Tag Archives: Child and Adolescent Mental Health Services

#HAWMC Day 2 – A NOT SO INSPIRING QUOTE

2 Apr

There is one quote that quite frankly gets on my Nelly … “An apple a day keeps the doctor away”

Why is this even suggested? Who made this stuff up? Come on, seriously, I live in a country where it takes a month to even get a slot with your local GP let a lone a CAMHS Paediatrician (Child Adolescent Mental Health Service) who is there to assist me with any issues or difficulties relating to Little Man, his Aspergers Syndrome, Anxiety and a whole other host of issues! “So… Frankly, who needs some piece of fruit?”

Yes, maybe I shouldn’t take such old wife tales so personally, actually I don’t! I’m pretty much able to disguise between what needs to be taken with a pinch of salt and what needs to be absorbed as reality, though this isn’t the case for everyone… this isn’t the case for Little man.

This is a child who mostly sees the world in black & white, without the support given from certain therapies he may just spend his days indulging in an apple a day only to get that sudden bump to earth when he actually requires a doctor to come his way and will they?

The likelihood of actually chocking on one of these healthy daily snacks seems more likely and yes the doctor would still be “Away” just when you ironically need him!

Of course my point isn’t related to apples, well not as such, its about services, much needed services that parents like me and thousands of others physically need to fight for! We deal with the hidden disability, the stigma nestled between child mental health and that of neurological disorders… yet here we are still finding our child stuck on a waiting list, one that’s so long it’s not surprising that when you receive the much awaited letter, your child’s out collecting his P45 and your at Bingo.

So, as I sit and watch the UK slowly slip down the pan, as the coalition destroy just about anything in its path I wonder how we move on from here? I basically want to know why a man who promised a better deal to those with disabilities, their families and registered carers, is now doing what can only be described as his “Best” to kick us to the curb first, in his mission to take over the country acquiring himself one or two well deserved nick names a long the way? Is there a game plan, this is politics after all! Surly he doesn’t think that making yourself into this hugely hated figure within society will get you any brownie points in the long run? Is it plain to see that he didn’t receive my vote?

See, now I’m running of course….

The reason behind such a sudden “Pop” directed at the UK Government is for the same reason most find themselves ticked off! As a member of this society, I sure am sick of hearing promises that quickly find themselves forgotten and buried within some dusty old file in the house of commons! As a mother of a child with Aspergers and Special Educational Needs, who fought for a statement of sen only to fight for that same statement to be amended! A parent who has endured the battle for her child’s right to an educational placement that can meet his needs, I was bitterly disappointed at the proposed “Green Paper” and worse the lack of progress since (well, public progress)! Yes, the LEA and Health Authority will now work together, families will be able to access the services “they can’t access now” till their child becomes 21! Lets not also forget that both LEA support services and those provided by the National Health Service will become readily available, what with the change in the assessment process! Remember this is for the benefit of those with disabilities and their families, nothing to do with government cuts and quick fixes at the expense of the most vulnerable! It will all be perfect wont it! Everything will be so much more efficient & faster this way, you may even get a little respite if your lucky … Blah… Blah… Blah… YES, We’re all still waiting?

So, “An apple a day keeps the doctor away?” Um, NO! Broken promises, shabby money saving cuts, and politics, that my friends is what keeps that doctor away!

This post was written as part of the #HAWMC, 30 prompts, 30 days, 30 post (this was day 2)

Check out the wego health facebook page for more info and a whole load more bloggers talented bloggers  the challenge.

When Special Interest become obsessive in children with Aspergers Syndrome

28 Feb

Special interests are great but sometimes pose a problem!

Its fantastic when your child diagnosed with Asperger’s syndrome has a special interest, one he/she can focus positive attention, gain enjoyment from and importantly, learn from. 

Little man, has always had a special interest in transport and although this often skips between trains, buses and the London underground, it always remains within this area. 

Little man also enjoys Lego since discovering how much fun it can be, this has become an additional interest of his. Though it should be noted that he does incorporate his special interest of the above, within his Lego play. He spends lots of time creating new models of transport, whether it’s a bus or a train, he could be there for hours. 

This however isn’t a problem, though his special interest in transport did reach the point of extremely excessive a year or so ago when he was back in mainstream school.

 I found Little man was constantly mimicking the transport announcements that he had studied and memorised to a perfection! He was also intensely interested in the mechanisms of transport, especially that of the bus doors. He would use his hands to act out the opening and closing motion and spent hours beeping, so much so that I could hear it in my sleep! No matter where we were, if little man saw sliding windows or doors, he would head straight for them, sliding them open and closed as to recreate the same motion of the doors on the bus. I remember visiting his doctor at CAMHS for an emergency appointment which had been organised because of the trouble he was having in school, his low self-esteem, the anger it was creating, along with a whole host of other issues which resulted from such difficulties. He spent the whole appointment sliding the windows of her office open, before bashing them back together in a loud distracting manner. His doctor could hear the beeping sounds he was making as-well as the monotone voice he put on as he mimicked the announcements normally heard when on a bus! Right there and then she drew the conclusion that his special interest had become somewhat extreme, and if such behaviour was getting in the way of life, it was time to limit it. 

This may seem, to some, an extreme thing to do! Why stop him from doing something that clearly makes him happy (after all, he was having the most horrid time in school). The thing with Aspergers Syndrome and special interest, is that these interest can actually restrict interest and focus in all other areas in life. Basically, his interest in transport had reached a point where he could no longer focus his attention on anything else! It was clear to see that this had become much worse since things had could hugely down hill at school, that lead his doctor to believe that as-well as engaging in his obsessions because he enjoyed them, he had also started using them as a coping mechanism. Not only this, we also established that the opening and closing of doors and windows, or just the hand mimicking actions he was displaying literally all of the time was also providing him with some degree of sensory stimulation, he was sensory seeking! 

 I found that during the course of that year, we spent more time riding on buses than I likely had in my 20 odd years off living! To some degree this had its  advantages, not only did the bus drivers know us by name, often allowing us to indulge his love for free (I’m guessing they guessed this activity was costing me a small fortune, plus it wasn’t hard to work out, that Little man, wasn’t your “Typical child”) but I also found this to be a good reward system, no good behaviour, no riding the buses! Of course when this happened, a meltdown on a huge scale would follow,and although I admittedly caved on a few occasions, I largely remained consistent, which is obviously that best way to be

 Little man did some amazing talented things during the course of that year, he could basically tell you where any bus was heading in London, doing so with such acuity. Although he had always been pretty good at this, it was now on a whole new level! My son was able to tell us what bus was destining for where, despite never having been on some of these bus before!

 It was incredibly hard to take the doctor’s advice and over time, limit the time he spent on this interest. This itself took strength a whole bucket load of the stuff. I used to find him wandering around the house at 4 am beeping away, worse he would be unravelling the toilet tissue around the house as to create a route for his imaginary buses to follow. I could lead him back to bed, but I couldn’t always keep him there, I couldn’t switch his mind off his interest, he’ll just lay there in the dead of night, recalling hundreds of buses and destinations from memory.

 It was only after he started his new special school for children with autism and aspergers and his discovery of the Lego brick, that I finally saw a dramatic decrease in these behaviours! OK, despite Melatonin of a night, his still up till the early hours, and of course he still beeps and has a run through of bus numbers, but it’s nowhere near on the same level it once was.

 The Lego gave him a distraction and another form of sensory play, while his growing confidence in himself as a result of his new-found happiness at school, are the reasons behind this reduction. 

 Little man’s interest in transport will likely always be his special interest, and probably that bit more obsessive than most people’s interest. However, now it is manageable and I couldn’t be happier with this!

  I even got asked by the bus driver last week, if all was OK because he hadn’t seen us for a while… Result! 

 
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