I sit here today and I write you this post, a post that shares a very important message!
Don’t Give Up!
Too many parents tell me about the fight they currently face to obtain a diagnosis for their child. They tell me how others see them as uncaring because they are so eagerly chasing a label, one so many, wrongly claim to be unnecessary.
They tell me they just feel like giving up. They state the professionals have suggested they just wait a couple more years, see how things go!
They tell me they are tired, worn and lost.
I tell them it was the same for me… I state how I experienced the doubt, self judgement and sleepless nights! Then I tell them where we are at today!
Yes, I was tired… I don’t think I realised just how much till things had settled. I remember feeling that my concerns were looked upon as nothing but parental paranoia.
I remember wanting to scream out loud “Just shut up and listen” No, correction, I remember shouting this statement more times than I care to remember.
I questioned my own concerns. I felt that maybe I was going mad or worse that it was just me being a mother who was unable to do the job of parenting correctly.
I remember watching the months turn into years as I continued my battle, one that was just to get my foot in the Child Psychologist door.
In between there was issues, ones that turned into significant difficulties. More importantly, difficulties that could have been avoided or at least decreased in scale, if someone had just listened.
I did all I could do, yet it never felt enough.
School attendance fell, school phobia developed, but again, no one listened. Court cases and school attendance officers made my life more difficult and the fact I was found guilty and fined… Well, that just lead to my depression, lack of trust in the British justice system and great weariness in the operations of the LEA and everybody in it.
You sit there and think “Oh God, there really is no answer, no solution, no way to make them listen!” and as I started therapy I remember the endless tears that required my therapist to fetch more tissues. I remember the relief I felt, just to have someone… Sit… Just sit and listen.
Over the course of the battle, I saw my child become a target form both children and adults. I watched him change in personality as he tried to become someone he wasn’t… Someone who he thought he needed to be in order to be excepted.
Life is better now… I didn’t give up!
Little man has a diagnosis and this later lead to appropriate schooling and a much happier child!
You are the parent, you know your child. Don’t let anybody tell you differently.
Don’t give up!