Tag Archives: Aspergers diagnosis

Too little to late!

24 Feb

That school is driving me loopy. How can they say they had not received little mans written formal diagnosis when My copy says it was sent to six different departments within the school! Not only this but we had a meeting with the Sengo and little mans doctor. I’m a little angry and who can blame me as he was diagnosed well over a year ago and I have only just this past few months discovered little man wasnt receiving the support and services right for his condition. Anger, sadness and disbelief are just a few of the words that describe a few of my emotions these past weeks. I was shocked when I discovered that Lewisham education were taking me to court. How can they even consider doing so when they have done so little for my child. None school attendance for a five month period. Yer right. The school think its acceptable to mark the children in as absent if they are late. Cheeky ****** . Little mans attendance has improved a great deal but only due to me not through any help on the schools part. His well-behaved at school blah, blah, blah. It was this that almost stopped him being diagnosed. It made the process a whole lot longer. two stinking years longer. Thing is his been threatened with exclusion and they want him to be collected every lunch time. Wow is it just me or am I right in thinking that well-behaved is something that don’t seem to be occurring here. I told them that enough was enough I’m gonna apply for a statement. I had to laugh when they told me he would not get one without a diagnosis. So with this I marched down there with my copy of his diagnosis in hand to show the head and get it copied. His face was a picture. Now deny you have it. Since then little man came home with a letter it was an information sheet with help lines and information on ASD. There were events and workshops listed. I have already booked myself into these workshops as I saw them advertised on the net so please stop pretending to care as In my eyes it’s all to little to late!

Saw the solicitor yesterday Was pleased to hear that he was convinced we had a great case. This is fantastic as we still havent even gone through everything and for him to feel that’s our case is strong already at this point makes me feel a lot more at ease. He thinks that the school have not done right by little man and once it’s over we should make our own case for court. I’m In big time agreement with this idea. Let them see how it feels. Then again I can’t see them every being put through what I have. I was days from giving birth when they surprised me with a court summons stating that the case would be heard In just a few short weeks. I had to canceled how could I be expected to attend! I’m just glad that things are looking a little better and I’m hoping that once the 30th March has passed I can then begin the fight to remove him from his school and into somewhere much more suitable for his needs.

You can send as many letters and information sheets home as you please. As I have already said It’s all to little to late. All I ever wanted was the help and support in getting my son assessed, diagnosed, educated, statemented and most of all excepted for who he is. You let me down on all and it’s time to stand up and take note because if you think im gonna turn around and hide your so wrong. I’m gonna try my hardest to get my son and every other child like him his right to assessments, statements, support and services within the education system.

BRING IT ON! I HAVE A VOICE AND IM GONNA USE IT!!!

You gotta be kidding me!!

13 Jan

As most of you may already know I’m a mother of a 9 year old boy that has been diagnosed with Asperger’s. You may also have read in past post that over the last few years I have had many problems with my sons schooling. Well just when I thought things were finally improving they have become so much worse. I received a letter a few weeks back informing me that I have been summons to court for the time off school little man had last year. Are you kidding me! What a joke.  I was informed that as a parent of a child with a formal diagnosis of Aspergers I myself and my child would receive a great deal more help and more services would be on other to us. This has not been the case and to be honest I’m sick of the way my sons school have treated my son and my family. This stems back for a long time and I’m sure at some point I have mentioned just a few of the many problems I have experienced with little mans school life. Yes his attendance was not the best but this was for reasons beyond my control, reasons I feel could of been avoided if more help and services were on offer. At the beginning and the best part of last year I had problems with little mans sleeping patten. Problem was he didn’t seem to have much of a patten! Most will know that children on the autistic spectrum live their lives dominated mostly by a routine. Without routine things seem to go a little of the rail so to speak. But most will also know that getting a bedtime routine into place for a child with Autism/Asperger’s is also a pretty hard task in itself. Little mans bedtime routine was practically none existent. He had no issue with spending the whole night awake. I don’t mean getting up several times in the night I mean not sleeping till 5-6am in the morning. Yes this is a huge problem when he needs to be in school for 8.55am and so by 7 am it would be a good idea for him to be getting ready. But I could only dream. It would be a long and tiring ordeal to get him ready and into school. There would be screaming and swearing on his part that is and he would nearly always refuse to get up let alone get dressed. Let’s not forget I’m sleep deprived too. What also makes me mad is at least half of these absences are in fact not absences at all! More like lateness. If the children are in school past 9.15 am which is the time they shut the main gate meaning all children must report to the school office, then the child will be marked in as attending just half the day. They will lose their morning mark. But if there is a fire the school are well aware that the child is in fact in and not absent. So all the mornings missed are then added to make full days and then added to their over all attendance. Are you thinking what I’m thinking?? How in gods name can this be the case. This makes the case against me in court look a great deal worse. There was many days in which the children, I say children as I’m including my daughter have got into school way past 9.15 am. When I expressed my concerns to the school about little man’s refusal and reluctance to go to school and this matter making him and indeed my daughter overly late for school I was assured that bringing him rather them not bringing him was most  defiantly the best option. When I did the office staff were nearly always rude and made me feel like a naughty school girl. No matter how hard things become and how much I asked for help I still struggled on alone. I did however get our doctor to prescribe the natural medication Melatonin. This has helped but took time for everything to come together. We still had to get him used to the meds and settled into a routine. It’s only been since around the end of last year that huge improvements have been noted. And since then a large improvement has been made with little mans schooling in terms of lateness and overall attendance. However his behavior at school has taken a turn for the worse with many more letters and phone calls being made to me to report his bad and unmanageable behavior. This has to be due to the fact he is sleeping much better so has a lot more energy to get rid off though out the day. With this turn around I feel as if I have gone from one huge problem to another. At least at long last they see a different side to him. As It was fault that most of his undesirable behavior was happening at home and at school he was a more manageable child. I’m not pleased for his unruly behavior but now you must be able to see my parenting skills are not to blame.

So you may think that the improvements that have occurred towards the end of last year and this year would be enough to stop any future court action from going a head. Well it don’t look that way. I feel that after many meetings that have taken place and just as many promises that have been made I would be receiving some help with little man instead of having to stress about a court date right on top of just having had a baby. Why wont you just help me that way we both get what we want! Better attendance and most of all a better education for little man. Well with this latest kick in the teeth and a string of other problems and broken promises I have taken it upon myself to try my upmost hardest to remove my son from his current school placement and into one witch is better suited to his needs. A school that looks at helping the child achieve their goals and lead a full and happy school life. And this way he would be picked up for school and I can concentrate on getting my daughter to school on time. Yes sounds like a win win situation. You would think so! but firstly I have to get his uncooperative school to statement him. He has Aspergers and this is something that still has not taken place on their part. After a recent phone call with the new deputy head and senco of the school I was told much to my disbelief that she was not aware of him having Aspergers and she had no notes on the matter. She then went on to label him to be a child that suffered merely with behavioral problems and instead of one to one education and extra help he just needed to undergo behavior modification. This is the straw that broke the camels back! How bloody dare she. My son has a recognized fully diagnosed condition in which I am registered as his full time carer and have done everything in my power to work with the school and not against. It was not long ago you proceeded to say the problem behavior I reported was not a problem that you experienced with him in school hours and now he has a behavioral problem!!! Crazy cow.

With this I will deal with the court case and then seek advice on removing him with out delay. I think I have a solid case to do so. How is it that with a diagnosis of Aspergers my son receives no SEN at school he has no statement and worse still you have no record he was ever diagnosed despite the fact we have had meetings on the matter and  I have a letter from the school stating you have received his diagnosis in the post.

If anybody has any advise what so ever it would be greatly appreciated. I live in the UK and my son attend a mainstream primary school.

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