Tag Archives: ADOS

Understanding The Diagnostics Of Autism And Aspergers Syndrome

13 Jan

Today, when I thought about writing this post I had this strong urge to kick my own arse, as I asked myself the question… “Why haven’t I written this post already”

The Facebook page is now reaching numbers of 5,000 + and although that’s great, it still shows how many more children are being diagnosed as being on the autism spectrum, that or the high numbers of parents seeking a diagnosis and therefore seeking out advice on something they long to understand…. “The Diagnostics of autism”

Subject: Quinn, a boy with autism, and the lin...

Image via Wikipedia

This basically means the different tests and routes undertaken in-order to diagnosis a child as being on the autism spectrum, and it’s this I want to write about here today.

Firstly I should make it crystal clear that there is no set procedure, some places, areas and countries do it differently to another. However, the most important thing to remember before delving in any further is, “One child may be diagnosed in record time, another it may take longer, one child may only see two professionals whereas another…. they may meet hundreds!  

I’m situated in the United Kingdom and my son, now 11 years old, was formally diagnosed in early 2009 as having ‘Asperger’s Syndrome’

One of the common misconceptions made by parents (including myself) is when a child psychologist informs you that your child is indeed on the autism spectrum… you then understandably think you’re child was just diagnosed! Com-on, why the hell wouldn’t you, he just sat there and said it didn’t he? You’re child normally isn’t actually diagnosed and normally it will be a while till they actually are. I remember being told on my first visit, Little man was most likely on the autism spectrum with Aspergers Syndrome being the most appropriate title! Yes, he rambled on about coming back on this date to have this elevation & that observation done, but he said it… I bloody heard him! You’re child isn’t technically diagnosed till them words hit paper, that’s when it matters, that’s when it counts and means anything to schools and services in your local area! I learnt this the hard way, Little man’s mainstream school wrote it off completely, they proceeded to do sod all, that was in-till they saw it there in black & white some two years later! Remember it’s not always so long, actually it should never be this long! We had problems with certain doctors and the schools input didn’t help, we actually had to re-enter the waiting list when the person taking care of Little man’s notes was dismissed, meaning little man was missed completely. Anyhow… My point… when there is still testing to be done and you don’t yet have that paper with the title of any diagnosis, then the likelihood that you actually don’t have one yet… Is, well… quite certain!

Below I’ve posted some of the diagnostic tools you may come across if your child is being assessed for an autism spectrum condition or Aspergers Syndrome.

Aspergers Syndrome Diagnostic Scale (ASDS)

Diagnostic tool used on those between the ages of 5-18 years old as a diagnostic tool. 

Method: Parent/teacher questionnaire made up of 50 questions which are rated and therefore indicate the presence or absence of behaviour mostly associated with Aspergers. The scores give the tester an indication on the probability of a diagnosis of Aspergers syndrome. This is a diagnostic tool, though its rarely used alone when diagnosis a child with Aspergers The above test was one of the tools used for Little man’s diagnosis.

Autism spectrum

Image via Wikipedia

 

Autism Diagnostic Interview Revised (ADIR)

This is a diagnostic tool used on children aged over 2.

 ADIR is a structured 90 minute interview consisting of 93 items spit into three functional domains. The responses given are then coded in 8 areas.

 The test is to look for the early developmental signs of autism spectrum conditions including a child’s Speech and language, the way they communicate and interact, repetitive and stereotyped behaviours and intense interests. (This is another test performed on little man).

Autism Diagnostic Observation Schedule (ADOS) 

This is a diagnostic tool usually used from the ages of 2+ (commonly used on adults as well as children) professional play based observation done on an interactive format (child/clinician) 

 The test is used to assess the child’s social communication & interaction skills, imaginative play or creativity, stereotyped behaviours and restricted interest. It was the ADOS that finally lead to Little man’s formal diagnosis.

English: Subject: Quinn, an ~18 month old boy ...

Image via Wikipedia

 Childhood Autism Rating Scale (CARS) 

A diagnostic tool for children over 2 years.

 The test consists of 15 items rated on a 7 point scale. These items are made up from parental input/questionnaire clinician observations, other related reports and input (educational reports etc)  A wide spectrum of behaviours are assessed including those above and more. The test will establish three possible outcomes… not autistic, mildly/moderately autistic or severely autistic.

Gilliam Autism Rating Scale-Second Edition (GARS-2)

 A diagnostic tool usually used in those between the ages of 3-22 years of age. It consists of 3 sub-scales based on observation of frequency of behaviours such as, stereotype behaviours, interaction and communication, of occurrence and parental interview

Diagnostic Interview for Social and Communication Disorders (DISCO)

A diagnostic tool used for diagnosing children/people of all ages. This is a semi-structured interview schedule lasting some 3 hours with parents, other care givers, which is mainly used in assisting the diagnosis of autism.

YOU CAN’T PUNISH ME FOR BEING ME.

14 Feb

Stress, stress and more stress. My  three major words of the week. To say things have been a little crazy is an understatement, Its been a rollercoaster!

Been meaning to write this post since mid-week, but things don’t always go as you would like them to. All parents can tell you that autism or no autism! Well lets see, Where I begin this rant is beyond me. How about I start by filling you in on whats been happening with school ? Ok here it goes. I warn you all it’s not pleasant been a sodding nightmare to be honest.

Monday I receive a call from the school receptionist. Talk about speak to me like something you find on the bottom of your shoe . Well I’m used to her rudeness but  I wasn’t ready for what she had to say. WHAT!! You want me to collect little man but it’s only 2 pm. His doing WHAT ? Great bloody great! I’m told by miss rude that his swearing, being rude to adults, running out of school, playing football in the corridors, not following instructions and well I better stop there. I’m guessing you are getting the picture. I’m told this has been going on since lunch break ( He always has problems at break times ) His now sitting in the head teachers office and still not cooperating . I rush down there leaving my 9 week old son with a friend to find him running a muck. Oh my how has it come to this? I know something has to have set him off, something has caused his behavior to erupt in sure an extreme way, even I was a little shocked at his tone and lack of concern for my presence. We have tried everything says the head. I ask if his teacher is in or has another teacher been filling in ? Turns out his teacher is off sick. I knew their was a underlining reason for this don’t they see there always is! His frustrated, over stimulated and lashing out in the only way he knows. We talk a little outside the office Little man wont stay put and keeps opening the door and shouting silly nonsense to be honest I just wanna get him out of there now. It’s decided that tomorrow he would return as I make myself heard when I state yes his behavior seems to be bad and getting worse every break time! Yes he kicks of when his teacher is not in! and I know his rudeness is totally unacceptable. But very big but I must add, You have said a statement is not really an option so In my opinion neither is exclusion. With this we leave and myself and  Little man have a long firm chat on the way back home.

Tuesday little man returns to school his told he will need to face a punishment for his behaviour yesterday. Thing is he really don’t care! I have told them that keeping him in through the whole of break is not acceptable. Reason is it’s all the time I discovered he rarely ventures out to the playground. Not through choice but because as a punishment for something or another his to stay inside. Angry yes I am. Can’t you see open them eyes people , My son suffers from a social communication disorder he has ASPERGER’S for the hundredth time. Is attending school with asd a punishable offence? You can’t punish my son for being who he is its unacceptable and damn right disgusting to be doing this every day. If your playground and dinner hall assistants are not experienced in autism that’s not our faut it’s yours. I had a meeting with his class teacher and the latest in a long line of Senco’s. I’m sure I have spoken about this meeting in a pervious post, and this post is long enough as it is. Basically Senco tells me they have no written document of little mans formal diagnosis in their eyes there never was one ( a diagnosis that is) Shocking!!  his been diagnosed well over a year what a sham. So his been having no extra help at all. Then shock number two. A statement aint going to happen. Well assess him and we will see. No his to clever. He may not write his work on paper but will answer sums beyond his years by shouting out in class. But if his not putting pen to paper how is this relevent. I already know my son is a clever clogs but clever clogs sometimes need help to. A statement would mean an assistant could keep a watch full eye over him at break times. Or some one can work on a one to one basis with him and help encourage him to write his answers  down instead of just being verbal. It’s easy to see things could only improve. With this his behavior is band to improve ! No his to clever and even through they express to me his behavior is so unacceptable that excluding him could be an action they may consider taking in the near future his behaviour would need to be worse in order to statement! I KNOW JAW DROPPING REACTION FROM MANY.  Well it’s Tuesday 11. 30 am and I am just running out the door to attend an appointment for the baby. The phone rings. Have you Guessed ? Wasn’t hard was it! It’s the school . This time it’s not that receptionist but the head himself. His acting in the same way as he did yesterday and I don’t think it would be wise if I let him loose a lunch. Ok you want to keep him in no way! I have no time to discuss this now im busy with that I put the phone down  and in total disbelief I carry on with my day. 12.40 pm Lunch time he rings back. You will have to collect him take him home for lunch and then escort him back for 1.10 pm How the hell was I going to put baby in pram scoot down to school get him home feed him and return him all in 30 minuets. The school is just a few roads down but this is totally inconvenient so I say sorry but I’m to far away you will have to deal with him. I’m being taken to court for five months of poor attendance from june 2009. Now u keep trying to get rid of him. He excerpts im to far from home ( something I call a white lie ) but goes on to say excluding little man for lunch time everyday may be the way forward. Shocked I hang up and as I try to collect my thoughts my mind races, blood boils and I reach for my Mac to get some advice no way they can do that. I can’t  be expected to do that everyday. How could I plan my day around that. NO NO THIS WAS MY TIME,  THIS WAS MUMMY TIME, NO ONE WAS GONNA TAKE THAT AWAY.  NOT GOING TO ASSESS HIS EDUCATIONAL NEEDS,  HE DONT NEED A STATEMENT THEN DEAL WITH IT.

Wednesday 10th February 2010

Court date.. Stood in front of three magistrates and pleaded not guilty in respect of poor  school attendance of Little man and Alice.

Will need to get a case together and  a solicitor to represent me. I am told this offence can carry the prison sentence.

I read though witness statements from the Attendance & welfare officer and was horrified in discovering they have gone as far as  to twist the truth and even state I said and did things that had never happen. Like I told the support worker they assigned me from sage educational trust that little man has hallucinations after giving him his medication and would write math all over his walls! And In the 3 years she has worked with us she had never seen this behavior. OMG Number 1 yes I said he writes math all over his bedroom walls ( she has never seen his bedroom ) I however did not ever state that he has ever experienced hallucinations a rare side effect of melatonin ( I have also just discovered that it’s a side effect of his medication from the statement ).  Secondly she has visited me at the most 4 times. Where in Gods name has she got three bloody years from?

Trail date set for 30th March 2010 at 1.30 pm

Wish me luck

Petition for more services and support, SEN assessments and statements for children with autism and Aspergers in UK primary school’s.

Being feed up with all the above and a massive list of issues not listed I have created this petition for the prime minster Mr Gordon Brown. The petition has had a lot of interest from other parents and careers of children on the autistic spectrum. It is being featured on many social networks, Groups and autism forums. If your one of the many wonderful supporters that has signed your name or passed this link on to family and friends I thank you from the bottom of my heart. If we are not the voice of justice for our beautiful children who else will be. Lets do something now before it’s to late, they have grown up and as a result of poor education are suffering in the adult world.

SADLY ONLY BRITISH CITIZENS OR EXPATIATES ARE ABLE RO SIGN. HOWEVER PLEASE SHARE WITH OTHERS WHO MAY BE ABLE TO HELP.

Deadline to sign is 11th April 2010

Aspergersboy petition 2010

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