Tag Archives: April

What A Way Raise Awareness For Autism

10 Apr

A company called CARD.com, an online issuer of prepaid Visa debit cards have come up with a fantastic way to raise awareness for autism, with this fantastic new card design…

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Sadly its not yet available here in the UK (if it was I know I’d be snapping one up). Nonetheless, I really wanted to share this fantastic idea with you all, especially those of you In the states who can already access the prepaid card to purchase online now.

The card has this beautiful design of the autism ribbon and its a truly unique way to spread awareness, this autism awareness month and beyond.

Given We pay with plastic everyday – why not do so with a card that reflects something personal and important to you while making others aware of autism in such a unique way. A great conversation starter with the checkout girl at the local supermarket wouldn’t you say?

You can check out the card by clicking Here

Disclaimer: This is NOT a sponsored post, I haven’t been paid to share this content and have only done so as to raise awareness for a condition close to my heart.

My Child’s Diagnosis Didn’t Give Me Depression! The SEN System Did That!

7 Apr

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Its funny, Just recently I found myself engaged in conversation With a fellow parent at my daughter’s school. We were discussing depression, a subject I won’t hide from!

This parent reads my blog and is aware that depression has sometimes been a part of my life… More so than not.

So, if I’m ever asked a question I will try to answer it openly and Honestly. I’m not ashamed to say… “Yes I had depression” Why should I be? So, Having engaged in conversation for at least five-minutes with this lady I suddenly came to realise that there was some type of crossed wires on her part in regards to a depressive episode I experienced around 3 years ago! This started me thinking… Does everybody think the same way?

So I wanted to explain something, and do so very clearly! My son’s diagnosis of Aspergers Syndrome didn’t bring out any episode of depression within me. My child being on the autism spectrum has never actually left me feeling depressed! However, what has had me running for the antidepressants is that of the things that come with that diagnosis (like it being stuffed in a brown envelope and shoved in your hands). I’m not talking in relation to little man’s autistic traits, his sleepless nights or sudden angry outbursts! I’m talking about the battles to get others to sit up and listen. Basically, It wasn’t my child’s Asperger’s syndrome that depressed me it was the system in which I now found myself battling with.

You think a diagnosis is going to change thinks. The right help and support will come and be handed to you on a plate… Well dream on, it most certainly won’t! I learnt almost instantly, that for some, my sons diagnosis wasn’t worth the paper it was written on.

Over the years I’ve come to realise that being a parent to a child on the autism spectrum makes you a stronger person. It gives you fighting power, the type you never even knew you had! Because when your a mother its not only your job to ensure your child has everything they need to lead a full and happy life but the love you have for them that drives you. Almost any mother can relate to this regardless if their child is autistic.

Battling schools for appropriate educational services, educating society about autism and getting your child’s voice heard is all part of the package but it doesn’t necessarily mean its going to come with instructions, and I guess it was this aspect of his diagnosis that hit me the hardest.

Being told little man had Aspergers Syndrome was hard, I can’t deny it! No matter how prepared you think you are, you never are… Not really! Even when you’re told by specialists that its almost a certainty and you’ve therefore done all your own research and have reached the conclusion that “Yes, they are right… you can see it too!” I guess its because it makes it all the more definite, more final! But what must be remembered is that little man was the same child he had been the day before receiving a final diagnosis and I wasn’t depressed then!

Its all to easy to assume that the giving of a diagnosis is the reason why a mother crumbles and starts suffering such conditions as depression. What one must remember is that its all that comes after… The fight to make others do the right thing by your child, its this that can really drain your energy both physically and emotionally.

So if your about to receive that final slip of paper enclosed within a brown envelope, then brace yourselves… As the battle begins.

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Do you see what I see?

2 Apr

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I see a boy sat alone, yet smiling and playing

You see a loner, the strange kid, the odd one!

I see a boy frustrated, confused and distressed

You see a brat with no respect, no decent upbringing!

I see a boy stood talking, trying to make a connection, a possible friend. He gets it wrong because of something he said wasn’t seen as appropriate. His been left rejected and upset.

You see a trouble maker, a boy who is rude and makes it his mission to offend.

I see a boy walk into a busy playground, I then see parents like you shaking your heads as you rush to gather your kids. I now see a boy stood playing in a large empty space alone!

You see “That Kid” from before, the one who swore as he throw himself on the floor, shouting at children like yours for accidentally running into him, pushing him as they chased a ball.

I see a boy stood drawing a tear as he watches the school coach leaving!.

You see the boy who ruins it for others. you see it as a blessing that he isn’t attending the school trip. Beyond this you see nothing.

I see a gathering of mothers stood at the school gate laughing. I see the reaction they give as I’m passing… Silence whispers and staring.

You see that mother, the one who drags up her kids… Failing to install good values, respect and self discipline

I see a sweet boy who has the tendency to become easily distressed

You see a boy who throws a wobbler whenever he fails to get the things that he wants.

I see a boy excitedly speaking to others about his interest. He speaks quickly announcing all he knows on the subject. A boy who hasn’t yet released its his time to quit speaking .

You see a boy who dominates conversation, his rude letting no one get a word in edge ways. You see a bore, a child who is self obsessed and selfish… Spoilt and for that you blame me… The parent.

I see a boy who counts to ten before speaking a child who has learnt that this may stop him from potentially offending.

You see an odd boy, one who can only be described as slow and profoundly stupid.

I see a boy who cares about “The Rules” who therefore reminds his peers that those rules are not to be broken.

You see a boy who is bossy. A child who is likely raised by a control freak!

I see a boy who is actually very bright, he has qualities that others could only hope for. I see a boy who continuously tries to get it right. A boy who gets up every time his knocked down, never giving up, nor giving in. Yes he can be naughty his a boy after all. But should you gather your kids and run when you see him… No! why… what ever for?

You see nothing I see.. How could you ever see what I see if you refuse to look a little closer.

You can’t see autism, it doesn’t get stamped on the head of a baby at birth. But knowing just how autism can present is an education you need. With numbers rising there is a good chance the child who sits next to yours at school or even that work colleague you have drinks with on Friday is on the autism spectrum.

My child like many is capable of just as much as you or I. He is an individual, with interests, talents, weaknesses and at time difficulties… We all are as human beings.

Certain areas of his brain work somewhat differently making some areas of life more challenging… Social communication, sensory processing and black and white thinking are to name but a few! Yet that doesn’t mean he should be judged or discriminated against.

Its not the traits of autism that make my sons life more challenging but the way others perceive them traits. His happy with himself 98% of the time and just wants you to except him but more importantly… Understand him!

After all… Where does being “Average” get you?

So I ask you… One this day aimed at raising awareness for those with autism and Asperger’s syndrome. Do you see what I see?

Or Will you at least try to see it Now?

Are you Doing it for World Autism 2012

2 Apr

It’s here, World Autism Awareness Day and as promised today I’m doing it for autism by posting a picture while wearing something that resembles the autism awareness colours and holding up a card simply stating “Doing it for world autism” (yes, kids enjoyed creating the oversize mask).

This idea was one I put together quite late in the day but still remain hopeful that lots of you will take 5 minutes and snap and share a picture too? Bloggers can post them on their blogs to get the message out, as well as linking here, sharing on twitter using hash tag #worldautism12, share on the A boy with Aspergers Facebook page and anywhere else you fancy. What do you gain from it? Nothing other than the knowledge you took a few minutes to help raise awareness for children like my little man! You don’t even have to be a blogger just sharing your picture on twitter or our Facebook page means everyone can do it but only if they want too!

I’m hoping to collect enough images to create an awareness collage (You can see some old ones by clicking the autism college link in the blogs header).

So, what do you say? Everyone and anyone, whoever you are, wherever you are… Please help me raise awareness and stamp out the ignorance that surrounds us daily!

It will always be world autism day in our house and thousands others besides… Can you take five minutes to make it yours?

So… here’s my picture! Please don’t judge my smoking, it was one of those mornings, plus after Little mans refusal, I was simply filling in at short notice 🙂

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Look here comes the naughty kid

3 Mar
English: Subject: Quinn, an ~18 month old boy ...

Image via Wikipedia

You look at me, your eyes pressed firmly upon me, you do not look away, instead you stare that deadly stare, the one I hate but have to bare!

Are you sniggering? Seriously… Why? Isn’t it time you moved on by?

Shaking your head, Oh, that would be right! Don’t you think I’ve had enough of that tonight?

OK, you’re laughing now… is my child’s discomfort, confusion or happiness, funny somehow?

Leaving? You have an appointment to gossip down by the school, I guess you’ve never seen a child quite as rude as mine before!

Of course I understand, his party invite didn’t arrive, lost in the post you say, yer, that would be right!

He wonders why the children have gone inside, Little man now has his pick of the rides, but sadly the see-saw, he’ll not be able to try.

It’s OK, please there’s no need to explain, I understand, your child is not able to play at our house today, his bedrooms a mess, so his chores he must abide… another time maybe, how about when his 45?

Seriously ladies, he doesn’t bite, his actually house trained, though have a meltdown he might!

Shit… that’s a camera… you’re taking pictures… you twat! A zoo animal he is not! take my advice, go run and hide, because right now, I might shove that camera right up your behind!

God, yes I’m stress! Please don’t suggest…. what I might… Did you have sleep last night?

It’s an excuse, his naughty for sure, look at his mother, I say no more!

Off to the doctors… is Johnny all right? Catch it! I ensure you, that’s not right!

We live in a society where ignorance is breathed like air, one or too may sweetly smile, while others just stand & stare, never in their lives have they seen such behaviour before!

Now, You may have experienced the deadly stare from the eye of a passer-by, as your toddler demonstrates his new skill of throwing himself on the floor! Yes, I’ve seen it, daily in fact, I’ve heard the gasps of horror as my child sets about attacking the neatly stacked tins while on a supermarket binge. I’ve witnessed the shaking heads, the tuts, the suggestions from those who misunderstood the situation! I’ve explained, I’ve cried, I’ve stuck my finger up and smiled, I’ve dealt with it swell, I’ve dealt with it not well!

My child is a boy, an 11-year-old boy… who wants to be liked, his actually quite nice!

I’ve witnessed how a busy park suddenly empties on a hot summers day, the parent that grabs her child and runs away! I’ve lost friends, they faded, disappeared simply ignoring me, hoping I’ll go away

Ignorance is crawl, inflicted by those, young and old, those that don’t know you or worse, those that love you!

It happens… it will always happen! It’s called parenting a child with Aspergers Syndrome, more appropriately… Hidden Disability Syndrome! He looks no different, his ticks and traits, hidden within a mass of boyish ways, but make no mistake when they surface you’ll judge him, you’ll judge me, you’ll judge our life, our family, our values, opinions and sadly you wont stick around and realise your own silly mistake!

This April is Autism Awareness month, with the 1st of April being “World Autism Day” I ask, that on this one day… you see the bigger picture, you take this one day to Google the words Autism and Aspergers, you read with an open mind and an open heart, I ask that you leave the ignorance behind you!

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