Tag Archives: life

Life In The Spectrum Bubble

10 May

Maybe you’ve noticed, maybe you haven’t, that this blogger hasn’t been the most active these past few weeks? I’m not being lazy, experiencing writers block or falling behind! No, I’ve simply been taking time out, working on other things!

As a parent, especially to one on the autism spectrum you sometimes feel as if your whole life is taken up with social skills training, advocating, battles and special interests. You find it difficult to shut off your mind, think about anything else, take real time for you, yourself as a person.

This isn’t a good thing, we all need to just be ourselves, doing some of the things we love from time to time. Its not that I don’t love parenting my son as I do his siblings, and it isn’t because I dislike blogging because, actually… I love it! I just needed a little me time.

Things at home haven’t been too eventful… If anything drama levels have remained reasonably low so I don’t have much in the way of news to report. Little man has been experiencing some sleepless nights (as usual). What’s worse is his been experiencing some awful toothache and this has affected him badly. He is very sensitive to this type of pain and is having difficulty coping with it. His senses are in overdrive, and with refusal to see the dentist I think we are both at our wits end.

I also got a letter from his school today threatening court action. Little man’s attendance is well below but when his refusing to sleep and then attacking me as I try to pull him from his bed of a morning it isn’t the easiest task to undertake. Its not that little man dislikes school because he actually quite likes it. However, changes such as new children in his cab, new teaching staff and friends leaving, makes little man want to shut the world out.

Between looking after little man and the toddler during the day, I’ve also been busy working on my own stuff. Myself and a friend have been doing some selling at bootfairs, vintage fairs and craft markets, selling mainly that of vintage items, jewellery and other lovely bits. I actually love doing this, especially during the warmer months. Not only does it raise some much needed funds but it gets me out doing something, meeting new people.

We have to remember that just because we are parents of children on the autism spectrum, it doesn’t mean we can’t have interests, time spent on other stuff! We should be able to do this without feeling guilty too.

I’m not denying that when your child is on the autism spectrum life becomes a bit more hectic, it does! However, you adjust and adapt, making routines and adjustments as best you can.

Its easy to find yourself stuck in the autism bubble, you’ve just got to pop it, remembering that before your child’s diagnosis you concentrated on other stuff! After all,its not healthy to do nothing but study the best therapies and educational resources all day long.

We are far better parents when we are more relaxed, free from stress and happy overall.

All my children need a sane mummy… And I’m just working hard to avoid myself becoming anything other than that! After all I’ve been there and it isn’t a pretty place!

#Silent Sunday

8 Apr

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UPDATE..THE BIG INTERVIEW

13 Feb

This is a update for my post new features.

The big interview… The date for the first big interview is 28/2/09 This is a feature i have been looking forward to. It’s always great to hear peoples stories. I love reading interviews regarding ASD. It’s gonna be fab as i will get to hear everybody’s views and personal experiences relating to the condition and as a parent to a child on the spectrum i think i could learn some stuff as there’s always something new to learn about ASD.

The first Big Interview is with Cale Irwan a young guy of 20 who is on the spectrum. He has the condition Aspergers! Cale tell’s me what life was like growing up with Aspergers. He talks about school life, sensory problems, motor tic’s and more.

This is a interview i advise you not to miss a must read and a great look into one boys life with Asperger’s.

Cale irwin’s interview 28/2/09

LOOK OUT FOR UP AND COMING INTERVIEWS. WANT TO GET HEARD? GET YOURSELF ON THE INTERVIEW LIST EMAIL ME AT

parkinson.claire@yahoo.com

A Angel by my side

24 Jan

Dear Nanny Peg
It’s been 9 long years since god took you away and I miss you like you wouldn’t believe.
Things down here are ok. Alice is going to have a birthday. And little G is being little G. I still find it a great sadness that you never got to meet them. As you know I found out I was pregnant with Giovanni a few days after you had passed on:(
I was so happy yet sad I could not share my wonderful news with you. Did you send him to me? I think maybe you did you were a person that always sent amazing gifts’ and that’s so what he is. An increadable gifted child.
Hearing he had Aspergers I didn’t no what life would bring. But now I do. Along with his little sister Alice they bring great joy to my life. I could never ask for more then this.
When G does something that I find hard to understand and I’m at my witts end I sit and think what would nanny Peg tell me to do? 9 out of 10 it works Thats why I believe you are a Angel looking over us and guiding us though this sometimes difficult life. I love and miss you so much but knowing you are a Angel shining your light on my children a light that shows them the way makes me smile a smile as well as cry a tear.
I love you nanny Peg
love Claire.xxxxx

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