Tag Archives: carers

Wear It For Autism: Nominations Now Open

20 Jun

Has your life been affected by autism or do you know someone whose has? Do you know someone who is always putting others before themselves and deserves an extra-special treat? Nominate them now and they could be part of Wear It For Autism.

Wear It For Autism is looking for mums, dads, children and carers – who either have autism themselves or care for those living with the condition – to have a full makeover and take centre-stage in a stylish fashion event at London’s Vinyl Factory on Tuesday 10 September.

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Nominations are open now until Sunday 23 June 2013. Celebrity judges, including Gail Porter and Adele Silva, alongside Maggie Paterson, Principal of Pineapple Performing Arts Covent Garden, will select winners from across five categories – mums, dads, young carers, children with autism, and adults with austim. All the winners will be treated to a top-to-toe makeover by styling experts and take part in the Wear It for Autism catwalk show.

Anna Kennedy said: “The idea behind Wear It For Autism was to spoil those who usually never get a chance to treat – or even think of – themselves. Living with autism can be challenging and extremely demanding, so we wanted to create a special event that will be fun for all involved, as well as raise vital funds to campaign for the rights of those with this disability.”

If you know a parent, carer or child affected by autism, or if you want to take part in Wear It For Autism, nominate now at www.annakennedyonline.com

Tickets for the show are available now, priced £25 each. All profits go to the registered charity Anna Kennedy Online, which supports UK families affected by autism, including providing small grants for educational and domestic resources

Sponsor’s for the event are, Littlewood’s,Toni & Guy, Pineapple Arts, London Beauty Queen and Mahogony

From the heart of an eight year old

15 May

Today’s post is a very special one!

Yes, it really is! Today is the day I write and publish a very special interview, one I’ve contemplated writing for sometime now.

I wanted to raise some awareness, not only for children on the autism spectrum, but those children closely related to them.

Well, you can’t get much closer then a sibling, well maybe if that sibling happens to be a twin! But a sibling is the closest I’ve got  (no twins in this house)

My daughter is a very outspoken little lady, she’s eight and like many little girls her age, she’s sometimes a bit big for her own boots.

Still I have no complaints, my little girls a treasure, a real joy to be around (99% of the time) But as I’ve written In a very recent post, these siblings fight like cat and dog.

Little Man and his sister couldn’t be more different! Yes I love them both the same, just as I do my youngest, ‘The walking home-wrecker’, “No, his two young to be a ‘marriage wrecker’ but he is an eighteen month old vandal who I’m considering awarding an ASBO!” Of course I’m joking, then again ask me that when his feeding the DVD player ‘Whootis’ and watering the plants with fruit juice.

My point is, “IF I EVER QUESTION LITTLE MAN’S DIAGNOSIS BY ASKING MYSELF DID THEY GET IT WRONG?” I just look at the differences in the way my two eldest children interact, play or socialise. This corrects my way of thinking almost immediately, even when things do seem relatively ‘normal’ and the questioning sets in there is always something around the corner to point it out.

Well, as usual I’ve done enough rabbeting for one post! So, with that I will now introduce an even bigger chatter box, ‘Miss Alice-Sara’


AFTER WHAT SEEMS A LONG WAIT SHE COME’S FLYING THROUGH THE DOOR LIKE A WEST-END THEATER STAR!

Umm… As I expected, she’s dancing around, flicking her hair and striking a pose. A gentle reminder from mum ( yes, that’s me) reminds her this isn’t television.

Mum: So,  if your finished giggling Ally would you like to start?

Alice-Sara: I’m finished, just one last *giggle* That’s better! What you waiting for mummy?

Mum: *cough, cough* shake head, ready now are you Ally? Right… Can you please tell me what your name is, how old you are and what school you go to?

Alice-Sara: Well, My name is… ‘Alice’, I’m 8 years old and I go to XXXXXX Primary school.

Mum: Very good! So Alice! Can you please tell everyone a little bit about your family Alice!

Alice-Sara: what like who they are and that?

Mum: Well, who do you live with, do you have brothers or sisters? Remember the readers don’t know you, just me!

Alice-Sara:  Oh, I thought so! Ok, I have no sisters (rolls eyes, sticks up bottom lip and crosses arms). I have two brothers! A baby brother and a big brother, who is sometimes really bad! Well, most of the time actually! Oh, I’ve got a kitten, well, we have two kittens but ones my brothers, and guess what they were really scared but now they are getting used to us.

YES, ONE VERY EXCITED LITTLE GIRL WHEN IT COMES TO THE NEW ADDITIONS TO OUR FAMILY!

Mum: That’s really great Ally! So, do you remember why mummy asked you to do this special interview today?

Alice-Sara: Yep,  Sure do mum! It’s so I can tell everyone what it’s like to have a brother with Aspergers!

Mum: Yes that’s right! Do you know what Asperger’s is? Should mummy explain it first (Not like I expected her to agree)

Alice-Sara: No, no… I can explain myself! Well, Aspergers is something that makes you a little bit different, no I mean a lot. He can be very naughty for sure! It means you like buses, or something else like buses, you like it a lot a lot, and that’s what you like to play all the time….., Isn’t it Mum!

Mum: Yes, I see what you mean! Little man has a special interest in buses! That’s right Alice! So, anything else you want to add or are you finished?

Alice-Sara: Umm… Your brain is a bit different I think, and you do things in a different way (looks my way for clarification, to which I give a gentle nod) Oh, You can cry if someone is just looking at you, can’t you mum! My brother hits me if I look at him, he says I’m pulling faces!

Mum: Does he hit you a lot?

Alice-Sara: Err Yer Mum, you joking? You know he does! I sometimes get so angry that I want to burst open… I say things I don’t mean sometimes, like… I wish you wasn’t part of our family! But he always says horrible things to me.

Mum: Like what?

Alice-Sara: Well, I don’t want to swear mum, or am I allowed to so that I can tell you?

Mum:  No…. I’m sure there’s other names he calls you that don’t require any swearing! (though I’m struggling with that one myself)

Alice-Sara: I know! He sometimes calls me butt head and fat!

Mum: You know your not fat though Alice don’t you?

Alice-Sara: Umm… Yes…., but I’m not a butt head either you know!

Mum: I know your not! (Flash her a smile and she gives me a quick hug) So, what’s it like at home? Do you play with your brother?

Alice-Sara: Not so much anymore. We always have to play school’s but he would always be the teacher (she is really exaggerating her voice). He just shouts the same thing all the time, like, “SHUT UP AND DO WORK, YOU’RE NO GOOD! NOW GET OUT MY SCHOOL”  That’s not the only way I showed him how to play schools! (Big shake of the head with hands on hips lol)

Mum: What, you showed him how to play schools?

Alice-Sara: I teach him all my games, but he just bosses me about and always puts a bus in our game somehow, even when I say no”buses allowed!” I’m not allowed to stop playing when I’ve had enough but he just walks away and stops playing half way through a game, “Yer that’s so annoying” Oh, and he don’t say anything, just leaves! He goes of making that noise! (Again roll of the eyes and raises her eyebrows)

Mum: Noise………?

Alice-Sara: Yes, you know mum (she says in a very low voice, almost as if she’s whispering), the noise… he always makes… I will do it quietly because he will go crazy if he hears me, I’m not allowed to like what he likes am I! “Beep, beep ,beep ,beep… but a lot more fast, then he goes sussssh it’s the beeping of the bus doors and the noise they make when they open and close! He loves that! It gives me and mummy a headache sometimes, don’t it mum, don’t it!

Alice-Sara: Oh… Mum, mum, I forgot! He uses strange things to be the front of the bus, *giggle* He uses a spoon or pencil and holds it in-front of his face, Oh, one more thing… he uses mum’s sunglasses as the bus doors (her voice lowers and as she giggles that cheeky giggle she says, “He always breaks your glasses don’t he mum!”)

Mum: Yes, he certainly does Ally!

Mum: Ok, just a few more questions now Alice!

Alice-Sara:  Oh, I’m having fun 🙂

Mum: I’m glad! So, how about school! Does your brother go to your school?

Alice-Sara: Not anymore! He goes to learn at the library and gets to do fun stuff, *Huff* “I wish I could go to school in the library!”


Mum: You wont say that when your bored with no one to play with!

Alice-Sara: Yes I will!

Mum: Alice……

Alice-Sara: OK, OK, maybe not! I do have lots of friends in school! My brother was a little bit bad at school, but sometimes people were horrible to him and that makes him more naughty.

Alice-Sara: I do love him because his my brother! Mum, Is it Ok if I don’t always like him though?

Mum: Of course it is honey, of course!

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