Never give up on the fight! The future seems bright.

25 Feb

OMG did anyone read my latest post to little to late? Well things have moved a long a little more! To be honest I’m still in shock, I’m happy, relived and also a little worried and skeptical!

Reasons for all the above is this evening at 5.30 pm I received a call from little mans deputy head. She rang to inform me that little man would be spending time out of class tomorrow. He was on a red card as he had been rude to staff using swear words, then running around the school like a headless chicken. I once again expressed my deep and worrying concerns for little man future. I know that it’s not all down to his condition but most of it is. I’m concerned that taking him out of his classroom again will make him worse as his breaking his routine. Yes he needs to understand consequences for his actions but I still feel that it’s unfair his punished as he is in need of extra help and support and is not receiving it. For these reasons alone I see it unfair! Just then she tells me that from her point of view little man would benefit from a statement as she thinks he is struggling to cope in mainstream school. Hang the hell on let me pick up my jaw from the floor! A STATEMENT!! This is what I have wanted for two long years this is what I spend all my free time fighting for! Why have I been told for so long it’s not an option. I’m told that now she has seen his formal diagnosis she can now offer more support. She said that they are not able to cope with a child with little mans level of needs. He requires one on one but their staff are not trained to deal with his condition. She goes on to say that he would benefit from a special school and secondary school would be a challenge for him. Basically she was saying all the things I had said before over and over again.

I know that the school have done nothing but supple  me with stress. I have had no support and have battled with them over anything and everything. Yes They have really messed up by saying they never received his formal diagnosis when the evidence  that they did is so strong it makes  them look silly. Looking at all these factors I see that maybe they are worried that the Court will see my side and realise  that yes they have failed a child with ASD. Maybe that’s why we have this sudden big turn around but at the same time does it matter what motive is behind it. If  the end result would mean  little man gets the long-awaited support he so needs ?  A statement = A new school which means his needs will be meet by professionals qualified  in dealing with children with social communication disorders. Yes the treatment we have received is worse than poor but I’m starting to get used to this treatment. I found that once Someone listens and takes note they suddenly leave and I’m back to Where I started. The Deputy said that she will tell the school SENCO that she supports my choice in getting an assessments for a statement of needs and from this day on they must offer better support to little man. All of this I will request in writing as who knows what will happen if she decides to leave and I’m not prepared to go though it again.

It was only a few short days ago I took a copy of his formal diagnosis into the school office to be copied. If I hadn’t of done so the deputy assures me that yes he would have been excluded today. It makes me so angry that his diagnosis has only just began to offer a positive effect on decisions made about his welfare within the school. His had the condition confirmed well over a year It should never of gotten this far. What a bloody mess it all become.

We spoke for what seemed like ages. She tells me that the promise of extra help and the long-awaited backing for a statement will not be broken. She is a newish deputy head and this has to be the first time I have really dealt with her and I’m really hoping she is one in a million and keeps to her word and doesn’t let the system fail my little man again. I’m assured by her that the parent will get the biggest imput when applying for a statement. I’m told all the basic information and know its a long road and a hard one but once I have reached the end it will be a great and satisfying achievement. I’m advised to get support from our local GP and DR at kaledoscope where  he was diagnosed all this plus the support of the school will better his chances in gaining a statement. For the first time in ages I feel that things are looking brighter and little mans further in education could be a much happier one🙂 It’s a feeling I don’t recognized as the situation has never reached this point and at times it did seem pointless. I told the deputy that I felt the school made me out to be a bad parent and all I ever wanted was what she was offering me now SUPPORT. Wow it cost nothing it’s free nothing flashy or over the top who would think that something that seemed so little and silly would mean so so much to me. Support was all I wanted and I wouldn’t ask for anything else in the world right now. We speak about Alice and how it’s all affecting her. The deputy says she finds Alice a very pleasant child who has perfect manners and has grade A behaviour with this she knows that my parenting skills are not an issue when it comes to Giovanni. Wow she must not have read the statements from the educational welfare officer. She made it seem that it was all down to my parenting skills, she made it seem as if I was lazy and didn’t care about his education I was chosing not to take him to school. Then It went on and on about his great behaviour when at school and the fact he displayed no signs of ASD when he was there. Ok she looks pretty silly now with everything that has been going on lately. Well this child with no problems has been excluded a number of times and his deputy head thinks mainstream school is not the right place for him. Yes shes phoned me and told me that she has only just become aware that his experiencing problems and that the school are not coping. I’m guessing she will be doing her best to think up excuses for her statement looking a little less than perfect. Oh well she has a few weeks to come up with something.

Well I just had to share this break through with you all. I’m praying that the end of this chapter is nearing and life for little man is on the up. God knows it’s about time.

3 Responses to “Never give up on the fight! The future seems bright.”

  1. Selina Marshalsea April 24, 2011 at 11:18 am #

    You could definitely see your enthusiasm within the paintings you write. The world hopes for even more passionate writers like you who aren’t afraid to say how they believe. Always follow your heart.

  2. ringtone February 27, 2010 at 2:41 pm #

    I want to make friends with you, can you pm me?, Very impressive!

  3. transitionalthoughts February 26, 2010 at 9:58 am #

    So glad you finally found somebody that seems to be on your side!

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