Archive | Obsessive interest. RSS feed for this section

Its All Smiles At Ours

9 Mar

Earlier this afternoon I was on twitter when I discovered a link to a competition from Lucozade. I had to enter as the prize was for two people to watch Chelsea train next week, followed by VIP match tickets next Sunday (Chelsea Vs West Ham) including a 3 course meal and champaign reception.

Little man was off school today as it seems that his now got the flu (the one I’ve had this past week)! When entering the competition, Little man commented, “You won’t win Mum, thousands of fans will be entering!” Well he was wrong, when I arrived home from the supermarket this evening an email pinged and there in the header were the words “Congratulations”

Little man’s face was a picture… He stood stunned before letting out a huge roar as he danced round the room, not letting the flu hold him back!

I rang the number in the email and had it all confirmed. I now have one very excited little man on my hands.
Admittedly I would have liked to hold it back for a few days but I was actually really excited myself and kinda blurted it out as soon as I read the email. Why might I’d liked to leave it a day or two before informing him? Well, his a kid like any other and he will drive me potty with his excitement I’m sure. Then again he is a child with Aspergers and I will need to prepare him for our trip so in many ways its great that I’ll have the time to do this…. Please no swearing at the match… No swearing at the match… No swearing at the match! Yes, his already heard these words a 100 times since we discovered we won!

So… Here’s hoping we can get one of his shirts signed after training. I have all my fingers and toes crossed as this would be a truly magical experience for him.

There are very little things that excite my son… Transport, WWE, Mindcraft & Chelsea FC are right up there in his list of top interests. Winning the competition is great because I know its something I’d never be able to afford otherwise and seeing the smile its created is the best Mother’s Day gift ever!

Look What I Found!

12 Feb

Little man has always had a very keen interest in transport from around the age of two. His now 12 and is still studying the ins and outs of trains and buses, though he also now loves WWE wrestling just as much!

Sorting through some papers yesterday I came across a card little man had made me when he first started school (mainstream year 1). He was around 5 or 6 years old at the most! Here it is below…

20130212-063546.jpg

He doesn’t really like to engage in art as he struggles with his fine motor skills so does almost everything on a computer. That’s why the above card is even more special to me. He has even coloured his picture, something he now refuses to do in fear of not being able to keep the colours within the lines of his drawing.

And look whats inside this cute train card….

20130212-063855.jpg

A lovely message to mummy (that’s me) though I think looking at the handwriting, it wasn’t little man who wrote it! Plus there is a very cute picture of the little man himself in the school playground.

Here’s a close up…

20130212-064124.jpg

I love unearthing these little hidden treasures. Children provide us with the most wonderful memories. This ones definitely going in the scrapbook!

Let Me Tell You About Matthew!

27 Jan

I only met Matthew a week or so ago, his not even really a friend of mine.

The story of how we met is an important, yet interesting one, that goes something like this!

So, it was late… Gone half past one in the morning. A friend was staying over at mine which meant she was able to watch the children while I dashed to the 24hr petrol garage at the end of my road. Now I don’t normally make a habit of taking late night trips to the garage, but there are times when a girl needs some chocolate and this was very much one of those times.

So… Moving on… Matthew who I was yet to meet, was being quite loud as he walked across the car park leading to the garage. I thought that maybe a couple of lads had likely drunk to much and were now on their way over! Well, I was wrong!

Matthew, around 20 years old, dressed in all the latest clobber (stylish trainers, jeans and a hoody) was walking with a middle aged man and a dog. By now I was busy trying to direct the woman on the other side of the glass window around the shop floor like some crazy lady as I demonstrated a string of erratic arm movements and silly actions in order for her to select the items that I wanted! (seriously, her face when I showed her 5 fingers indicating that I wanted 5 cream eggs was a picture.)

Matthew was now stood staring at me, admittedly, I did feel a little uncomfortable at first! Back at the glass window Matthew then started speaking to me. In all honesty, he wasn’t making much sense when he grabbed ahold of my arm while laying his head on my shoulder and requesting I take him home.

By now a reasonable length queue had formed. People were trying to keep their distance from Matthew who was now making his way down the queue asking those in it a string of strange &random questions mainly surrounding the topic of what car they were driving.

I looked at the guy with the dog, he smiled and shook his head saying… “I’ve just met the young lad can’t seem to shake him off” I nodded as I stroked his dog.

“How do you know his name?” I asked.

“He told me” he replied.

He then went on to state…

“Actually he wouldn’t stop talking about motoring, how certain vehicles are made, who makes them and so forth”

With that something clicked within my head…

“No…. surely not! No… I’m reading to much into it” I thought.

Now, I had paid for my items and should have been heading home. It was late after-all and I didn’t want my friend to worry but something inside me just stopped me from leaving.

Matthew was now stood by my side. He was telling me he was cold and asking for my coat. I explained that I was also cold and that my coat was designed for a woman and wouldn’t actually fit him.

At this point an extremely rowdy woman dressed in very little and so obviously a little worse for wear shouted “For Goodness Sake, he don’t want your coat his going to rob you, you silly cow”

Moving my eyes in her direction, my request for her was that she should simply shout up.

By this point I had decided that I’d probably been gone long enough for my friend to call out a search party so turned around and started to walk away.

The middle aged man and his dog were now ready to leave and I could hear him talking to the dog as he walked behind me. Suddenly I felt the sensation that someone was incredibly close to me. Before I knew it these hands just grabbed ahold of my shoulders. Throwing my whole body around I see Matthew!

“Oi Matthew, Get Off her” Cried the guy with the dog.

“What do you want?” I asked. Followed by the question… “Matthew.. Are you Ok?”

He was now crying, begging that I’ll walk him home. He then went on to tell me through muffled speech that the drunk lady had gone and told him to fuck off!

Something wasn’t right! Matthew may have looked the part, young fresh faced, nicely clothed with one or two cheeky one liners.

Matthew so clearly wasn’t drunk and if he was planning on robbing me I’m sure he would have done so by now!

As I took hold of his arms to move them from me (his grip had become tight and uncomfortable) His sleeve slightly shifted from his wrist and there it was… An ID bracelet. Taking his arm I held it into the light to get a closer look. “Matthew… Do you have autism” I asked as I looked up into his eyes only for him to quickly look away.

“Well, he can’t have!” said the guy with the dog who had come running to my rescue”

“He… He looks so normal” he said as he shook his head in disbelief. Yes, I guess he was displaying a certain amount of ignorance, though intentional this was not! Actually this man was one of the only people in that queue who actually didn’t misjudge him as a robbing thug.

I took out my phone from my pocket and punched in the numbers that were scripted on his bracelet. I then told him I’d be staying right there with him in till his mother had arrived to collect him.

Matthew seemed pleased with that idea and suddenly peace had been restored. We sat on the wall facing the car park, and as we were sat here Matthew went on to share with me his love in motoring. He was incredibly intelligent and had so obviously self taught himself well on the subject. In many ways he reminded me of my Little man.

Matthews mother was lovely. Turns out that Matthew was thought to have been in his room sleeping. She told me that Matthew had a diagnosis of HFA (high functioning autism) sadly he had never been given much support when in education and as a result his social skills were very poor. I then learnt that although Matthew Is capable of going out alone, at night he struggle as he becomes quite frighted. Regardless of this fact, he has such an interest in checking out the vehicles in the car park that he just goes on autopilot. Its only once he has indulged his interest that he realises how late it is and then starts requesting that strangers assist him home. His mother informs me that the bracelet is handy but he forgets his wearing it. It really was lucky I’d seen it as the last time this happened he had ended up spending the night be hide bars.

We walked up together. Turns out they live just off my road.

My friend looked relieved to see me alive and was just about to wake three sleeping kids to come look for me! Lucky for me she understood once I’d explained.

Let… This be a lesson to you all! You really shouldn’t judge a book by its cover.

Things are not always as they first seem… Matthew is proof of that!

Little Man Has Turned Scottish

12 Nov

Have you ever heard about those with Aspergers being able to change their voice (the way in-which they talk)?

I have, you see, I’ve been living with a child who has suddenly gone from English to Scottish basically over night.

His obsession with WWE and TNA wrestling is the cause. His favourite wrestler is Drew Mclntyre and he happens to be from Scotland.

The Little man started out by just copying his entrance walk into the ring, he then started to paint his face the Scottish flag and now his mastered the accent.

Now, I have nothing against the Scottish people of the world, I have many Scottish friends. However, the little man is not Scottish and although the accent is mastered down to a T, he is actually driving me loony speaking this way.

Yes, of course in the beginning it was a little bit funny (after all he sounds just like him)! But you really can only tolerate so much of it. His even using the voice when it comes to him requesting things etc. I don’t think his doing it at school… Well, I can only hope he isn’t that is!

Over the years Little man has spoken in a number of tones and voices, ones that he hears and then copies. For many years he would switch from his everyday tone of voice to that of a monotone one, as if he was a talking computer. His also had a strong interest in transport and would recreate the train and bus announcements… He always got it spot on. Now with his ever evolving interest in wrestling I was convinced it was just going to be the mimicking of the entrance and the actual matches… But this, this is just bonkers!

However, this type of behaviour isn’t one that is completely unknown with those on the autism spectrum. I decided to look into this more and had a look on google to see what I could find. I actually came across a conversation trend on “Wrong Planet” that was started by a 16 year old British girl with High Functioning Autism. She states that she is a naturally quiet person but when she does speak she speaks with a strong Irish or Scottish accent despite her naturally having a British accent. She states she chooses to speak this way and people now know her to do so.

There is also a section in a book wrote by Tony Attwood on this very subject. I took this quote from the Tony Attwood website … “My mother tells me I was very good at capturing the essence and persona of people. At times I literally copied someone’s looks and their actions. I was uncanny in my ability to copy accents, vocal inflections, facial expressions, hand movements, gaits and tiny gestures. It was as if I became the person I was emulating (p.22).

Being Driven Crackers

24 Oct

Wow… Little man is driving me crackers. This evening his done nothing but talk about wrestling to the point I’m almost smacking my own head against the wall!

His overly obsessed now, I truly never thought anything could come as close as his transport obsession! Obviously I was wrong.

The worst part is how his interest in wrestling is keeping him awake at night again. His back using the melatonin but as usual its not providing much relief. Worse still school inform me that his acting very out of character. It’s been reported that his been saying pretty bizarre stuff like “He would be more popular if he went to prison” this was said as he was asked why he was misbehaving… Another one of his answers was “He gets more respect and makes more friends this way!”

School enquired if it was his medication that could be causing such behaviours… I didn’t think so, but now I’m sat writing this I’ve come to realise that he does actually have more unsettled school days following a night on melatonin.

Anyhow… Back to the obsession that is wresting.

Recently little man discovered a competition on the Internet that is centred around his interest in wrestling. The good think is that the competition doesn’t only relate to his interest but also in that of literacy… Something he is actually reluctant to engage in.

In order to win his dream prize of meeting his favourite wrestler and watching a live show, he will need to complete a number of literacy and wrestling related tasks.This is great as it will encourage him to do literacy but he refuses to let me share it with his teacher. Yet, his literally talked about this competition non stop and has been demanding that we get started right away.

Last night I was in bed sleeping when I was suddenly rudely awaken at the crazy hour of 3.55 am by the little man. His reason for this was to ask me a question, one that apparently couldn’t wait until a sensible hour! The question was “Mum, How many people do you think will enter the competition and how much percentage does this give me off winning?” I swear if looks could kill… I was livid, not that the little man could tell because he just keep asking… On and on and on…

Its not only the competition that’s kind of grating within my slowing brain, its also the non stop noise that comes with having a wrestling mad 12 year old son. Sometimes I could swear we’re experiencing an earthquake (regardless of the fact we live in the UK). The banging and crashing about is just unbearable. I find myself screaming at the top of my lungs for him to cut it out but 99.9% of the time he cannot hear me above his own noise pollution.

I have heard the same tune, the same cheers, and the same sodding intro that all accompany his favourite wrestler into the ring a million times. If its not blasting through the TV speakers its being played full whack on youtube and if its none of the above you can bet your life on it that his mimicking every word therefore commentating the whole intro from memory.

I can look little man dead in the eye and tell him “Sorry son but I couldn’t give a monkeys backside about whatever his name is” yet he will take no notice, continue feeding me with not so fascinating facts on his favourite wrestler! I try to show an interest, I really do but actually it scares me to try as once I’ve started I’m quickly wishing I hadn’t as hours later I’m still trying to break free.

I dunno… Maybe as he ages these obsessional interests will be more self controlled. I hate the thought of him being a young man who totally dominates an entire conversation based around his own interests. Its just not healthy… He could lose out on friendships and relationships.

Nonetheless, with his great ability to learn combined with his social skills training provided by school, I’m hopeful that all will come good in the end.

Check out Little Mans wrestler inspired face paint…

20121024-025713.jpg

Aspergers and Birthdays

13 Sep

Well, it’s that time of year again! Little man is well on his way to becoming 12 and don’t we all know about it!

Now I love my son but what I don’t love is his constant banging on about his birthday… It’s driving me completely insane!

One of the traits of Aspergers Syndrome is that of obsessiveness.The tendency to go on and on about something of interest with no regard to the listener. Little man does this with his ‘special interest’ he also does this in the run up to his birthday! Now, I understand all children have the ability to become over excited about their birthday and most do! But for my little man this starts a little to early. His birthday is on the 1st October and he starts his birthday talk every July like clockwork.

This all starts with the searching and marking of items in the Argos catalogue. As his aged his discovered the beauty of the internet and now searches for his gifts on various different sites. Play.com and Amazon are just a few of the places he’ll look.

Over the past 2 months I’ve discovered at least 1 email per day in my inbox from the little man.The subject box always reads the same ‘G’s Birthday List’ I’ve actually had to create a folder just for his spam mail!

There does seem to be one or two differences this year compared to pervious years! He seems to be constantly changing his mind, going from one demand to the next! I seriously cannot keep up! Little man will normally get an idea of what he wants and then stick to it. This indecisive behaviour is something that combined with the constant birthday chatter is completely driving me bonkers!

Little man seems to have little concept of the value of money. Some of his requests have been dam right ludicrous when it comes to the cost. His requested everything from vintage slush puppy machines to real working shop tills. Then there’s the more “normal” requests like a Playstation 3 or a PC. These request are normally fine but money hasn’t been great these past few months and with a few weeks to go I’m hoping to get anything.

20120913-021832.jpg

I remember when the Little man’s birthday and Christmas list would consists of a lot stranger items than anything of the above. He would ask for batteries, padlocks and even fizzy pop. I’m sure regular readers will already know this from my past posts on the subject.

As for what we are doing for his birthday, I just don’t know! His Aspergers makes surprises a no go and the need for me to get my butt in gear and start pulling a plan together is a must. I’ve been wracking my brains tonight and I’m just not getting that big bulb going off in my head!

So, heres hoping that one goes off very soon, because before you know it, it will be Christmas!

Did you know it was just 14 weeks to go?

When special interest turn deadly

29 Jul

I like blogging, you like reading!

I’m a bit obsessed with twitter, shopping and art! You really love football and Facebook!

Admittedly some of us over indulge our sense with our interest, we spend a little to much time tweeting or playing a computer game when we could actually be doing something much more practical. However, we are fully aware of this naughty bit of pleasure seeking and therefore find ourselves eventually applying some self discipline. A good example of this would be a person needing to go to work, they may want to stay home engaging in whatever it is they love doing but they understand that this won’t pay the bills (that is unless the work is their interest)!

As some may already know, little man has very intense interests and these are what one would refer to as a “Special Interest” when I write about little mans interest I struggle to find the right words, especially ones powerful enough to create a visual picture in the readers mine. For these reason I often worry that those who have such little understanding of Aspergers Syndrome and special interest, may only ever really compare this to that of the above.

20120729-212516.jpg

Today I’m going to try and change this by telling the story of my sons special interest! The intensity and love he holds for such a subject. The high intellectual knowledge which he has gained from self educating himself on every aspect this subject has to offer. The smiles & laughter it has created as well as the comfort and sanctuary it has given him.

Yet as great as the above may seem like everything there is a downside, and like most things associated with Aspergers Syndrome there is no in between!

The Little man happily unrolled the toilet roll around the entire house, he was making tracks for his invisible bus to drive along. Little man was that invisible bus. He could visualise this as long as he had one or two props to create a front and back to his bus. He would use a spoon held in one hand for the front, and a pencil in the other hand to create the back! Let’s not forget the sunglasses he would use to recreate the motion of the doors a long with the continuous beeping sound he would make. He would walk around and around for hours, speaking in a monotone voice as he recreated the destination announcements heard on both trains and buses.

I would feel a degree of anger when people stated a child like mine lacked imagination skills. This needed expanding on so those who had no idea began to gain a better understanding. Yes, little man played the same game over and over again. He was mimicking something based on fact not fiction, yet his creativity was seen when he used imagination to think outside the box. Rather than play with a toy bus, he was the bus! How many children would think to use a spoon, sunglasses and pencil in such a way?

From the age of around 2 Little man started to show an interest in transport. This started with Thomas the tank engine, but having quickly discovered the fiction that surrounds Thomas he turned his attention to the real deal. As he grew he would try to suppress his interest within the school setting making them much more intense once home. His great love for the subject meant it was hard to engage him in anything else. There were many sleepless nights, it’s easy to turn of your child’s computer and demand they go to bed, but I was unable to demand little man switched of his mind. He would go to bed and just lay in the darkness randomly running through bus and train timetables and destinations, often beeping and recreating the motion of the doors with his hands.

Despite the late nights, constant transport chat I embraced little mans interest! When he wasn’t allowed on school trips we had our own at the London transport museum. We took random bus rides around the city and went to toy fairs in search of old rare models. But when things become very bad at mainstream school I noticed Little man becoming completely lost in his world of transport, the only place he felt safe! When excluded from school he would sit studying the various routes of trains, tubes and buses, he would not answer when called totally ignoring request whenever I made them.

Bus trips were no longer fun, he’ll police the bus, demanding passengers picked up any rubbish they dropped or removed their feet from the seat in front of them. On trains he would jump from his seat every time the train came to a stop, pressing the button to open the doors for those passengers getting off and on.

I also noticed that he would continuously slide open and shut his wardrobe door that featured a sliding door. The banging was hard to cope with especially come 3am when siblings were sleeping.

What worried me more, was the more emotionally stressed things became, especially within school, the more he would confine himself to the bedroom where the slamming would commence.

We eventually had an appointment with his paediatrician, we were currently in the middle of a discrimination battle with school. I had now removed Little man from the mainstream setting but was still looking for a special school willing to take him. The stress upon the family was apparent. It was during this appointment that little man discovered that the windows within the paediatricians office were of the sliding type. Of course he couldn’t resist to play with them and for this reason the paediatrician was able to see just how obsessive his interest had become. She wisely informed me that this was not only due to his very intense special interest but also a stress reliever, coping mechanism. We also elstablised that to a certain degree the repetitive sliding motion of doors or hand mimicking was a sensory seeking behaviour too.

It was only on this appointment did we discover how serious this was. A practice fire drill went off, little man is very bad with the high pitched noise one makes. He panics and becomes very unpredictable so when he didnt even look up, just carried on with the window I knew Little mans special interest was now deadly!

A plan was put together and I was given the hardest task of my life, to reduce and limit the amount of time little man spends on his interest. OK, I couldn’t switch of his brain but I would need to limit the other activities, especially the sliding of the doors. It was hard to be consistent! In many ways I felt half to blame. I had encouraged his interest but this is what I was always expected to do, it was always said to be a good thing! I don’t feel guilty anymore. I now understand that it’s important to support and encourage your child’s interest, what happen to little man was not my fault.

As the stress faded, once he found his perfect school, things did start to return to a more acceptable level. Now he likes Lego too and even stranger WWE wrestling has actually become his interest of choice. Yes he still likes transport but WWE is his special interest and in my opinion it’s a welcome change after 10 years.

20120729-212618.jpg

An Olympic Party with Hornby

27 Jun

Hornby are gearing up for the 2012 Olympic Games and invited myself and the kids to London’s biggest toy store “Hamleys” for a private party.

Having a child with Aspergers syndrome with an interest in transport, one who loves a good old Hornby train set meant it was an invitation to good to refuse.

My daughter had her friend stay over so and spent the day doing “girl stuff” So, this trip was one made by myself and two boys.

We arrived a little later than others, little man was busy checking out the underground, but when we did arrive we were greeted my the funky Olympic Mascot. The party was allocated in a side room and was decked out in British colours and Olympic cheer. Harley had his eye on the balloons as soon as we arrived (Thankfully he got to take one home even if he did let it go flying into the London sky a little after we left)!

Hornby had some fantastic new products on show, all released in celebration of the 2012 games. Little man loved the new Scalextric Velodrome Cycling Set which is the first and only of its kind. This has two miniature cyclist dressed in Team GB outfits that race around a Scalextric track operated by two hand held controllers. Priced at £69.99 it isn’t cheap but one of a kind.

20120627-231208.jpg

You can only imagine how exciting the range is for my Little man. His had a special interest in transport for as long as I can remember. His 11 now and although his finally acquired some additional interests in the last year (mainly Lego and wrestling) he still loves his transport, especially trains, buses and the underground so he was pretty impressed with these below.

20120627-231519.jpg

We had an awesome time at Hamleys, both boys were smiling as we were taken on a tour around the store. Sadly little man now hates having his photo taken especially in public but as you can see this isn’t the case for the two year old.

20120627-231736.jpg

Harley especially, was dead impressed to meet Wenlock (yes, the one eye mascot)! Hornby have been sure to included both the Olympic and Paralympics Mascots within some of its fabulous merchandise. This includes the funky Chocolate vending machine that little man is actually lusting after, as well as some fab 2012 Mascot key rings that are really heavy and well made (we were lucky to receive some of these in our goody bags).

20120627-233847.jpg

It was a really good day and we all thank Hornby for inviting us. If you want to check out the Official range of London 2012 products, pop over to their website and check it out.

20120627-234328.jpg

Disclaimer: I was not paid to write this post, but attended a party with the children to check out the new range and the children received a goody bag.

Half Term Battles

5 Jun

So yesterday was another one of those days. Woken early I had lots to do, firstly there were the kittens, two would be leaving us and although I knew we would all be a tad dishearten, there was one person in particular whom I knew would find the adjustments a little tough to take! Yep… The little man!

Little man was playing in the garden when the first kitten left… I thought it would be better this way! It wasn’t like he wasn’t aware he was leaving, he had said his good byes and gone of to play on the trampoline! Still preparing for the event didn’t make things that much easier and as expected Little man cried for a rather long time! He called me names, told me I was evil for taking his Bellas babies away!

The turn of kitten number 2 came and despite him knowing that we could visit this kitten as she would be living with my sister he still branded me a cat napper. “A cat napper indeed”

Change is always hard for little man, his become attached to these little furry balls of cuteness and his certainly been dreading their departure.

Children adjust, that’s what we are told, I know this is true we all adjust as human beings because we have to! It’s just that sometimes it takes the little man that bit longer and in the meantime his certainly not the easiest of children to live with.

During the early hours, Bella (the mother to the litter) is pacing, she’s crying and hunting for her babies! Little man showed no intention on sleeping instead informing me that he was cat sitting! Yes… Cat sitting! I dont know who’s worse, Bella or Little Man? I’m sure they both felt I was going to steal the remaining two kittens during the night as both wouldn’t leave the room and Bella was continuously carrying her kittens around the room before trying to stash them beneath my bed.

I do love the connection little man has with our cat Bella, yes it sometimes feels like a kick in the guts when he shows her more affection than me… His mother, but he just has a different connection with animals which in many ways is beautiful.

Another thing that seems to have affected little man is not only the half term but that of the extended bank holiday weekend. Like many of us tend to do, the little man is getting his days mixed up. The whole thing has thrown his body clock into overdrive… I guess it’s kinda of like jet lag. The half term can often be disastrous and the fact it’s another bank holiday today won’t help!

The queens jubilee seems to have taken over the television and the little man is getting somewhat tired of it. Plus it’s messed up the bus timetable so we will definitely not be going anywhere that requires such a mode of transport for the remainder of the day!

I would say that luckily the little man is now sleeping but it’s 2.30 pm and this just makes it harder for him to settle tonight! We often find any sort of bedtime routine that we have put everything into establishing goes to mush once any type of school holiday hits.

One thing the little man has been focusing on, which I guess makes him feel that bit more relaxed, Is that of his special interest. Transport and Lego are a bit part of his life and now his added wrestling to the equation his had plenty to occupy his Busy mind… And mine!
Admittedly he has been driving me a little bonkers with his Lego master pieces which largely consists of buses and wrestling rings and that of his constant re-enacting of wrestling matches which involves lots of banging and crashing (headaches are a continuous part of my life these past few days)! However his interest have saved us from any major meltdowns and have been my secret weapon for reinforcing good behaviour, so, yes they have their up sides.

20120605-191435.jpg

Here’s hoping the rest of the half term runs smoothly and we don’t face any back to school battles!

When Special Interest become obsessive in children with Aspergers Syndrome

28 Feb

Special interests are great but sometimes pose a problem!

Its fantastic when your child diagnosed with Asperger’s syndrome has a special interest, one he/she can focus positive attention, gain enjoyment from and importantly, learn from. 

Little man, has always had a special interest in transport and although this often skips between trains, buses and the London underground, it always remains within this area. 

Little man also enjoys Lego since discovering how much fun it can be, this has become an additional interest of his. Though it should be noted that he does incorporate his special interest of the above, within his Lego play. He spends lots of time creating new models of transport, whether it’s a bus or a train, he could be there for hours. 

This however isn’t a problem, though his special interest in transport did reach the point of extremely excessive a year or so ago when he was back in mainstream school.

 I found Little man was constantly mimicking the transport announcements that he had studied and memorised to a perfection! He was also intensely interested in the mechanisms of transport, especially that of the bus doors. He would use his hands to act out the opening and closing motion and spent hours beeping, so much so that I could hear it in my sleep! No matter where we were, if little man saw sliding windows or doors, he would head straight for them, sliding them open and closed as to recreate the same motion of the doors on the bus. I remember visiting his doctor at CAMHS for an emergency appointment which had been organised because of the trouble he was having in school, his low self-esteem, the anger it was creating, along with a whole host of other issues which resulted from such difficulties. He spent the whole appointment sliding the windows of her office open, before bashing them back together in a loud distracting manner. His doctor could hear the beeping sounds he was making as-well as the monotone voice he put on as he mimicked the announcements normally heard when on a bus! Right there and then she drew the conclusion that his special interest had become somewhat extreme, and if such behaviour was getting in the way of life, it was time to limit it. 

This may seem, to some, an extreme thing to do! Why stop him from doing something that clearly makes him happy (after all, he was having the most horrid time in school). The thing with Aspergers Syndrome and special interest, is that these interest can actually restrict interest and focus in all other areas in life. Basically, his interest in transport had reached a point where he could no longer focus his attention on anything else! It was clear to see that this had become much worse since things had could hugely down hill at school, that lead his doctor to believe that as-well as engaging in his obsessions because he enjoyed them, he had also started using them as a coping mechanism. Not only this, we also established that the opening and closing of doors and windows, or just the hand mimicking actions he was displaying literally all of the time was also providing him with some degree of sensory stimulation, he was sensory seeking! 

 I found that during the course of that year, we spent more time riding on buses than I likely had in my 20 odd years off living! To some degree this had its  advantages, not only did the bus drivers know us by name, often allowing us to indulge his love for free (I’m guessing they guessed this activity was costing me a small fortune, plus it wasn’t hard to work out, that Little man, wasn’t your “Typical child”) but I also found this to be a good reward system, no good behaviour, no riding the buses! Of course when this happened, a meltdown on a huge scale would follow,and although I admittedly caved on a few occasions, I largely remained consistent, which is obviously that best way to be

 Little man did some amazing talented things during the course of that year, he could basically tell you where any bus was heading in London, doing so with such acuity. Although he had always been pretty good at this, it was now on a whole new level! My son was able to tell us what bus was destining for where, despite never having been on some of these bus before!

 It was incredibly hard to take the doctor’s advice and over time, limit the time he spent on this interest. This itself took strength a whole bucket load of the stuff. I used to find him wandering around the house at 4 am beeping away, worse he would be unravelling the toilet tissue around the house as to create a route for his imaginary buses to follow. I could lead him back to bed, but I couldn’t always keep him there, I couldn’t switch his mind off his interest, he’ll just lay there in the dead of night, recalling hundreds of buses and destinations from memory.

 It was only after he started his new special school for children with autism and aspergers and his discovery of the Lego brick, that I finally saw a dramatic decrease in these behaviours! OK, despite Melatonin of a night, his still up till the early hours, and of course he still beeps and has a run through of bus numbers, but it’s nowhere near on the same level it once was.

 The Lego gave him a distraction and another form of sensory play, while his growing confidence in himself as a result of his new-found happiness at school, are the reasons behind this reduction. 

 Little man’s interest in transport will likely always be his special interest, and probably that bit more obsessive than most people’s interest. However, now it is manageable and I couldn’t be happier with this!

  I even got asked by the bus driver last week, if all was OK because he hadn’t seen us for a while… Result! 

 
%d bloggers like this: