Tag Archives: advice

MONDAY FINDS ( WEEK 7 )

3 Mar

Oh my what a week’ and it’s only Tuesday. Yes you heard me right! Tuesday! I am indeed posting my Monday finds post a day to late. Please forgive me people for this time I did not forget ( which im pleased to say ) it was more to do with the fact that not only did there not seem to be anoth hours in the day yesterday, it was also that when I returned home yesterday I sat on my bed and that was in deed the very last thing I remember. Sadly it was not the case for big G! little G was sick and kept him up alnight.

Ok so as I have always said better late then never. So here are this weeks Monday find.

Autism London

Providing support for those affected by autism and Aspergers syndrome. They offer a great service with a forum and lots of advice. Check out there site where you will be able to check out some of there activities and events that they hold. You can also check out there fundraising and volunteer page. All this and much more at

http://www.autismlondon.org.uk  Helpline 0845 603 7954

Aspergers support

Aspie community which you can join for free and if you wish you can remain anonymous. Benefits to join are groups, stories, confessions, answers and much, much more.

http://www.experienceproject.com/aspergers

Iautistic

A great find that offers free books, test, games for children on the spectrum, videos and much more.

http://iautistic.com

The national autistic society

Have a look at some of the society’s special events in aid of Nas fundraising events. Your chance to really do your bit and get involved.

http://www,autism.org.uk

The sound of learning

Open house 18th March 2009. Practical solutions to learning difficulties

Sense ability 5th March 2009.

Sensory difficuities associated with autistic spectrum disorder. Dates to be announced.

The sound Learning centre Asperger’s syndrome event. For information on these and upcoming events please visit

http://thesoundlearningcentre.co.uk  Phone +44 (0)208-882-1060

AND THE WINNER IS…

19 Feb

WOW I WON!

What a fantastic felling it is when you win something. I’m not taking about a win on the bingo although the money is wonderful! I’m taking about the felling you get when you win something for an achievement in something. That something takes work but work you enjoy as you fell it could be you that’s helping to make a difference’ Your helping others and at the same time you get this chance to express yourself and let it all come out. OK i should at lets fill you all in on what it is I’m rambling on about this time! Well i won! What? That’s not important! What is important is that the people that voted for me not only took the time to check out my blog but also felt it was me that should be the winner.

My blog’ This blog got down to the last 5 blogs in a public vote. Then I’m extremely proud to announce it went on to win. The bloggers competition was held and hosted by  the site Autism learning felt.  http://autismlearningfelt.blogspot.com  run and written by Tammy Lessick. My blog button is now featured on the Autism learning felt’s website in the sidebar for one month as my prize for winning the contest:) Thank you Tammy:)

I hope my blog has interested and helped others by me sharing my personal experiences within the world of the Autistic spectrum. I have got to know so many wonderful people through this blog. This alone has made the whole blogging experience a great one. Not only is it great when i get some really touching and uplifting comments but it’s even better when someone offers support or advice on something that I’m having trouble dealing with as they have been there lived it and have become to have a better understanding of the whole situation. 

As the blog has been going so well better then ever expected i have decided to create a website to link with the blog. Kinda funny i know as the website often comes before but that’s just me lol. 

So that’s it  I won and yes I’m proud’  that’s a fact! I’m me Claire Louise just a normal mommy, wife and friend with a huge goal in a small world! But if this blog brings awareness or comfort to just one person it’s one person more then there was ten miniutes before. That brings a smile to my face and I’m proud to admit that.

 

Thanks readers for your ongoing support with this blog:)

LOOK AT US NOW!

9 Feb

When i first heard that G was going to be assessed for ASD. I was both shocked and relived. If this is something you have just heard you maybe too. Once i had sorted everything out in my head the next step for me was to get educated on the subject and that’s what i did. I would advise anybody who has a newly diagnosed child of ASD or  those that think there  child could be on the spectrum should do this.

I found a great deal of information on the net. I also reed many books and spoke to other parents going though the same as me, my son and whole family. Once i started to research ASD i saw that things within the spectrum could be seen as gifts. There are many forms of autism some more high functioning then others. Aspergers is a condition on the higher end of the spectrum and Aspergers is the label given to G.

Once you know where your child is within the spectrum and you look at the reasons behind certain types of hard or unwanted behaviour you can then begin to avoid the upsets making your child’s life that little bit more easier. Ok not everything can be avoided certain sensory issues are hard to avoid but knowing what they are is a starting point. Lets not forget anybody within the spectrumof Autism sees the world some what differently from us.

There have been many times i have sat and cried but there are far more that i have smiled. When I’m on the net and i read forum post by parents of children with ASD and there so stressed angry and tired i think to myself that was me. Ok i’m not saying i never have them days anymore! I’m just saying it’s very rare i do. There is no cure for ASD i really don’t care what anybody has to say about that it’s just a fact’ But why would we want one anyway?

My point is before hearing your child had the condition they were the same child’ you loved them the same way you do now. The way i see it is your born with the condition the condition is what makes that child and your child is what makes the condition. If i asked for G not to have Aspergers that’s like me asking for a different child altogether. If you looked at us before and looked at us now! You would see how a understanding in Aspergers has helped in bringing me and my child so much closer. Don’t get me wrong we have always been close I’m close to both my children but G being close to me is different as it’s on his terms. Today it’s still on Giovanni’s terms but look and you will see he has opened up a little more as i understand him so much better.

My child is wonderful and yes my child has difficult times and yes he has at times got bad behaviour’ some non related to ASD as he is still human. But my child is who he is and i tell him never to be ashamed of that person.

Life doesn’t always have to be this hard there are many ways that we can make it easier for ourselves and children.

Melatonin in the uk

13 Jan

If your reading this and your from the USA I’m guessing Melatonin is something you may of heard about before. Melatonin is freely avaliable in health food stores across the US.
If like myself you are from the UK Melatonin maybe unknown to you. Reason being is Melatonin is infact a unlicensed medication here in the UK and is only prescribed on a special ‘named patient basis’
Melatonin is a natural substance produced in the pineal gland located
In the brain. Known as the hormone of
darkness Melatonin is effective in
People with visual impairment in
whom Melatonin prodution is disturbed.
Melatonin also helps children with
Autistic spectrum disorder like my son.
We have been advised to give my son
3mg 20min before bed. We started the treatment last night but my son still slept rather badly.
Can anybody please tell me more about the use of Melatonin and if it helped there children or not?

Time to tell

14 Dec

Has it reached that time when you have to tell your child that they have Aspergers? It’s a hard and upsetting task as me and my husband found out. Our son Giovanni took the news very well. He asked many questions (he needs all the facts) we answered them the best we could. I said mummy and daddy love you just the way you are. You have Aspergers but that doesn’t change a thing. As you are you. You are Giovanni Sarcone;)
When looking on the net for Advice I came across a fantastic blog. http://ramblingsofafrazzledmom.blogspot.com within this blog I discovered a post that was very moving but enjoyable to read this is the post that helped me when it was time to tell. Maybe it could help you too?
Super blog that I will visit again:)

A book from god

14 Dec

I have a few Aspergers books.
But Aspergers-syndrome by Tony Attwood is one of the best. Tony Attwood a clinical psychologist had written this book as a guide aimed at parents and professionals. The book has discussions, frequently asked questions, advice and suggestions on everything Aspergers. I really rate this book. It’s a must have for parents with children with Aspergers.

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