Time to find your voice.

17 Jun

This is a post of utter urgency! It’s a plea  for help from the wider community. Does your child have autism, special educational needs or problems in school? Maybe they don’t, but who knows what the future holds!

I was sat at my mothers yesterday checking my emails when I came across something most frightening… A life line for parents of school age children faces the big axe due to funding cuts,’ THE ADVISORY CENTRE FOR EDUCATION’ better known as ACE.

Ace is an invaluable DfE telephone support service who offer advice to parents of school age children on education issues, the main one’s being exclusions, admissions, special educational needs, bullying and discrimination. If your child has ever been exclude like mine, then you have properly used ACE at some point, to advise you on your next steps and whether the exclusion was carried out in away that is considered ‘legal’. The service offers free advice and is normally a parents first port of call. Exclusion letters will often contain the telephone number for ACE, one day I decided to use them. I was offered top notch information that was inline with the education act, I was provide with much needed assistance when I didn’t know where else to turn. The following day I received a free exclusion guide in the post, considering it was 4:00pm when I had called, I considered it an excellent service.

Ace, highlighted some real serious problems for me, including the fact Little man had been illegally excluded twice! If I had never made that call I would have been none the wiser and my guess is the unofficial exclusions would have continued. I rang ACE a significant amount of times over a two year period, with every call I was offered beneficial advice. I feel so strongly about this and was most upset that this service that has offered support to thousands of families for the last 50 years, would no longer be able to operate as they have been informed that funding will stop at the end of the month.

Now you maybe thinking to yourself as you read this, that its of no importance to you, but how would you feel if it was? This is a life line for many and is just one services that parents like me will lose! Unfortunately this isn’t all we have to worry about! Us parents to children with special educational needs as facing a host of possible changes, that in my opinion will only see our children in a more disadvantaged state then ever before. The pending changes thanks to the green paper already pose a huge degree of uncertainty, resulting in possible changes to the law, yet a huge reduction in services to support parents through this worrying time. If that wasn’t bad enough, we face the prospect of losing the right to gain legal aid which many families rely on when challenging schools and local authorities by taking them to the SEN tribunal.

So, lets take a long hard look at the facts. Big sources of parental support face closure due to funding cuts; the new health and social care plan is still very unclear; the removal of legal aid for education cases will be withdrawn at this critical time! Anyone would thing it was some kind of deliberate attempt to reduce the amount of claims being brought against LEAs and schools, not because the child’s needs are being meet… No, simply because parents will no longer be provide with sources of information on their current rights; will lose the right to have access to the legal advice needed or even instruct solicitors! What’s even more terrifying… Parents will lose the lifeline they once had to gain independent medical reports to ensure their child’s needs have been fully documented by those instructed by the local authority!

People need to remember these are children we are discussing! Many will claim that the parent should not relay on such handouts, yet it should be acknowledged that many of these parents are not in a position to engage in paid employment, what with many of these children needing home educating or solely being left out of education due to there being no suitable school placements… I cannot see what a parent is left to do?

I had to apply for legal aid to ensure Little Man’s old mainstream primary school received training in special educational needs. We settled a few days before the hearing as we were given a full apology, the promise of SEN training and a re-write of the schools sen policy. I then had the comfort of knowing I had at least tried to stop the treatment my child received being inflicted on others. I also needed the legal aid service for yet another appeal to the tribunal, for the contents of little mans statement of special educational needs lacked details of current difficulties and provisions to address such difficulties. This time my solicitor applied for funding to gain some essential independent reports, that without… my claim would have little success of winning. Little man received three appointments for three independent assessments that would gain us reports for legal purposes! I wasn’t prepared for some of the things I read in these reports and although I knew my sons difficulties were far grater then any documented by the local authority. I was sadden to see just the extent of how different these were. Although the reports highlighted such valuable information, they would show the disturbing differences between the two. Without such reports it is likely I would have never of known the extent of my child’s difficulties! Although little man can speak I now know certain degrees of his speech and language are considered severely delayed! Other important issues included the possibility of dyslexia and Little mans impaired motor skills. Its extremely possible that my child who will now attend an independent special day school designed for children with an autistic spectrum condition, would have been left to struggle trough a mainstream school, face permanent exclusion or as once suggested… be educated in a pupil referral unit.

Many of us are guilty of saying nothing myself included. We tend to complain once the affects have surfaced and we find ourselves and our child in a troubling situation. Its to late then, the damage is done. There are enough off us to get heard…

I ask everyone of you to consider the above and ask yourself if we are being provide with a service that will better meet our children’s needs or place us within a system that is far worse then the one we currently battle?

If you agree with me and my god, I hope you do! Please get yourself heard. Ace are asking for everyone’s support.

Here’s some suggestions on what you can do.

1. Contact urgently Sarah Teather MP and urge her to review the DfE’s recent decision not to fund ACE from the end of June this year.

2. Contact your networks of colleagues and urge them to write to their MPs.

3. Contact your own political colleagues, in the House of Lords or House of Commons, asking for their support for ACE.

4. Publicise our situation via your websites, asking for support and (if possible) donations to help us carry on our work.

5. Contact ACE to discuss how you can support us.

Please remember that without our help, ACE will lose there funding on the 30th June and will no longer be able to provide us with their expertise.

Other things you can do

You can also respond to the SEN green paper by the end of June

Join an online campaign to stop legal aid cuts, such as TREE HOUSE

Start a petition

Write the your MP

3 Responses to “Time to find your voice.”

  1. Jamie June 19, 2011 at 7:52 pm #

    Oh, no thats awful. I will spread the word Claire don’t you worry.

  2. earlpurple June 19, 2011 at 3:48 pm #

    It does matter to me. I live in a world where I have felt unfairly excluded all the time, and I want justice. It has got to go further than just schoolchildren though.

    I want to see ALL discrimination against people with Aspergers Syndrome eliminated. And without lawyers asking me to hand them over large sums of money first.


  1. How crime DOES pay: 500 legal aid barristers earning more than the PM | salesmarketingessentials - June 18, 2011

    […] Time to find your voice. (aspergersinfo.wordpress.com) […]

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