Help a child with Autism communicate with the world they live in

3 Jun

So, I was on twitter recently (nothing new there I know) when I came across a very interesting tweet from one of my new followers.

The tweet in question contained a link to a very interesting website and article focused around a campaign that is aiming to help children with autism by providing them with a way to communicate with the world they live in! Here’s how.

With your help a child with autism can be given the tools needed to better communicate their needs, making the world a much easier place for them to live in.

The charity making this happen is “Hearts & Minds Challenge

They don’t need you to give funds, they don’t want your money, all they need is your old mobile phones, even those that are no longer working!

Here’s what the charity had to say!

Once upon a time, a mobile phone was a status symbol, a way to tell the world that you were so important that people had to be able to reach you all the time. Nowadays a mobile is a necessity, but we still like to have the latest model with features that can improve our daily life.

Now; when you want to trade up your old phone, you could be helping someone with Autism to communicate their basic needs and for the first time, truly express what they want. And the phone doesn’t even have to be working to help….

Autism is a developmental disability which typically affects social interaction, imagination and the ability to communicate. Half of all people diagnosed will have severely delayed speech and as a result, can become frustrated, leading to behavioral challenges and social exclusion.

In the past, these individuals could be taught to use picture exchange communication or “pecs” a system of handing over a picture to request an item. Thus replacing that negative behaviour with a vocabulary of different pictures, all of which have a huge value to the individual. They are prompted to try to say each word and can slowly learn to speak independently with the picture system as support.

However, at least a 1/4 of all people diagnosed with Autism will have to use an alternative communication system for life, which can become very unwieldy as their vocabulary grows.
They must also rely on carers and therapists to update and maintain the system, so they never have independent control of what they want to say.

There are electronic picture devices, but the vocabulary is static, the devices bulky and expensive and the individual cannot express exactly what they want.

However, thanks to the development of a simple App, which recreates the picture system in a digital format, so called ‘non-verbal’ people can communicate exactly what they want on an Apple iPod or iPad. The Grace App, named after the little girl who inspired it is a basic picture vocabulary in a digital format which the user selects then shares to communicate what they want. Most importantly, they can actually add to their pictures themselves using the device camera, or google and save an image if they cannot find and photograph what they need.

Lisa, who created the Grace App says:
“Just because someone is not yet talking, it doesn’t mean they have nothing to say”

Lisa said the App has allowed Grace to express herself clearly and her frustration and tantrums, which could last for hours are now vastly reduced.
“Grace is also interacting with us a lot more, and I’m delighted to hear her using her own voice, as her speech continues to improve”

There are a lot of families that could benefit from trying out Grace or one of the many Apps developed to support the needs of people with autism – but they need the device to use it. This is a big commitment for a family who may have limited means, and a lot of demands on their income due to the pressures of raising a child with Autism.

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Hearts and Minds are a charity with a mission to raise the quality of life of individuals with autism have come up with a scheme to turn old mobiles into new technology like the Apple iPad, while raising funds towards opening an Education Centre For Autism in Greater Manchester.

To help: Go through your drawers and cupboards and clear out all those old mobiles that are taking up space, contact the school and donate those devices in the envelopes provided. Not only will you be giving a child with autism the chance to communicate, but you will go into a draw to get your mortgage paid for a year – who wouldn’t like that?

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Once I read the above I just had to write this post and share this great campaign with my readers.

I also found a great video on the Hearts and Minds website that really does share a strong message with the world on what a difference we can make by donating our old mobile phones. The video shows a selected number of children with autism using their iPad at home or in school. Attached is a message from the families of these children who state what a remarkable difference the iPad has made to their child’s life.

Warning… The video is a real tear jerker! I sobbed all over my iPhone!

I was actually about to write a sponsored post for a company that specialises in recycling mobile phones, saving the environment and making us a bit of extra cash in the process. Then I read about ‘Hearts and Minds’ who are not only saving the planet but helping a child with autism to communicate. Of course it’s Ok to recycle your mobile for cash, especially if you have little… We all need some extra pennies sometimes. But remember this charity are happy to take any mobile phone, regardless of the state it’s in… Broken, old, “a brick” it really doesn’t matter!

Thankfully my son is verbal and actually speaks very well! However he does have an array of communication difficulties and even for him such technology is a godsend. Little man attends a special school and as part of an OT programme he is now learning to touch type, his fine motor skills are very poor and his handwriting hardly legible. An iPad is on the Birthday list and it’s something I’d purchase with the knowledge of knowing that for little man it’s so much more than a fancy handheld tablet.

I hope that others will read this and next time they open a draw to discover an old dusty mobile they remember this post and therefore remember that for a child with autism that dusty mobile is a door that opens into a world of communication!

Remember families and schools wanting to register for the programme can do so over on the hearts and minds website

For more information on the programme visit Grace App or Hearts and Minds to see if you can help give a child with autism a way to communicate.

Disclaimer: This is not a sponsored or guest post. I have not been asked to write this and have not received anything for sharing this information. I have done so as a way to help a charity on their mission to help others.

2 Responses to “Help a child with Autism communicate with the world they live in”

  1. Lexi Bond July 2, 2012 at 1:52 pm #

    Who deconstructs the sentence strip and/or places the pictures back inside the book?

    Initially, the communicative partner should remove the pictures from the sentence strip and replace both the strip and pictures on/in the book. Requiring the PECS user to do so unnecessarily slows the communicative response for him or her. Some children insist on being the ones to put their pictures back, though. This is fine.

    Essentially, as students become integrated into community activities, they will need to learn to take the sentence strip back from the “lay communicative partner,”? so that pictures and sentence strips don’t get lost. When teaching this skill, we recommend the use of physical prompts or gestures instead of verbal prompts (i.e., “Put your pictures away”). The physical prompts or gestures you insert into this lesson should be much easier to fade than verbal prompts and will promote independence as quickly as possible.

    For more information please visit http://www.pecsusa.com/faqs.php.

  2. lisamareedom June 3, 2012 at 1:10 pm #

    It was so easy for supposed health and education professionals to overlook Gracie’s fundamental rights because she could not communicate independently. So I feel strongly that everyone no matter what the disability should have the right to an independent means of expression.
    Thanks for sharing – an iPad is a Tool, not a toy and I hope your post will explain to people why they should be helping kids who need it, get to say exactly what they want.
    Lisa xx

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