission to help others.

Tad Auty.. A school excursion.

It’s been a while since I featured a guest post on the blog. I decided that I wanted to hear from those who had a deeper insight into the world of autism, but even more so Aspergers! It was a few weeks back when I received a friend request trough Facebook, by Tad Auty. Tad a 40-year-old Australian female who is on the autism spectrum (diagnosed with Aspergers), was also an active member on the Facebook page ABWA. I noticed that this Inspiring, clever lady was dishing out some pretty good advice! Members were gaining a great insight on what life was like for someone on the spectrum. I read a comment that Tad recently made on one of the treads on the group wall. It was started by one of our page admins who wrote about a social situations encountered by her young son who has a diagnosis of AS. Tad’s comment was a real eye opener for many parents reading it, Myself included. So with this I decided to invite her to write the next Guest post. I was delighted when she agreed, and with a topic in hand (School excursion) Tad got to work in producing the following piece.

I hope you enjoy! I know I did 🙂

Claire Louise

The remainder of this post is written by Tad Auty, a 40-year-old mother diagnosed with Aspergers and living in Australia.

I was asked to share with you, how I feel, how I see things…as a hope that it will help to explain how some of your children may feel in certain situations…

I’m a 40 year old female who was diagnosed with Aspergers at 33, after many years of depression and feeling like I was weird, wondering why, if I was good at jigsaw’s, I couldn’t figure out how to “fit in”. Why had I ended up being a divorced mum of 3, when I thought I was going to be a “Ologist” of some sort! (as a kid I went from geologist, to archaeologist, psychologist, anthropologist, theologise….anything with “ologist” interested me) Why was I so clever & strong in many ways, but SO DUMB in others, unable to do simple things that others can. Like be quiet! I had read about autism, (I had read about a lot of psychology as a small child, trying to figure out how I was “supposed to be”) but what I had read about autism, was all about non-verbal people. When I moved in next to Johnny, my eyes were opened.

Johnny was 4-years old when I met him. He wasn’t verbal, he flapped and shrieked and liked lining things up. My children loved Johnny and had a real gift at being able to play with him in a way that didn’t upset Johnny or get into his space too much. I would watch Johnny and was able to predict a lot of the time, what he was about to do. People would say “I wonder why he does that?” and I would reply, “Well I can’t be SURE, but I did that too, and it was because of…..”

Johnny only ate certain shaped and coloured food, and you couldn’t changed brands on him…..I would say “Of course you can’t change brands!!” Johnny would line up blocks and not let others join in. People would say “He wont let you join in”, but after weeks of watching, I worked out his pattern and system! I knew I had to drag the block on the carpet in a perfect straight line, then lift it to my lips and brush it across them, then slide the block back in a straight line along the carpet. I was so nervous when I tried it, as he watched on about to shriek or disengage at any second, but he watched on, and then saw what I did, THOUGHT about messing all the blocks up (as he does when people ruin his rituals), then he paused, looked at me again (like he was saying, “oh she has made such an effort to do it right, I will let her play”) and he went ahead and put his next block in place.

It was because of Johnny I read a (more modern) book written about autism. As I read it, I was thinking “same as me”, “that’s how I feel”, “OH so auty people can talk TOOO much!!”. I had the experience of relating somewhat to books on bipolar/schizophrenia/depression/eating disorders, etc…… But this autism thing, I didn’t just relate somewhat, it was like reading straight from my private thoughts and feelings. If I had to highlight the relevant parts, I may as well have dunked the book into a bucket of pink ink!

That was when I realised what was going on with me…And that I wasn’t alone. That Johnny and I were alike for a reason, (though so many judge him as being low functioning, because he is more disconnected from the world of people than I am, I do not like the high/low functioning label, as I think it’s a value judgement. If our society was different, and didn’t expect people to all be the same, Johnny would be valued EVEN if he just wants to line up blocks and sit on a hill in the wind in a breeze! He is functioning quite well in his own way, and is a happy person most of the time:-)

I went off to see a Psychologist who specialises in autism, and was diagnosed not long after. Life has been a lot better since. I still have the same brain, but I understand how it works now. I understand more now how NTs work too. I have learnt how to realise what “feelings” are and talk about them when required. And though I still have struggles with feeling disconnected socially/emotionally or frustrated with my neurones at times, I know now that I’m not a lone alien. I still feel like I’m from another planet, but it’s Ok, because there are heaps more of us here, and now I know that, I see them everywhere.

I thank fate/nature/God for introducing me to Johnny….and all of the advocating I do, I do for Johnny! Because he cannot speak for himself, and though I’m not him, I do empathise with him and his mum and dad….and all the other Johnny’s (and Sally’s) and their parents. I feel pretty useless at a lot of things, but words are my thing, and finally my private world, and my words, can actually connect me to people, help others feel less isolated, and likewise, I am less isolated, from meeting so many other great people who have felt this way too.

I decided to choose a memory from my teen years to share with you…
Something so simple to many people…. A school excursion, Something the other kids at school looked forward to.

When I started in year 7 (aged 12), I was a “mature, well-read, little lady”. (So one teacher said in my school report…. Gee I had her fooled) I drifted about school, had a few “friends” (I defined friends as “people who tolerate me”) who I sat near and tried to say the same things as. Outside of school I was a free child….I was more relaxed….I was a lot
happier around older people and my little boy friend from down the road. I didn’t have to pretend to be normal around the people at home. I was accepted as I was.

School was another thing though. Being a female meant I had to hang out with girls at school. There was too much negative attention for talking to boys…people would make it into something romantic, whereas I just wanted to hang out with boys because I found them less judgemental of me. I was one of the few kids at school who were actually there to learn! I liked school and most teachers! (MOST…the others suffered though :)) I would have been a very happy kid if there were no other kids at school…if the teachers were all there just for me! So when other kids liked to get to school to see their friends and looked forward to lunch breaks….I actually only looked forward to classes…and dreaded lunch breaks!

So I wandered about at school for years keeping up a facade of a perfect little robot….(I was never perfect at it though)….I was getting good marks, but I was suffering from anxiety, insomnia, self loathing, loneliness, isolation inside myself….I had no REAL friends. My boy friend from down the road, who had been my bestest buddy in the world since I was 4….. His parents won tatts lotto and they moved away. I had those “friends”, but their company very much replied on me conforming to their ideas and beliefs, so I felt I wasn’t being authentic.

THEN came along Sally! In year 8 Sally arrived at my very nice wholesome catholic school…she had a short skirt and wore makeup and had an ATTITUDE! But…I also noticed in class that she was very bright. She was also absolutely instantly rejected by everyone in the class, male and female, AND many teachers. I don’t know if it was that we were born only two days apart, or that she was outwardly expressing the depression that I was hiding, but I gradually befriended her. She was very untrusting and hesitant at first, but once she realised this little geek was for real, she and I became friends. (She said she was Fonzie and I was Richie Cunningham..I think I’ll a little Potsy and Ralph Malph too)

When Sally appeared, I had finally found someone who was witty and clever and questioning…someone who understood feeling left out or judged. We were quite the odd couple and my other “friends” told me I was to stop associating with her because of how she looked and her reputation. Though our schoolwork was great, teachers started separating us in classes. I think they didn’t want me “tainted” by her, but the truth was, she was actually helping me to speak and be myself. I wasn’t interested in going out and partying or chasing a heap of boys….. Poor Sally had abuse issues and was acting out her own thing. I wasn’t like that, so I didn’t go out with her outside of school. I would visit her house, but not when she had a party.

SO…..Our school excursion was coming up. The teachers announced that the camp would be divided into two groups who would go separately to camp. The teacher read through the list, obviously grouping people with their best friend groups…Except Sally and I. We were put into separate groups. I was put in with my “friends” from the year before who had been excluding me since I was still being a friend of Sally. I had never really looked forward to camps, but this one I was dreading now I was completely isolated. And it was very obvious the staff had gone out of their way to do that.

CAMP….
So first I have to face that horrible thing of getting a seat on the bus. People saying “No this seat is saved”. So I sat near the front…and could hear people speaking about Sally. Saying mean things….I knew she had issues, but what they said was off the mark. And they would say it loudly and would then say my name. I wanted to die. I felt nauseous and spoke to one of the teachers about geology to make myself block out the conversations behind me.

We were then put into groups for our rooms. Of course I was put in with the nasty little girls who the teachers thought “Would be good for me.” I chose a bed and was then told I couldn’t have that one… One of the “boss” girls wanted that one. I was put in the bed on the other side of the room. The girls were sometimes including me in conversation, but half the time I couldn’t tell if they were being mean to me or nice. They would say things about my clothes or hair…and then laugh and if I looked confused, they would say  “No I didn’t mean it bad” and then laugh again. These girls were sweet little Catholic girls…sweet to who THEY decided was “one of them.” The girls all wore heaps of perfume and sprayed deodorant constantly. I would have to hide my head under the blankets, which of course made them say things about me making a big deal out of nothing. (Nausea, headache, brain gone fuzzy…nothing to them maybe!)

Mealtimes were hell. I am still a fussy eater now, but back then I was even worse. I ate butter, not margarine. I didn’t eat fruit or veggies. I didn’t eat pasta. I didn’t eat rice. I didn’t eat anything other than meat and potatoes basically. The thought of having those textures or colours in my mouth made my adrenaline kick in and I’d feel sick and shaky. I knew how to not eat things….just leave them on the (contaminated by vegetables) plate, but sometimes, if the meal was spaghetti for example, I didn’t get to eat at all. Depending on which staff member I asked, some would say  “Too bad You get what your given so eat it” Which of course I wouldn’t. I had a nice teacher who would make me a sandwich if I asked sometimes. Otherwise, I had my secret stash of food in my bag that mum had packed. She knew I would need energy on camp, and she knew that I may not eat if she just trusted the school to feed me. Other kids would sometimes make a big deal about what I ate, or try to make me try things…..Or put other things on my plate to freak me out. There were always comments about me being fussy, like I was precious. But I didn’t want filet mignon! I was happy with a sausage in a piece of bread. I just wanted to eat and have no-one take any notice. I still hate dining out and avoid dinner parties…my friends only invite me if they’re having a BBQ :))

Then came the “camp activities”. Oh how I  hated those activities!!! One was called Ambulance…. Everyone had to jump on each other and hold onto others in a big knot of people…. Then the “paramedics” would try to drag them out one by one. I would just hold someone’s shoe on the edge and let the paramedic pull me out first. That was one competition I had no desire to win!!

Another activity, you had a short straw in your mouth, and had a lifesaver, donut shaped sweet, on it. You had to turn to the person next to you and lean in close and transfer the lifesaver to their straw in their mouth. The NT kids thought it was a riot! I would just drop my lifesaver and be out straight away on purpose. I hated circle activities with nowhere to hide and even just the part at the start when they said we had to hold hands to make the circle.

I DID enjoy one activity. I liked the small group discussions about religion/philosophy, inclusion, etc. The only trouble was, anything I said in the group, and the group may have even been really accepting of it or said it was good, I would get outside, and the next thing, those people in my group had twisted something I had said and the other kids were picking on me about it. So it wasn’t even safe for me to have a real discussion without the bullies wanting to use it against me.

The worst thing was “free time” though. This included a big mud fight once. I was holding someone camera so no one dragged me in, then I ended up holding all of the cameras (and taking the photos, which is actually how I started to become a photographer seriously, I learnt that if you TAKE the photos, you are never in them 🙂 AND people don’t push you around if you are holding the cameras, AND if you make sure the photos are good, people will ASK you to do it again!

Other free time activities that I was petrified of were boy/girl pairing off and kissing, etc. I saw how girls were picked on if they said  “No”, but I wanted to say No, but I didn’t want to be called “frigid”, which was the BIG insult, so I made up a fictional boyfriend. SO instead of being called frigid for saying no, I suddenly was being labelled a tart! (And I didn’t even kiss a boy until 4 years after this!)

Off to bedtime and I have to lay and listen to the other girls talk as I go off to sleep. When they think I’m asleep, they proceed to whisper about me and how I don’t eat certain things, what I said, how I didn’t want to kiss the boy, etc. I was crying and dying inside and just wanted to be at home! Sisterhood! Phooey! Not if you’re not a full blood sister apparently!
This was the last school camp I went on. They allowed Sally on one camp with me…where there was no choice, so I went to that one. And even enjoyed a lot of it. There were still those same moments…..People are people. There were still bitchy comments occasionally, and awkward moments for me when I had to hide for a while, BUT when I had Sally there, half my anxiety was gone, because I wasn’t alone. Alone we are far more vulnerable to bullies. And bullying isn’t always obvious…Especially with girls. They can be amazingly evil with just a look or using they’re networking skills…. I wished I’d gone to a boys school, but I know they wouldn’t let me in 🙂

(Sally Update: Sally is now a lawyer and high up in law enforcement. She is far more successful, together, happy and wholesome than those who judged her…Once she was an adult, and got past her abuse, she did well. The others, once they got out of school, started wearing mini skirts and lots of makeup 🙂

Tad Auty

Do you have a comment or question for Tad? Do you wish to find out more about this  amazing woman, mother, Photographer, advocate, & writer? Feel free to leave any comments or messages for Tad and we will make sure she gets them.